The Ehlers-Danlos Syndrome Family

The Ehlers-Danlos Syndrome Family 10𝐊 π—™π—Όπ—Ήπ—Ήπ—Όπ˜„ π—Ίπ—²β•°β”ˆβž€ πŸ™πŸ₯Ί.

Hoofbeats usually mean horses. But sometimes, they are zebras – rare and more difficult to find, like neuroendocrine tum...
06/02/2026

Hoofbeats usually mean horses. But sometimes, they are zebras – rare and more difficult to find, like neuroendocrine tumors. Rare doesn't mean imaginary. πŸ¦“πŸ’œπŸ©ΊπŸ”πŸ¦ŒπŸ’”

Hypermobile Ehlers-Danlos syndrome (hEDS) is a connective-tissue disorder that causes extreme joint mobility. The syndro...
06/01/2026

Hypermobile Ehlers-Danlos syndrome (hEDS) is a connective-tissue disorder that causes extreme joint mobility. The syndrome falls under a larger group of genetic disorders, Ehlers-Danlos syndromes (EDS), which affect tissue composition and stability.

Ballet’s aesthetic tends to favor the swooping lines that extra flexibility allowsβ€”bendy feet and knees, especiallyβ€”and it’s no coincidence that people with hypermobility may be drawn to dance. But those perks come with a unique set of challenges, especially in individuals with EDS. So what should ballet dancers know about these elusive disorders?

Learn more here, from symptoms to prevalence and treatment: https://pointemagazine.com/ehlers-danlos-syndromes-ballet/ .tab=0

πŸ“: Kyra Laubacher
πŸ“Έ: Adriana Wagenveld (front) in β€œThe Nutcracker.” Photo by Taylor Jones, courtesy Charlotte Ballet.



Description: wo dancers perform the "Spanish" divertissement from "The Nutcracker." Adriana Wagenveld, wearing a long red dress with a full skirt, splits her legs with her arms lifted as her partner, standing behind her, holds the wrist of her top arm gently. Text: What Should Ballet Dancers Know About Ehlers-Danlos Syndromes?

Connective tissue holds us together – skin, blood vessels, muscles, joints, even the messages from our brain. In EDS, th...
06/01/2026

Connective tissue holds us together – skin, blood vessels, muscles, joints, even the messages from our brain. In EDS, that protein is faulty, making tissue too lax or bendy. It's genetic, often inherited, and hormones can make it worse. That's why some days are just... more broken. πŸ¦“πŸ§¬πŸ’”πŸ©ΈπŸ“†πŸ’œ

EDS runs in families – but the gene alteration can also happen for the first time in you, with no previously affected re...
06/01/2026

EDS runs in families – but the gene alteration can also happen for the first time in you, with no previously affected relatives. You can be the start of the story, not just a chapter in someone else's. πŸ¦“πŸ§¬πŸ’”πŸ”„βœ¨πŸ’œ

I sent a request to the Texas governor for a ceremonial item to recognize eds... I was expecting a letter or something.....
05/31/2026

I sent a request to the Texas governor for a ceremonial item to recognize eds... I was expecting a letter or something... not a full blown approval certificate 😭😭 we are finally being heard yall!!

Autoimmune is internal cannibalism. Dysautonomia is a car whose battery is dying, alternator takes the day off, RPMs rev...
05/31/2026

Autoimmune is internal cannibalism. Dysautonomia is a car whose battery is dying, alternator takes the day off, RPMs rev and fall for no reason, fluids rush away from the engine when going uphill, and pedal to the metal produces sloth speed. My check engine light is flashing red. πŸ¦“πŸš—πŸ’”πŸ”‹πŸ˜΅πŸ’œ

EDS means thinner skin, easy splitting, wounds that take longer to heal, and stitches left in longer. People with EDS ar...
05/31/2026

EDS means thinner skin, easy splitting, wounds that take longer to heal, and stitches left in longer. People with EDS are often called clumsy and fall more – but it's not clumsiness. It's poor joint and muscle control from joint laxity. Your body isn't failing; your connective tissue is. πŸ¦“πŸ©ΈπŸ’”πŸ©ΉπŸ˜”πŸ’œ

My glue is weak. I'm tired of using duct tape. Please help us find a cure. πŸ¦“πŸ’”πŸ©ΈπŸ“¦πŸ˜”πŸ’œ
05/30/2026

My glue is weak. I'm tired of using duct tape. Please help us find a cure. πŸ¦“πŸ’”πŸ©ΈπŸ“¦πŸ˜”πŸ’œ

During the premenstrual phase, EDS symptoms can worsen dramatically – joint instability, subluxations, dislocations, dif...
05/30/2026

During the premenstrual phase, EDS symptoms can worsen dramatically – joint instability, subluxations, dislocations, difficulty walking, coordination problems, and severe fatigue. This is why we call it sh*t week. It's not "just PMS." It's connective tissue failure timed to your cycle. πŸ¦“πŸ©ΈπŸ’”πŸ“…πŸ˜£πŸ’œ

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