Center for Solutions for MECFS

09/07/2022

Check out the Health Rising by Cort Johnson blog on our latest paper with the UC Davis West Coast Metabolomics Center and many of our other collaborators. Be sure to stay tuned for the upcoming researcher interviews to dig deeper and further explain the findings from the MECFS Research Network

Chronic fatigue syndrome (ME/CFS) study uncovers numerous problems that may impact the mitochondria and energy production.

08/24/2022

NIH Telebriefing THIS FRIDAY 8/26 - 3PM ET

For your calendar: NIH’s next ME/CFS telebriefing will be August 26th at 3:00 pm ET.

The telebriefing will include updates from NIH on ME/CFS-related research activities and a presentation by Lily Chu, MD, MSHS, Vice President of the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME), on highlights from the IACFS/ME 2022 Virtual Medical and Scientific Conference.

During the telebriefing, attendees will have the opportunity to ask questions out loud or to submit written questions in the Zoom Q&A box. We regret that we may not be able to respond to all questions that we receive, but we will try to answer as many as possible in the time allotted.

Please click the link below to join the webinar:

https://nih.zoomgov.com/j/1609957505

Or join by phone:
669 254 5252 US (toll free)
646 828 7666 US (toll free)
Meeting ID: 1609957505

08/03/2022

Congratulations to our partners at Bateman Horne Center for the establishment of their new Medical Education Resource Center (MERC) to teach about , , , and comorbid conditions through:

- An online repository of comprehensive diagnostic and disease management guidance
- Virtual lectures and mentoring in partnership with major hospital networks and academic centers
- Ongoing accredited continuing medical education (CME) courses
- In-house medical rotations (residency, fellowship, practicums) and shadowing opportunities
- Expanded US and international partnerships to disseminate medical education

Learn more about the MERC at BHC: https://batemanhornecenter.org/merc/

The OMF Supported Bateman Horne Medical Education Resource Center (BHC MERC) is dedicated to educating healthcare professionals to expand their awareness, knowledge, diagnostic, and treatment ability.

07/21/2022

Our latest paper was published in MDPI this week that indicates a series of interconnected metabolic alterations in people with that may contribute to the pathogenesis of ME/CFS. Read it here:

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic and debilitating disease characterized by unexplained physical fatigue, cognitive and sensory dysfunction, sleeping disturbances, orthostatic intolerance, and gastrointestinal problems. People with ME/CFS often report a prodrom...

07/13/2022

In her latest blog, Dr. Bateman explains the orthostatic intolerance research conducted at Bateman Horne Center and the latest paper we jointly published to explain why the 10-Minute NASA Lean Test is an effective and accessible way to assess orthostatic intolerance in .

Researchers at BHC, the University of Utah and Columbia University teamed up to publish our most recent paper, Orthostatic Challenge Causes Distinctive Symptomatic, Hemodynamic and Cognitive Responses…

07/07/2022

Check out our new publication with Bateman Horne Center in Frontiers that concludes that an orthostatic challenge and the use of a app to assess cognition, can provide objective confirmation of the orthostatic intolerance and brain fog reported by patients with and

BackgroundSome patients with acute COVID-19 are left with persistent, debilitating fatigue, cognitive impairment (“brain fog”), orthostatic intolerance (OI) and other symptoms (“Long COVID”). Many of the symptoms are like those of other post-infectious fatigue syndromes and may meet criteria...

07/05/2022

Our partners at The Network have advised DHHS on the Top 10 research recommendations for and echoing the priorities developed by our Community Advisory Committee.

The Long COVID National Research Action Plan must include ME/CFS.

06/29/2022

Watch Solve MECFS Initiative Vice President of Advocacy and Engagement Emily Taylor and member of our Community Advisory Committee recap this year's whirlwind ! This video review includes moments from all of their events, virtual and in-person, in May 2022. Watch here:

Solve M.E. Advocacy Month is a nationwide advocacy effort to connect people with ME/CFS, Long Covid, and other chronic illnesses; scientists; clinicians, and...

06/27/2022

For updates from our MECFSnet research network, be sure to like and follow the new page!

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06/22/2022

NINDS Brain for Life Director Walter Koroshetz speaks with Face The Nation about the initiative and says, "There's a condition called myalgic encephalomyelitis/chronic fatigue syndrome that looks almost identical to what we're seeing and these have existed for decades". He also says this is not a new problem and that this is our chance to delve deep to try to understand what is going on.
http://ow.ly/1b1h50JEh9u

05/26/2022

ICYMI: Our friends at The Network share their full global Virtual Event that took place on May 12, 2022. Please watch & share this touching event where so many of the speakers shared so powerfully.

On May 12th 2022, held our Global Virtual Event. It was jam-packed with powerful speakers and beautiful moments of connection. We ...

05/25/2022

Join our our friends Solve MECFS Initiative for the EmPOWER M.E. roundtable on 5/26! This year, our EmPOWER M.E. roundtable will focus on local advocacy. They say “all politics is local.” What does that mean for creating change for and ? Register here:

"They say "all politics is local." What does that mean for creating change for ME/CFS and Long Covid? Join our panel of veteran state advocates as they discuss the importance of local and state advocacy. We will hear about initiatives in CA, FL, MA, MD, MN, DE, and NY; learn tips for starting projec...