HDSA Washington State Chapter

06/02/2026

Is your birthday coming up?

If you have an upcoming birthday or significant anniversary to celebrate this HD Awareness Month, you can celebrate by raising awareness and support for those living with HD by setting up a fundraiser on Facebook or Instagram with HDSA!

06/02/2026

Research Update . . .

Research update for the Huntington’s disease community: Skyhawk Therapeutics has announced 12-month interim results from its Phase 1/2 clinical trial of SKY-0515.

HDSA remains committed to keeping the HD community informed as research continues to advance.

Read the full announcement:https://hdsa.org/wp-content/uploads/2026/06/EMBARGO-UNTIL-7AM-JUNE-1-Skyhawk_SKY-0515-Twelve-Month-Phase-1C-Patient-Data-6-1-26.pdf

06/01/2026

Good news, if you couldn't attend the 2026 HD COE Education Day yesterday, at UW Tacoma, we recorded the presentations.

Click this link:
https://www.youtube.com/live/RXqGK7Ag3t8?si=Wud18nQYiFjULcG1

PRESENTATION TOPICS:
Current Research
Mental Health and HD
Advocacy opportunities
Genetic Testing and Family Planning.
Bring questions for our "Ask the Experts Panel.

---The University of Washington Tacoma / Be BoundlessWebsit...

05/31/2026

Although today is the last day of Huntington’s Disease Awareness Month, we do will not stop. 💙 With a mission to improve the lives of those affected with HD and a vision of a HD-free world, HDSA provides services, education, advocacy, and research to ensure no one is in their fight alone. 🫂
🔗 For more information visit: hdsa.org See less

05/30/2026

For families impacted by Huntington's disease, every day brings challenges most people never see. A parent watching symptoms progress. A child living with uncertainty. A family holding onto hope for more answers and better treatments.

If you've been following along, sharing posts, or learning more about HD this month, now is the moment to turn awareness into impact. Visit, hdsa.org/hdawareness

05/30/2026

Live right now!!!

HD Education Day
Sat., May 30, 2026
9am -3pm

If you are unable to attend physically, we will be live streaming the event at the link below.
Feel free to share this link with others who are unable to attend.

https://www.youtube.com/live/RXqGK7Ag3t8?si=Wud18nQYiFjULcG1

We will be discussing:
Current Research
Mental Health and HD
Advocacy opportunities
Genetic Testing and Family Planning.
Bring questions for our "Ask the Experts Panel."

05/26/2026

Awareness creates understanding. Hope propels us forward. Real change happens when people choose to rise, speak up, lead, and make a difference.

Help support HDSA and help strengthen the programs, services, and community support that individuals and families affected by Huntington’s disease have come to rely on. When awareness meets action, hope becomes powerful.

Take Action. Go to: hdsa.org/hdawareness

05/20/2026

and raise awareness this at One World Trade Center, and with Spireworks

Additional participating locations in NY:

One World Trade Center
One World Trade Center Podium
One Five One West 42
Halletts Point
Sven LIC
One Bryant Park

A special thank you to Spireworks for supporting the fight against

To learn more about HD Awareness Month, visit: https://hdsa.org/.../hdsa-marks-34-years-of-huntingtons.../ and to find more information about Spireworks, visit: https://www.spireworks.org/

05/18/2026

with Will Forte

Help us turn up the global volume on HD awareness by posting videos, stories & photos to social media using to educate the world about the devastating impact that HD has on families this May!

Thanks to a generous match challenge, every dollar donated will have double the impact — helping expand support, strengthen services, and bring hope to families who need it most.

Awareness starts the conversation. Action changes lives.

To learn more about & the and support the HDSA's mission, please visit: hdsa.org/hdawareness