Generation Lyme

Generation Lyme 501(c)3 nonprofit community empowering patients and supporters facing tick-borne disease.

"Hey, y’all! My name is Sarah Hesterlee. I’m Texas born and raised, and I’m here today to testify: Lyme is in every stat...
06/13/2026

"Hey, y’all! My name is Sarah Hesterlee. I’m Texas born and raised, and I’m here today to testify: Lyme is in every state.

To put my story simply, I married my high school sweetheart. We became high school teachers. We built a house down the street from the school and raised a couple of kids who are now high schoolers. Through the years, I got Lyme disease, lost my ability to walk well and sometimes to speak, lost my job when I retired due to disability, and we lost our home. But we’ve also been blessed, as we recently rebuilt and my husband won a war against stage four cancer since there’s a protocol in place.

We need that for cases of chronic Lyme, too. Please push for the advancement of its research and treatment by continuing to share your stories. Thanks for your time and for all of your advocacy." – Sarah

This month we’re collecting art submissions from our community.If you draw, sketch, doodle — we’d love to feature your w...
06/12/2026

This month we’re collecting art submissions from our community.

If you draw, sketch, doodle — we’d love to feature your work.

We’re looking for:
• Sketches
• Doodles
• Illustrations
• Digital art

No need for it to be perfect or polished. We care about what it means to you.

To submit:
Email your piece + a short note about it (1–2 sentences is perfect) to [email protected]

We’ll be sharing selected submissions throughout the month.

“Dear Lyme,Our family dog was the reason that I was tested for Lyme. She passed from Lyme shortly before my symptoms bec...
06/12/2026

“Dear Lyme,

Our family dog was the reason that I was tested for Lyme. She passed from Lyme shortly before my symptoms became concerning. There are so many hard parts to the permanence of chronic Lyme disease, including fatigue, brain fog, joint inflammation, and additional autoimmune diseases that develop. I could be angry about what Lyme has changed in my life, or I can appreciate the good that has come from it.

I am beyond thankful that my journey to a diagnosis showed me the family members and friends that could really stick through the hard moments. It has given me a community of people who understand and can relate but also celebrate the small and big wins in our lives, both health-related and personal. I appreciate the time and energy that I have to spend with family or doing the things I love! I listen to my body’s needs and limits.

As much as I wish that I didn’t have Lyme, I am so grateful for what I have gained from it.”

– Allison, I Won’t Let Lyme Dictate My Life

Maybe you’ve had to let go of hobbies, careers, routines, or versions of yourself you never expected to lose. Maybe you’...
06/08/2026

Maybe you’ve had to let go of hobbies, careers, routines, or versions of yourself you never expected to lose. Maybe you’re still figuring out who you are outside of appointments, symptoms, and survival mode.

This month, we’re creating space for those conversations. Not because there are easy answers, but because so many of us are asking the same questions.

RSVP for our next Meet-Up at genlyme.org/meetups

Real community is built in the way we respond, the way we listen, and the way we hold space for each other — especially ...
06/02/2026

Real community is built in the way we respond, the way we listen, and the way we hold space for each other — especially on the hardest days.

Showing up is powerful.
Showing up with empathy is everything.

Love, Generation Lyme.

Learn more about us at genlyme.org

We are closing out the month with another   from our community member, Allie.Drop some love in the comments and share th...
05/31/2026

We are closing out the month with another from our community member, Allie.

Drop some love in the comments and share this post to your story if you resonate with it.

We are ending our Letter to Lyme series this month with a poem from our talented Poet, Kristen. Drop a comment below and...
05/29/2026

We are ending our Letter to Lyme series this month with a poem from our talented Poet, Kristen.

Drop a comment below and leave some love for Kristen!

Today's Letter to Lyme is in the form of a poem. Drop a comment below if you relate to these beautifully written words b...
05/28/2026

Today's Letter to Lyme is in the form of a poem.

Drop a comment below if you relate to these beautifully written words by .james

Today's Letter to Lyme is actually a poem previously submitted during World Poetry Week, which we saved for this moment....
05/27/2026

Today's Letter to Lyme is actually a poem previously submitted during World Poetry Week, which we saved for this moment.

Share this to your story and drop some love in the comments for our poet.

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New York, NY

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