Huntington's Disease Society of America, Greater NY Chapter

05/30/2026

For families impacted by Huntington's disease, every day brings challenges most people never see. A parent watching symptoms progress. A child living with uncertainty. A family holding onto hope for more answers and better treatments.

If you've been following along, sharing posts, or learning more about HD this month, now is the moment to turn awareness into impact. Visit, hdsa.org/hdawareness

05/19/2026

05/18/2026

with Will Forte

Help us turn up the global volume on HD awareness by posting videos, stories & photos to social media using to educate the world about the devastating impact that HD has on families this May!

Thanks to a generous match challenge, every dollar donated will have double the impact — helping expand support, strengthen services, and bring hope to families who need it most.

Awareness starts the conversation. Action changes lives.

To learn more about & the and support the HDSA's mission, please visit: hdsa.org/hdawareness

05/16/2026

Celebration of Hope: La Dolce Vita 2026. We celebrated HD Awareness month with good friends, good food, and good wine.

05/15/2026

Today, May 15th is International Awareness Day — so . In the fight against , no one battles alone. Around the world, people affected by HD are part of a close-knit community that feels more like family.

Let’s come together today to raise awareness - share your stories, photos, and videos with to help others understand what living with HD really looks like. 💙💜

Want to learn more or get involved? Want a simple way to show your support? Add our official Twibbonize frame to your profile pic and help raise awareness all month long!

👉 https://twibbo.nz/letstalkabouthd or download the Twibbon app and search for letstalkabouthd.

Visit hdsa.org to learn more about, and connect with the .

Family

05/10/2026

La Dolce Vita 🍹 Photo drop 1

05/01/2026

Want to connect with others who are affected by HD? HDSA offers virtual support groups: https://greaterny.hdsa.org/about/virtual-support-groups

04/29/2026

We're one week away! Get your tickets before they increase in price: http://greaterny.hdsa.org/cohnyc 🍋

04/24/2026

As National Volunteer Week comes to a close, hear from HDSA President and CEO Amy Gray as she reflects on the profound impact that our wonderful HDSA Volunteers make on a daily basis.

A special thank you to all of our dedicated our volunteers, and everyone who joined in on the celebration this week!

Check back throughout the month as we continue to highlight, and celebrate the heroes of our community! 💙💪

04/23/2026

Join us in Phoenix, Arizona for the 41st Annual from June 25-27!

With, incredible workshops, world-renowned presenters, and the latest in Research - the HDSA Convention is an unforgettable experience.

You can secure your spot today by visiting: https://hdsa.org/about-hdsa/annual-convention/