Share The Care (TM) AKA ShareTheCaregiving, Inc.

Share The Care (TM) AKA ShareTheCaregiving, Inc. ShareTheCaregiving, Inc. Visit http://www.sharethecare.org/ Watch posts here for upcoming developments.

educates people about Share The Care™, a grassroots group-caregiving model, that is recognized as a valuable and rewarding caregiving option. We teach a full day Share The Care Professional training (accredited by the NYS Nurse's Association) as well as lectures, workshops and keynotes. We provide email and telephone support to caregivers, professionals, faith-based organizations and corporations.

Our Share The Care Stations are beginning to bloom around the US as well as Canada. We are testing an online Dashboard for Share The Care groups to use our forms and systems online. We provide our forms for download free of charge on our web site.

05/19/2026
05/11/2026

** CAREGIVER EVENTS THIS MONTH **

Caregiving comes with questions. We've got resources to help you connect with answers and information.

Browse this month's caregiver events schedule and be sure to join or register for sessions relevant to your caregiving situation.

📆 Details for each event can be found at https://www.caregiveraction.org/caregiver-events/

(Stay tuned as additional events may be added.)

04/29/2026

‘People with dementia are brushed to the side, they are not on the radar. Cancer has a pathway, with dementia you still have to navigate it all yourself.’

Adam works for Alzheimer’s Society, and cared for his beloved mum, Alice, who had vascular dementia. Sadly, Adam’s dad, Tony, also passed away from cancer during his mum’s illness.

‘After Mum’s diagnosis, I tried to navigate the disease myself as best I could, trying to find out what would happen and how to look after Mum, with no support from the GP or the Memory Clinic.

‘When Dad was diagnosed with cancer, his care included Macmillan Nurses as part of his Cancer Pathway. This was in sharp contrast to Mum’s dementia, which had no clear pathway and no care allocation.

‘After Dad died in 2020, Mum deteriorated more quickly.

‘I reached out to ask for help, but I felt isolated, without any clear support network. There was no support from the GP, Memory Clinic or Social Services.

'I did a lot on my own. I was never given any literature or signposted to organisations for support.

‘The Social Worker did put a care package in place, but I needed to be Mum’s advocate and fight for everything. I had 4 different Social Workers in 12 months and I found it challenging to negotiate their duty and understand what we were entitled to.

‘I was Mum’s full-time carer, doing the best I could. I was so stressed that I once called the paramedics as I thought I was having a heart attack!

‘In 2022, Social Services said they could not pay the level of home support that they had been and either I give up my job or Mum would have to go into a care home.

‘I could not afford to give up my job as we couldn’t exist on the Carer’s Allowance, so Mum moved into a care home. She passed away in early 2023.

‘Social Services should have people who are specialists in dementia and have more extensive training to support families and people affected. Right now, it is a postcode lottery for the care and services available across the UK.

‘I hope by telling my story I can help others who are caring for a loved one with a dementia diagnosis.’

04/21/2026

WHY SPREAD KINDNESS? There are several reasons, but one of the most important is that our fractured world is in desperate need of unity. Instead of magnifying problems, we must and restore hope in humanity. We all have a role to play. We can all .

04/01/2026

Self-worth affirmations to end the night ♥️

03/26/2026

Good morning and happy Thankful Thursday! Today’s a beautiful reminder to pause and appreciate the little things — the laughter, the lessons, and the love that surrounds us. Take a deep breath, find your gratitude, and let it guide your heart through the day. ☀️💜🌷

Trendy Treehouse

Kind to the Mind!
03/17/2026

Kind to the Mind!

02/27/2026

'Alzheimer’s isn’t just forgetting. It’s losing your sense of safety. Feeling like a visitor in your own life.

'Today I had a very real conversation with my mum.

'She has Alzheimer’s. During a “memory muddle,” she forgets where she lives. She feels an overwhelming need to “go home” even though she is at home. Her house no longer feels familiar; it feels like a holiday place, somewhere temporary.

'She feels lost in a place that should feel safe. Confused. Distressed. Sometimes angry, because nothing feels familiar, even though she’s surrounded by the life she built.

'She knows she has these memory muddles not from remembering them herself, but because I have promised to always be honest with her. On her clearer days, we talk openly about her Alzheimer’s, and she understands the journey she is on.

'She had a memory muddle this morning, and Dad called me so I could talk with her. This afternoon, while I was spending time with her, I told her about it and she had no recollection of it at all.

'Then she broke down. And she apologised to me.

'For being confused.

'For getting cross.

'For having Alzheimer’s.

'She never needs to apologise to me. It broke my heart that she felt she needed to.

'That moment shattered me.

'Alzheimer’s isn’t just forgetting. It’s losing your sense of safety. Feeling like a visitor in your own life. Believing you’re on holiday because home no longer makes sense.

'For families, it’s watching someone you love apologise for a disease stealing them piece by piece.

'And yet, the lack of social care support is staggering. Families are discharged, passed around, or told to cope. Carers burn out quietly. Loved ones hold everything together behind closed doors.

'This isn’t good enough. Families living with Alzheimer’s need real, ongoing social care support, guidance, respite, and compassion.

‘My family needs more.’

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New York, NY

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