Crohn's & Colitis Foundation - Upstate New York Chapter

Crohn's & Colitis Foundation - Upstate New York Chapter Our Mission: To cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases.

Visit us at www.ccfa.org

08/17/2026

Clinical trials are a meaningful way for people living with Crohn’s disease and ulcerative colitis to access promising new treatments and diagnostic approaches while helping to improve options and care for the entire IBD community.

Hear from Gastroenterologist Dr. Serre-Yu Wong of the Icahn School of Medicine about why it's important for IBD patients to consider participating in clinical studies.

To learn more about the many ways you can contribute to research and to find available studies, visit the Clinical Trails Community: https://bit.ly/3BELm9E

08/16/2026

Living with IBD? Riya from our National Council of College Leaders has a hack that changes everything: plan ahead. From doctor's appointments to medication and insurance — earlier is always better. Watch her tips 👆

If you are an adult with moderate to severe Crohn’s disease (CD) who has tried another therapy for Crohn’s disease that ...
08/15/2026

If you are an adult with moderate to severe Crohn’s disease (CD) who has tried another therapy for Crohn’s disease that didn’t work or is no longer working, you may be eligible for the GARNET study evaluating the efficacy and safety of using MORF-057 in treating CD.

Click here to learn more: https://bit.ly/4eonECA

Life with IBD looks different in your 20s and 30s. Whether you're navigating college, starting a career, building relati...
08/15/2026

Life with IBD looks different in your 20s and 30s. Whether you're navigating college, starting a career, building relationships, or balancing work and family, our Young Adult Virtual Support Groups offer a welcoming space to connect with others who understand.

Share your experiences, talk about the challenges and successes of living with Crohn's disease or ulcerative colitis, and build meaningful connections with peers who get it.

Explore our Young Adult Virtual Support Groups and find the one that's right for you: https://bit.ly/4z3ygiG

08/12/2026

Health insurance can be confusing—especially when you're navigating a chronic illness like IBD. In this video, members of the Foundation's National Council of College Leaders (NCCL) break down the basics so you can feel more confident managing your IBD care.

They explain deductibles and copays, show you how to find your insurance information, what in-network care is, and how to prepare for the future.

Have questions about insurance? Drop them in the comments below.

08/08/2026

Managing IBD medications can be challenging, and a few simple habits can make a big difference.

In this video, Shirin and Maggie, members of the Crohn's & Colitis Foundation's National Council of College Leaders, share practical tips for staying on track, including setting reminders, using auto refills, and planning ahead for injections and refills.

What strategies help you manage your medications? Share them in the comments.
Subscribe for more IBD tips and support: https://bit.ly/4fxdlf2

💙 Kids with Crohn’s disease or ulcerative colitis don’t have to navigate their IBD journey alone.IBD Kidz is a fun, welc...
08/07/2026

💙 Kids with Crohn’s disease or ulcerative colitis don’t have to navigate their IBD journey alone.

IBD Kidz is a fun, welcoming virtual support community where children can connect with others who understand what they’re going through through age-appropriate discussions, activities, and new friendships.

Thanks to our partnership with Project Sunshine, each session includes engaging games and activities designed to help kids feel supported and connected.
Find an IBD Kidz support group today: https://bit.ly/4bUIQyA

08/06/2026

Did you know your IBD diagnosis can actually change over time — and it doesn't mean your disease is getting worse?

In this Crohn's & Colitis Mythbusting video, Alan Moss, MD, the Foundation's Chief Scientific Officer, explains why some people are reclassified from Crohn's disease to ulcerative colitis, or vice versa, as more information becomes available.

The good news? Most treatments work for both conditions, so a change in diagnosis usually doesn't mean starting over.

Watch the video to learn more and stay tuned for more mythbusting episodes.

Sleep and stress can have a big impact on life with Crohn's disease or ulcerative colitis.Join our free MyIBD Learning w...
08/04/2026

Sleep and stress can have a big impact on life with Crohn's disease or ulcerative colitis.

Join our free MyIBD Learning webinar to learn practical strategies for improving sleep, managing stress and anxiety, and building healthy routines that support your overall well-being.

🗓️ Tuesday, August 18
🕗 8:30–9:30 p.m. ET

Register today: https://bit.ly/4vIxHry

Flares under control. Pain isn't. That's the reality for nearly half of people with IBD, even in remission. For years, t...
07/31/2026

Flares under control. Pain isn't. That's the reality for nearly half of people with IBD, even in remission. For years, there's been no real answer for why, or how to treat it.
Now, researchers backed by Foundation funding are chasing down the science behind chronic pain in IBD — and the treatments that could finally target it.

Our new partnership article with explores the research behind why pain persists in IBD, and the studies working to solve it.

Featuring insights from: 🔹 Andrés Hurtado-Lorenzo, PhD, Senior Vice President, Translational Research & IBD Ventures, 🔹 Alan Moss, MD, Chief Scientific Officer🔹 Orna Ehrlich, MPH, Chief of Staff & Impact,

Read the full story: https://bit.ly/4yLRoS8

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