Sickle Cell and Trait Meets

09/01/2025

Happy New Day 🌎 It’s been a while but the community is still here for you. Blessings & Love ~

Happy National Sickle Cell Awareness Month! SCDAA is committed to driving innovation and providing support for individuals living with sickle cell disease. We are leading initiatives that make a significant impact in our communities. Stay tuned for inspiring stories, educational resources and ways you can get involved this month! Learn more: https://buff.ly/7d91CrQ

02/16/2025

02/16/2025

02/16/2025

Sickle Cell

📢 Your voice belongs—be in the room!

The SCD Policy Forum is your chance to advocate for change and connect with policymakers. Registration is critical to secure your spot—don’t wait.

🔗 Register here: https://bit.ly/40xh3xG

02/16/2025

Continued Education

Expand your impact as a CHW! Join us on Mar. 6 from 12 to 1 p.m. EST for a P.O.W.E.R. ECHO training session on “Influence on the Community Level and Beyond.” Led by Stephanie Ramos, a CHW and navigator with Sickle Cell Advocates of Rochester, this virtual session is not to be missed. Register now: https://buff.ly/42oHQ1B

02/16/2025

People with Sickle Cell Disease (SCD) often face misconceptions about their condition.

Here are 12 things they want you to know:
1. Sickle Cell is Not Contagious
2. The Pain is Real and Severe
3. Fatigue is a Daily Struggle
4. We Are Not Drug Seekers
5. Cold and Dehydration Can Trigger a Crisis
6. There’s No Universal Cure
7. We Need More Awareness and Research
8. Mental Health Matters Too
9. We Can Live Full Lives with the Right Support
10. Routine Medical Care is Essential
11. Blood Donations Save Lives
12. Empathy Goes a Long Way

02/16/2025

Joyful 2025 Everyone! We took a 3-month break for overall health and wellness but we’re back❣️Looking forward to sharing resources within the community for comprehensive and holistic care. ~SJL~

11/10/2024

Is your decision to become a parent impacted by your sickle cell status? The CHOICES study is seeking participants to answer questions about their experience with sickle cell and share their plans and beliefs related to parenting choices. Compensation is available. Click here to see if you are eligible to participate: https://buff.ly/3FMdXMv