10/08/2026
Do you have or provide care for someone with celiac disease or another gluten-related condition? We want to hear from you!
The Celiac Disease Center at Columbia University (Celiac Center) in partnership with the University of Kansas, and the National Celiac Association, are conducting a research study to better understand the experiences of people who (1) live with or (2) provide care for someone with celiac disease or another gluten-related condition. You are invited to complete an anonymous online survey, which will take approximately 20 minutes.
You are eligible to participate if you are over the age of 18, currently reside in the United States, and have either (1) been medically or self-diagnosed with celiac disease or another gluten-related condition or (2) provide care for someone who has been medically or self-diagnosed with celiac disease or another gluten-related condition.
By participating in this project, you will help us learn more about social support use, the types of social support, and valued resources. These findings will generate insights that can improve support and resources for individuals affected by celiac disease and gluten-related conditions.
Patients: If you identify as someone who has been medically or self-diagnosed with celiac disease or another gluten-related condition, please take the survey here: https://kusurvey.ca1.qualtrics.com/jfe/form/SV_73yHAPzjb30S31I
Caregivers: If you identify as a caregiver of someone who has been medically or self-diagnosed with celiac disease or another gluten-related condition, please take the survey here:
https://kusurvey.ca1.qualtrics.com/jfe/form/SV_7Poc3dmfs6NfJYi
Dr. Rikki A. Roscoe ([email protected]), Assistant Professor, University of Kansas
Dr. Anne R. Lee ([email protected]), EdD, RD, LD, Assistant Professor, Columbia University
In collaboration with Carla Carter, OTR/L, and Chris Rich of the National Celiac Association