I AM HEARD Coalition

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I AM HEARD Coalition Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from I AM HEARD Coalition, Nonprofit Organization, Nashville, TN.

Bridging the gap between diagnosis & a cure through direct patient resources, research & education.

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https://linktr.ee/iamheardcoalition?utm_source=ig&utm_medium=social&utm_content=link_in_bio&fbclid=PAb21jcA

🚨 TONIGHT! OUR FIRST-EVER COMMUNITY TOWNHALL 🚨The wait is over. Tonight, October 2nd at 7 PM CST, I AM HEARD Coalition F...
10/02/2026

🚨 TONIGHT! OUR FIRST-EVER COMMUNITY TOWNHALL 🚨

The wait is over. Tonight, October 2nd at 7 PM CST, I AM HEARD Coalition Founders James & Megan are going LIVE on Instagram — and this one is all about YOU.

No script. No polished presentation. Just an open conversation with our community.

Come ready to ask about:

• 🧬 Our new Stem Cell Access Program
• 📦 Care Packages
• 💙 The YOU ARE HEARD Grant Program
• 🔬 Research & Development
• 📣 Advocacy
• 🗣️ Organization suggestions, critiques & concerns
• 🙌 Anything else you want us to address

We’ll be live for approximately an hour — or until we’ve worked through your questions, comments, concerns and ideas.

This townhall kicks off Q4, a pivotal stretch as we build toward 2027 — including our first-ever annual I AM HEARD event right here in Nashville, TN! 🎉

And tonight is just the beginning. Going forward, these townhalls will happen every quarter — creating a standing seat at the table for the people this organization exists to serve.

We’ve said it before, and we’ll keep saying it:

Our community drives what we do.

So bring the hard questions. Tell us what we’re getting wrong. Tell us what we’re getting right. Tell us what you want to see next.

We want to hear you. ❤️

📍 Instagram LIVE
🗓️ TONIGHT — October 2
⏰ 8 PM EST / 7 PM CST

Set your reminder. We’ll see you tonight. 🙌

What a month!✨ From a full-circle care package event at AIG with our New York Chapter Leader, Sean (I AM HEARD NEW YORK ...
10/01/2026

What a month!✨ From a full-circle care package event at AIG with our New York Chapter Leader, Sean (I AM HEARD NEW YORK CHAPTER) 🥰, to a historic announcement of a Stem Cell/Regenerative care access program that will change lives globally!

Q4 is here — and so is our year-end push. To set up a BIG 2027 full of life-changing access and events for our community, we need to finish this last quarter strong. So yes, you'll see more asks from us, but know that the transparency you see in post like this will always exist & if you believe in the things we are doing at this organization & want to see it grow, please, get involved anyway you can🫶 We are proud to be such a unique organization in this space & hope to set the example for many others moving forward showing that you don't have to limit yourself to just 1 progam🫡 Education, research, direct aid, awareness... they can ALL happen within one organization!!

Here's how you can help: share, like, and comment on our posts to help drive the algorithm & spread the I AM HEARD message. And if your workplace offers a donation match program, please tell them about us — and see how you can add us!

📣 SET YOUR ALARMS‼️Tomorrow at 7pm CST: our FIRST-EVER community town hall, live on Instagram. Engage with the founders directly and make your voice heard — you direct where this organization goes. 🫶

And now, the history-making news. This month, the very first awarded stem cell therapy patient in our community (Chiari-Malformation & Syringomyelia diagnosis) will be in Nashville to receive Dezawa MuseCell Innovations® at Vita Nova Stem Cell Professionals.

This is the first time in history a chronic illness community has offered a program like this — and the way we plan to expand it has never been seen before in the nonprofit world. We can't wait to share more from that day, and to show you how you can be a part of it. 🌱

As always, we want to hear from you in the comments or DM with questions, for you to be able to say 🧡

Usually behind the camera, but always at the heart of the mission. 🤍Meet Megan — co-founder, advocate, mom, patient, and...
09/30/2026

Usually behind the camera, but always at the heart of the mission. 🤍

Meet Megan — co-founder, advocate, mom, patient, and lifelong helper. What started as a shared passion with James has grown into a community far beyond anything she imagined.

And she’s just getting started.

As always, we want to hear from you in the comments or DM with questions, for you to be able to say 🧡

09/28/2026

What makes the I AM HEARD Coalition worth supporting?👀

We're glad you asked🤗

We could give you a long list, but these are the three reasons we're proudest of. They're also why we believe this organization can become the face of support for chronic illness globally.

✅️ Direct access programs
Care packages, access to regenerative therapy, and a grant program for everything in between.
These programs improve quality of life now, not someday. That's what our patient community needs most, so that's what we're building.

✅️Community-led
As James says, this organization isn't led by executives. It's led by the community.
What we do comes from our conversations with you about what chronic illness patients actually need. You tell us what matters, and we build around it.

✅️Transparency
We post a financial update every month. You deserve to know where every dollar goes, and we have nothing to hide.

Many organizations won't share that kind of information regularly. We're here to set a new standard, because this community has had its time wasted for too long.

If you believe in these things and want to see them grow, share this post with everyone you know.
This progress can't happen without you🙌❤️🙏

Surgery is a lot to prepare for — but you don’t have to prepare for it alone. 🧠Save this checklist, make recovery a litt...
09/27/2026

Surgery is a lot to prepare for — but you don’t have to prepare for it alone. 🧠

Save this checklist, make recovery a little easier on yourself, and remember that I AM HEARD is here to help carry you through the journey.

Need a little extra support? We can provide a custom care package tailored to your needs before surgery and beyond. Stay tuned for part two for all your post-surgery needs. 📋

As always, we want to hear from you in the comments or DM with questions, for you to be able to say 🧡



This content is for informational and educational purposes only and is not intended as medical advice, diagnosis, or treatment. Always consult a qualified healthcare professional for any medical concerns. I AM HEARD Coalition assumes no liability for any actions taken based on this information.

Day Made🥹❤️
09/26/2026

Day Made🥹❤️

What can endometriosis research teach us about syringomyelia and chronic pain?New research is showing just how complex t...
09/26/2026

What can endometriosis research teach us about syringomyelia and chronic pain?

New research is showing just how complex the relationship between inflammation, nerves, and pain can be. For people living with syringomyelia, that raises an important question: could we be looking too narrowly at the structural problem when trying to understand persistent pain?

Different diseases. Different mechanisms. But there may be more to pain biology than what we can see on a scan.

At I AM HEARD, we don’t chase headlines. We follow the evidence, ask better questions, and keep connecting the dots.

As always, we want to hear from you in the comments or DM with questions, for you to be able to say 🧡



This content is for informational and educational purposes only and is not intended as medical advice, diagnosis, or treatment. Always consult a qualified healthcare professional for any medical concerns. I AM HEARD Coalition assumes no liability for any actions taken based on this information.

09/26/2026

Education is necessary. Advocacy/Awareness is necessary. But after decades of organizations existing with no cure and no felt progress in patient communities, at what point do we change how we approach being a nonprofit?

That question is the reason the I AM HEARD Coalition exists.

No more education-and-advocacy-only programs. No more waiting around for a promise of research that may or may not arrive in a patient's lifetime. Instead: programs built on the quality of life every individual is owed. Programs that, in some cases, save lives.

In a short period of time, we've already built multiple direct-access programs — with real results, and still expanding.

So here's our question for organizations with 10x, 20x our resources: what's your excuse for not doing more?

Why not engage directly with your community and hand them resources that help them today — not just research that may or may not ever reach them?

This is our challenge to the nonprofit space, especially to organizations whose programs never actually reach patients at home or improve their day-to-day lives: will you put in the greater effort to directly impact a community that has suffered for decades? Or will you call it too tall an order?

Know this — the I AM HEARD Coalition isn't going anywhere until the job is done. If no one else is willing to put in the extra hours to meet patients across every need and actually deliver, we will.

Because we're not just founders. We're patients in this community too. We just decided enough was enough — that someone had to do something different. As the saying goes: the definition of insanity is doing the same thing over and over and expecting different results.

Buckle in. Welcome to the fastest-growing, most dynamic nonprofit on Earth.

We're just getting warmed up🙌🫡🔥

🚨 FIRST EVER COMMUNITY TOWNHALL 🚨Mark it down: October 2nd @ 7PM CST.The I AM HEARD Coalition Founders James & Megan are...
09/24/2026

🚨 FIRST EVER COMMUNITY TOWNHALL 🚨

Mark it down: October 2nd @ 7PM CST.

The I AM HEARD Coalition Founders James & Megan are going LIVE on Instagram — and this one's all about YOU.

This isn't a Q&A with a script. Come with real questions on:

- Our new Stem Cell access program

- Care packages

- The grant program

- Research & Development

- Advocacy-minded questions

- Organization suggestions & critiques (yes, ALL of it — we want to hear it)

- Anything else you want the coalition to address🙌

We'll plan on being live for an hour or until all individuals questions, comments, suggestions, concerns etc are addressed!

This townhall kicks off our Q4 — a pivotal stretch for us as we build momentum into 2027, which includes our first-ever annual event, hosted right here in Nashville, TN 🎉

And this won't be a one-time thing. Starting now, these townhalls will happen every quarter, moving forward — a standing seat at the table for our community, every single time.

We've said it before and we'll say it again: our community drives every decision we make.

You — the patient community — own this organization just as much as our founders and board members do.

You will never be shut out of a major decision or development process here. That's not how we operate.

So come join us on October 2nd. Come ask the hard questions. Come tell us what we're getting wrong. Come celebrate what we're getting right. This is what it looks like when an organization actually puts your needs first — and finally hears you ❤️

Set a reminder now so you don't miss it. And get ready — this is the first of many.

Are you excited for this?!🙏

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Nashville, TN

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