09/30/2026
Day 30 of Childhood Cancer Awareness Month:
Grief and the hereafter
Grief. It has no boundaries or timeline and it can unfurl it's cold fingers and grasp your heart and mind out of nowhere, sometimes crushing them beyond existence.
I have often described the feeling during death and the days, weeks , sometimes years after, as being stuck in Jello. You see the world around you moving, but sounds and sights are muted and shaking all around you. You know you are moving but you are stuck. Then it slowly melts away and you are but a piece of driftwood floating out to sea. You can see the shore and every life line others thrown at you, but you just can't raise your arms to hold on. Slowly but surely you start treading water and before you know it, you are swimming back to shore. Some days you have to float again and start all over, but eventually your sea legs will reach the shaky, sandy ground and you will stand. Like a newly born deer, but you stand.
I couldn't sleep. The nightmare's of his last few moments here on earth haunted me, stronger than anything out of horror movies or Stephen King could write. I couldn't eat and lost down to 102 pounds and was in a size 00. I wanted to feel anything and everything but the loss of Chase. I welcomed and invited any other pain, humiliation, guilt, wrong love, numbness - ANYTHING to not feel the hole his loss created. It's easy to stay there....in the warm, safe Jello.
But you HAVE to face it. You can't start treading that water until you do. It's just a fact of life, even when you don't want to live it. I would read đŁ 'Footprint's in the Sand'đŁ a lot during this time and just begged and thanked God for carrying me. I still do. It's really the only explanation of how to survive it. It's not MY strength, it's his.
He gave me this story and one of the GR8TEST golden lights to share for 10 years. My job as a mother didn't end on March 10, 2008. I do what I do, because my job isn't over.
Just last week both of my other children came to me saying they had essays or project's to do. One was "Interview about your childhood" and that child asked instead could they do the interviewing as to not have to talk about their childhood. I asked them why. I was given the answer "Well, my brother died of cancer. My grandfather, died of cancer. My dog died of cancer. And my cousin died of cancer. Fun Times." The other child has a speech on how something from their childhood changed them to be who they are today. That child talked about how classmates got up one after another claiming "Sports, cheer, or band" made a huge impact on their childhood, "Then I had to get up there and say 'My brother had cancer, my mom was gone for 7 months, and then he never came home. Kinda brought down the room. But I got to say how we made something good come from it by helping others."
Talk about a shot to the heart. Grief doesn't end. Like that kid said - it is usually up to the parents effected that fight for a change so that the death or the survivor's fight against cancer mean something other than that grief. I find that a very sad statistic. People can unify & fight over the craziest things, but things that MATTER they turn away.
These cancer kids deserve more than 30 days and they deserve more than .04 cents to every dollar for research. They deserve more than THREE APPROVED CANCER MEDS in the last 21 years. They deserve more...period.
I will fight for every mother and father to never have to say goodbye way too soon, until the day I am lying in the space beside the one who was my golden light that showed me the way.
This is my promise to you. I fight for my kid, but I fight for yours too.
THAT is why we are The Gr8t Chase. đâ¤ď¸