Addi's Angels

Addi's Angels Nonprofit supporting high-risk pregnancies, NICU families, & loss. Providing comfort, hope, & care.

Addi's Angels is a nonprofit organization dedicated to advocating, supporting, and raising awareness for high-risk pregnancies, trisomy pregnancies and babies, NICU families, and parents who have experienced loss. Our mission is to provide comfort, hope, and support to families navigating these difficult journeys. Through programs like our Christmas Comfort Kits, we strive to provide tangible item

s and emotional support to families in need, while also fostering a community of care and understanding. We believe no one should face these challenges alone, and we are committed to being a source of strength and encouragement. What We Do:

Advocate for families experiencing high-risk pregnancies, trisomy conditions, and NICU journeys. Provide support through emotional, physical, and financial assistance, including the distribution of Comfort Kits for NICU families. Raise awareness about trisomy pregnancies, NICU care, and the grief of loss parents to help others understand the emotional and physical challenges these families face. Mission Statement:
To bring comfort and support to families experiencing high-risk pregnancies, trisomy pregnancies, NICU journeys, and the loss of a child, while raising awareness and advocating for those impacted by these conditions.

🌸 Calling all knitters, sewers, and crocheters in the community! 🌸We’re seeking creative volunteers to knit, sew, or cro...
04/21/2025

🌸 Calling all knitters, sewers, and crocheters in the community! 🌸

We’re seeking creative volunteers to knit, sew, or crochet bonding squares for a special Mother’s Day project for the NICU!

These unique squares will bring comfort and love to babies and their moms. đź§¶đź’–
No set patterns—let your creativity shine to make each square one-of-a-kind! Check out the attached pictures for some inspiration.

We’d love for these to be donated, but we’re happy to purchase if needed. If you’re ready to craft something, comment below or DM us to join in. Let’s make Mother’s Day extra special for NICU families! 🙌

March is Pregnancy After Loss Awareness Month, and if you’ve walked this road, you know just how heavy it can feel.Pregn...
03/15/2025

March is Pregnancy After Loss Awareness Month, and if you’ve walked this road, you know just how heavy it can feel.

Pregnancy after miscarriage, stillbirth, or infant loss is one of the hardest journeys to navigate. The Hollywood dream of pregnancy—the excitement, the innocence, the pure joy—gets replaced with a different reality. A reality where fear and hope exist in the same breath.

From the moment you see those two pink lines, the worry begins.
Will I start bleeding?
Will there be a heartbeat?
Will my anatomy scan go okay?
Will my genetic testing be okay?
Will I get to bring this baby home and keep them forever?

The unknowns are relentless, and your mind can spiral into the darkest places. Some days, it feels impossible to trust your body again. When loss has taken so much from you, it’s hard to believe that this time could be different.

But here’s the truth—a new pregnancy means a new outcome.

I see you, mama. I see your fear, your cautious hope, your daily battles to believe that this baby is safe. I see the pain when others announce their pregnancies while you’re still grieving. I see the way you hold your breath before every appointment, waiting for reassurance. I see the moments when you let yourself dream, only to pull back because hope feels too risky.

This season is terrifying, and there’s no handbook to guide you through it. But you don’t have to walk it alone.

So send up those prayers, whisper those affirmations, do whatever rituals keep you sane until the next doctor’s appointment. Whatever brings you peace—even for a moment—lean into it. Because no matter what, you are not alone in this.

We are standing with you, holding space for your fears and your hopes, and believing in the strength that carries you forward.

March is Trisomy Awareness Month, and today, 3/13, is Trisomy 13 Awareness Day.Even in 2025, there is still so much stig...
03/13/2025

March is Trisomy Awareness Month, and today, 3/13, is Trisomy 13 Awareness Day.

Even in 2025, there is still so much stigma surrounding trisomy diagnoses. When you first hear those words, it can feel life-shattering. Every parent wishes for a healthy, happy baby. But here’s the truth—trisomy doesn’t always mean death.

Yes, some babies face challenges so severe that life isn’t compatible. And as parents of a trisomy baby, one of the hardest decisions you will ever make is the type of care your child will receive. Some choose to terminate, some choose every possible life-saving measure, and some choose to hold their child as they pass peacefully. Each of these decisions is made from a place of deep, unconditional love. No choice diminishes the love a parent has for their child.

The best thing you can do after a diagnosis is advocate. Take a breath, gather the facts, and learn about your baby’s specific condition. Trisomy isn’t one-size-fits-all—there are different types, each with varying levels of impact.

What is Trisomy 13?
• Also called Patau syndrome, Trisomy 13 is a rare genetic condition caused by an extra 13th chromosome.
• It affects approximately 1 in 10,000 live births.
• Babies with Trisomy 13 often have congenital heart defects, brain structure differences, cleft lip/palate, and other medical complexities.
• While the survival rate is low, some children do live longer than expected, and every moment with them is deeply meaningful.

Today, we honor our own Trisomy 13 baby, Addi Rae. She was the strongest girl for all 29 days of her life, and we wouldn’t have traded that time with her for anything.

For those walking this path—you are not alone. Your love, your advocacy, and your baby’s life matter.

In the NICU, it's easy to feel like time is moving too slowly or not fast enough. But we encourage you to slow down and ...
03/08/2025

In the NICU, it's easy to feel like time is moving too slowly or not fast enough. But we encourage you to slow down and match your baby’s pace. Every day is a step forward, even if it feels small. Trust in the process, take a deep breath, and remember: you and your baby are doing the best you can. 💚

Just 30 Minutes, MommaI just finished my first book of the year. At the start of 2025, I set a goal to read 25 books—som...
03/06/2025

Just 30 Minutes, Momma

I just finished my first book of the year. At the start of 2025, I set a goal to read 25 books—something I thought would be so easy because books have always been one of my most favorite things in the world.

Before Addi was even born, she already had a hefty, little library growing. We couldn’t wait to read to her every night, to build that bedtime routine filled with stories and snuggles. And when she was in the NICU, that’s exactly what we did. Every single day, we read to her. It was our thing, our way of wrapping her in love through words, even when our arms couldn’t always hold her.

Bless Addi's Daddy, he made sure she had a constant rotation of books so we could read as many as possible with her. Every time we finished a few, he’d bring in new ones, making sure she heard different stories, different voices, different pieces of the world we dreamed of showing her one day. He took care of her, of me, of us—and he still does.

But after losing Addi, reading—this thing I had loved my entire life—suddenly felt impossible.

Allowing myself any kind of joy has felt impossible. Whether it’s laughing, reading, or feeling even a moment of happiness, I’ve felt overwhelming guilt. Every time I caught myself smiling or getting lost in something that made me happy, there was this nagging voice in the back of my mind saying, "How can you feel joy when she's gone?"

The things that once brought me peace and comfort—like curling up with a good book—became painful reminders of the version of myself that existed before. And that person? She feels so far away now.

But one day, I decided to try.

I told myself, "Just 30 minutes. That’s all. You deserve that." I wasn’t committing to finishing a book or making a reading list or forcing myself into something I wasn’t ready for. I was simply giving myself 30 minutes to escape, to get lost in another world, to let my mind focus on something other than grief.

So, I started. And then I kept going.

Now, I’m on my second book.

I have no idea if grief, depression, and guilt will creep back in and stall my progress again—because let’s be honest, grief isn’t linear, and healing isn’t either. But for right now, I’m taking my 30 minutes. I’m allowing myself this small pocket of time to find something that feels good again.

And I don’t know, momma… maybe you’re deep in the NICU trenches, barely holding on, and you just need 30 minutes outside in the sun. Maybe you’re a loss mom, and the weight of grief feels unbearable—but maybe just 30 minutes of something, anything, can help you keep going.

When I was in the NICU with Addi, I remember one of her RTs asking me if I ever saw sunlight lol. I made it a point to. Even if it was just for a few minutes outside during lunch or stepping out at night when the hospital hallways were quiet and still. Those small moments mattered. They reminded me that there was a world outside those hospital walls, even when my heart felt trapped inside them.

If you’re a NICU mom, I promise you—you are already doing everything you possibly can for your baby. Giving yourself a little time to breathe doesn’t make you any less of a warrior for them. If anything, it helps you be at your best when they need you most.

And if you’re a loss mom, I know how dark this place can feel. I know how impossible it seems to think about joy or hope or even just existing in a world without your baby. Maybe right now, it feels like there’s nothing that could possibly bring you peace. And I get that, I really do.

But maybe, just maybe, you can try 30 minutes.

Not to heal. Not to move on. Just to exist in a way that feels a little less painful, even if just for a moment.

And maybe, just maybe, it’s a start. 💜

We’re starting the process of creating Mother’s Day and Father’s Day kits for NICU parents, and we need your help!If you...
01/31/2025

We’re starting the process of creating Mother’s Day and Father’s Day kits for NICU parents, and we need your help!

If you’ve been a NICU parent, you know how hard those days can be—wondering if you’ll bring your baby home, juggling emotions, and feeling like the outside world doesn’t quite understand.

We want to include words of encouragement, advice, and stories from former NICU parents in our kits to remind moms and dads that they are not alone.

If you’d like to share your experience or a message of support, please send us a message or email us at [email protected]. Let’s make this year extra special for NICU parents. đź©·

When you hear “high-risk pregnancy,” it’s easy to focus on the fear, the unknowns, and the endless worries that come wit...
01/29/2025

When you hear “high-risk pregnancy,” it’s easy to focus on the fear, the unknowns, and the endless worries that come with it. And honestly, those are very real. We’ve been there. We’ve lived it.

But today, we want to shine a light on something beautiful—those unexpected joys that can come even in the hardest moments.

In a “normal” pregnancy, most families get to see their little one on an ultrasound just a couple of times. But in a high-risk pregnancy, ultrasounds become a regular part of life—sometimes every two weeks, and sometimes, like with Taylor & Brad's experience, twice a week.

For us, those ultrasounds became a lifeline. Each one was a moment we got to spend with Addi Rae, seeing her grow, move, and show off her spunky little personality. She’d kick the ultrasound probe like she was telling the sonographer, “Okay, I’m done now!” She kept us laughing and smiling even when things felt heavy.

Now, we have a treasure trove of ultrasound pictures of our girl—so many that we could make a flipbook of her journey. Even though we didn’t get to keep her with us forever, these pictures and memories are priceless reminders of who she was and how fiercely she lived, even in the womb.

High-risk pregnancy isn’t easy. It’s full of challenges and heartbreaks. But in the midst of it all, there are moments of joy—tiny windows into the life growing inside you that you’ll hold onto forever.

To all the moms and families navigating this journey, we see you. We know it’s hard. But we hope you find your own little moments of light, just like we did with Addi Rae. ❤️

🌟 Call for Submissions: Poems & Stories for NICU Families 🌟We are looking for original poems, stories, and heartfelt sub...
01/26/2025

🌟 Call for Submissions: Poems & Stories for NICU Families 🌟
We are looking for original poems, stories, and heartfelt submissions for a special poetry chapbook dedicated to families with little ones in the NICU.
Share the moments that shaped your journey—the hard, the good, the raw, the funny, and the real. Together, we’ll create a collection to bring comfort and hope to those going through this experience.
Submissions may be edited for flow/clarity or used as inspiration for a custom poem by Emily Daniel, author of They Reached for You and Into the Night.
✨ Submission Details:
đź“… Deadline: February 8th
đź“© How to Submit: Message on Instagram or email [email protected]
📌 Include: Your full name and “For [child’s name]” if you’d like it included.
We will notify of accepted submissions in mid-February. The chapbook will be available on Amazon in April, with copies gifted to NICU families through Addi’s Angels ❤️

🎉 Want to share your journey on social media?
We’d love to feature your submissions to raise awareness for high-risk pregnancies and NICU journeys! Please cc [email protected] in your submission email or tag on Instagram so we can help amplify your story.
Let’s come together to support NICU families and create something truly special! 💜

Address

Milton, FL
32570

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