08/07/2026
Our first official recipient…
💜Harlow💜
Miss Harlow is a very special 6 year old from Orion. Shortly after birth, she was diagnosed with an extremely rare genetic disorder known as MPS-1. There is no cure, however because it was caught early on, she began the necessary treatment at the University of Iowa Stead Family Children’s Hospital that would help save her life.
She and her family make the trip WEEKLY for her to receive enzyme replacement therapy. At this time, she has received over 300 infusions. You can do the math on that one…mileage, time off work, time away from family, it adds up quick.
We couldn’t be more thankful to her parents for allowing us to share a photo of their beautiful girl and let us tell a little bit of her story. Being able to help this sweet family leaves us with a sense of pride knowing that Lainey’s story will continue on with our work and our mission. 💜