Addison Lynn, the inspiration behind CUREative Designs, is my 9yo daughter who was diagnosed with an immune deficiency in 2020. The same day her sister came home from the hospital after being born we learned she also has a genetic mutation which causes HLH (Hemophagocytic lymphohistiocytosis). In June 2020, Addison had a stem cell transplant with her 9 mo baby sister Brooke being her donor. Our fa
mily of 5 was in isolation in February of 2020 and during this time, our custom creations journey began. Addy and I have been selling crafts and in part have been donating funds for HLH research at Dana Farber and Immunology research at Boston Children's Hospital. Addison's Mom Jessie has been an educator in the Boston area for 14+ years with experience teaching special and general education. Jessie has a true passion for supporting the youngest learners in the area of reading and writing. Addison's and my fundraising success' have been featured in the news multiple times being shared by; WCVB Channel 5 Boston, 7News - WHDH Boston, Cricut - The Official Page!, Boston Celtics and multiple others! To date we have raised upwards of $50,000 and our hope is to continue raising more! https://www.wcvb.com/.../5-for-good-middleton.../32420607
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