WWOX Foundation of America

03/01/2026

🌍💜 Today we stand with the 300 million people living with a rare disease. We are united with their families, friends, caregivers, advocates, and the medical professionals, researchers and organisations that working tirelessly to build a more equitable future for our community.

Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.

Thank you to everyone who’s taken part, whether you’ve lit up your home, shared your story, joined an event, or supported someone you love. By standing together we’re proving that our community is strong, united, and truly more than anyone can imagine. ✨

👉 Learn more and discover ways you can still get involved: https://go.rarediseaseday.org/NEWS

02/16/2026

Today is International WWOX Awareness Day 🧡

12/01/2025

🚨 Dec 1-7 is Infantile Spasms Awareness Week! Infantile spasms are a medical emergency that can cause lasting brain damage if not treated fast. Know the signs! Learn more at infantilespasms.org

11/03/2025

November is National Epilepsy Awareness Month 💜

Epilepsy is one of the first diagnoses that patients with a WWOX-gene-related disease are given, and one of the symptoms they will likely live with for the rest of their lives.

We are joining the Epilepsy Foundation of America in its efforts to support the epilepsy community and increase awareness and safety for those living with it.

Join us this month by sharing epilepsy facts and resources to keep our community safe.

09/27/2025

⚠️ IMPORTANT ANNOUNCEMENT:
The WWOX Foundation of America is proud to announce funding for a new research project led by Dr. Xiaolong Jiang at Baylor College of Medicine

"Our goal is to translate fundamental discoveries about the brain into tangible therapies that can make a real difference for these children", Jiang said. "By targeting the specific mechanisms that cause seizures in WWOX deficiency, we hope to identify a path toward a truly effective treatment. We are incredibly grateful to the WWOX Foundation and its community of supporters for making this vital work possible".

This project represents a significant step forward in the search for a cure, offering new hope to families affected by this rare disease.

Thank you to all our donors and supporters for helping us advance this important research.

07/27/2025

Today marks the 35th anniversary of the Americans with Disabilities Act. Signed into law in 1990 by President George HW Bush, this act has been fundamental in providing protections to all Americans with disabilities!

07/17/2025

We are very glad to share that we’ve earned our Gold Seal of Transparency with Candid

Get updates on our impact through our here:

https://app.candid.org/profile/15117348/wwox-foundation-of-america/?pkId=2dd66cde-13d9-4b76-86f1-20805521fc14&isActive=true

05/11/2025

Happy Mother's Day to all our WWOX moms! We appreciate everything that you do!

03/24/2025

Our annual impact report has been published!
Read it here:

https://www.wwox.org/impactreports

In 2024, we made great strides as a Global Foundation. From groundbreaking research to growing and supporting new families, see how we are making a difference for those affected by WWOX-related disorders in our 2024 impact report.

https://www.wwox.org/impactreports

02/22/2025

Happy National Caregiver's Day! To all our WWOX caregivers you are amazing and so very much appreciated!

02/13/2025

February is Rare Disease Month and WWOX Awareness month. 🩵🧡

WWOX is a gene located on chromosome 16. 🧬

Mutations of this gene are rare and cause a deficiency of an essential protein called oxidoreductase (enzyme).

This deficiency is the cause of WWOX related diseases when present in both genes (autosomal recessive)