PMP Pals Appendix Cancer Network

PMP Pals Appendix Cancer Network Living with a rare disease like appendix cancer/pseudomyxoma peritonei (PMP) can be isolating and lonely. But you are not alone -- We Have HOPE for YOU. Join us.

PMP Pals is the world’s oldest global volunteer-run organization that gives hope to patients and caregivers living beyond appendix cancer and its related peritoneal conditions like pseudomyxoma peritonei (PMP). PMP Pals offers programs and services that connect patient, caregiver, and medical communities. HOPE Zoom online meetings connect Pals who support each other and build the emotional resilie

nce needed to meet the challenges of this rare disease. We provide educational resources, connections to appendix cancer specialists and medical professionals, and perspective on what it's like to live beyond an appendix cancer diagnosis.

Join us for HOPE ZOOM roundtable support group calls.Wednesdays at 3pm PT / 6pm ETSaturdays at 8am PT / 11am ETRegister ...
06/01/2026

Join us for HOPE ZOOM roundtable support group calls.

Wednesdays at 3pm PT / 6pm ET
Saturdays at 8am PT / 11am ET

Register from PMPPals.net

05/30/2026

🌟 My Journey Through Appendix Cancer and My Tips to Others: True strength isn't just about enduring the storm; it’s about advocating for yourself and helping others navigate the way through! Survivor Tim Morgan opens up about his sudden diagnosis of rare appendix cancer, the grueling reality of treatment, and the fierce battle to reclaim his life. 🎗️💪 From leaning on his wife's invaluable support at Dana-Farber to literally walking 10k+ steps a day post-op, Tim’s journey is a masterclass in resilience and the life-saving power of self-advocacy. His ultimate advice to fellow warriors? Never suffer in silence—if something feels wrong, speak up, make sure your voice is heard, and never stop fighting.

🩺❤️ Like, Share, Comment, and Click the link to read Tim's full story and discover his vital tips for facing a rare diagnosis: https://www.abdominalcancers.org/post/my-journey-through-appendix-cancer-and-my-tips-to-others

We are on HOPE ZOOM break for Memorial DayNo Hope Zoom this Saturday, May 23rdWe will be back Wednesday, May 27thThere's...
05/22/2026

We are on HOPE ZOOM break for Memorial Day

No Hope Zoom this Saturday, May 23rd

We will be back Wednesday, May 27th

There's always a Pal available to talk to, so feel welcome to reach out!

Join us for HOPE ZOOM roundtable support group calls.Wednesdays at 3pm PT / 6pm ETSaturdays at 8am PT / 11am ETRegister ...
05/18/2026

Join us for HOPE ZOOM roundtable support group calls.

Wednesdays at 3pm PT / 6pm ET
Saturdays at 8am PT / 11am ET

Register from PMPPals.net

Hosted by our volunteers that generously give time to these special, twice-weekly calls. The calls last about 1.5 to 2 hours. We go around the "squares" and check in with each person that wants to contribute. Some people just listen. That's ok! You can contribute in any way that you'd like. You can keep your cam and mic off and just listen, use the chat, or talk.

There is no such thing as joining late, or leaving early. It is drop in style.

There is no such thing as a dumb question.

05/16/2026

Spotlight! We are highlighting voices of resilience like Lindsay Barad, the heart behind ! 🌸 Lindsay’s journey with LAMN (Low-grade Appendiceal Mucinous Neoplasm) is a powerful testament to the importance of self-advocacy and listening to your body. By sharing her story with such transparency, she empowers women everywhere to prioritize their health, ask the tough questions, and find a community even in the most unexpected circumstances.

🎗️ Let’s use this week to celebrate the strength of women like Lindsay and remind ourselves that being our own best health advocate is the ultimate act of self-love. 🧡✨

🌸See Lindsay's video from the We Are Living Proof Event:
https://www.instagram.com/reel/DX0h89YtzYc/?utm_source=ig_web_copy_link&igsh=NTc4MTIwNjQ2YQ%3D%3D

🧡Shout Out to PMP Pals where Lindsay volunteers, check them out: https://www.facebook.com/pmppalsnetwork

Lindsay's Instagram: https://www.instagram.com/whenlifegivesyoulamn/

✨Like, Share, Comment on this post, and Visit Us: abdominalcancers.org

05/11/2026

The Appendix Cancer PMP Research Foundation is honored to be one of seven patient organizations from five countries partnering to develop and launch the world’s first International Patient Manifesto for Peritoneal Malignancies.

05/07/2026

A reminder of what we’re building, together.

The first-ever global, patient- and caregiver-powered registry for appendix cancer (including PMP) was launched by ACPMP in February, and continues to grow.

✔️ IRB-approved ( ) to ensure full compliance with all human subject protections, complete data integrity, and that the data are usable for research and publishable
✔️ Data stored in a global databank for use by researchers worldwide

The ACPMP Research Foundation Appendix Cancer/PMP Patient Registry/Natural History Study ("Patient Registry") is organized by topic-driven modules to provide researchers with a 360° lens into appendix cancer:

• Personal history to help identify potential risk factors and support more rigorous surveillance
• Symptoms and diagnostic odyssey to help identify opportunities for earlier diagnosis
• ctDNA and genomic sequencing data on mutations, treatments, and outcomes to continue driving new therapies forward
• Quality of life, payer issues, and more to better understand and reduce patient and caregiver burden
• Caregiver survey data to ensure the caregiver experience is represented and understood

We’re excited to continue building this global databank with patients and caregivers.

Join us and help move research forward: https://acpmp.org/patientregistry/

Join us for HOPE ZOOM roundtable support group calls.Wednesdays at 3pm PT / 6pm ETSaturdays at 8am PT / 11am ETRegister ...
05/05/2026

Join us for HOPE ZOOM roundtable support group calls.

Wednesdays at 3pm PT / 6pm ET
Saturdays at 8am PT / 11am ET

Register from PMPPals.net

Hosted by our volunteers that generously give time to these special, twice-weekly calls. The calls last about 1.5 to 2 hours. We go around the "squares" and check in with each person that wants to contribute. Some people just listen. That's ok! You can contribute in any way that you'd like. You can keep your cam and mic off and just listen, use the chat, or talk.

There is no such thing as joining late, or leaving early. It is drop in style.

There is no such thing as a dumb question.

Address

P. O. Box 166
Manchaca, TX
78652

Telephone

+14089097257

Website

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