Jaxson's Journey

Jaxson's Journey Jaxson was born in 2015 with Cystic Fibrosis. This is his journey to defy the odds.

🏒Parity Tournament Day🏒Today our team went to a parity tournament here in Maine and played 3 short games. We competed, l...
08/29/2026

🏒Parity Tournament Day🏒
Today our team went to a parity tournament here in Maine and played 3 short games. We competed, learned, and get some work in as a team.
First photo: locked in and focused before taking the ice. 🎯
Second photo: back in the crease and ready for the faceoff. 🥅
Third photo: refuel
Every game is another opportunity to learn, improve, and grow as a player and a teammate.
Tired legs, lots of hockey, and another day doing what I love. 💙🏒
One game. One save. One shift at a time.

🏒📸 My paparazzi aka Mom was a little distracted last night! 😂I had double duty with summer hockey, but apparently Mom di...
08/19/2026

🏒📸 My paparazzi aka Mom was a little distracted last night! 😂

I had double duty with summer hockey, but apparently Mom didn't get the memo to take more pictures. 🤦‍♂️

She'll be at the youth hockey board meeting tonight while I'm at practice, so the paparazzi will be missing from the rink again! 😂

But don't worry... the work is still getting put in.
💪🏒
Less pictures, more hockey! 😉

💊 A Day of CreonOne of the things people don't always see when they see me out and about or playing sports is what happe...
08/17/2026

💊 A Day of Creon

One of the things people don't always see when they see me out and about or playing sports is what happens behind the scenes.

This is my Creon for just ONE day.

Because of the thick mucus that can build up in my pancreas, my body doesn't make enough digestive enzymes to properly digest food. I need pancreatic enzymes to help my body digest and absorb the nutrients it needs.

It might look like a lot of pills, but for me, it's just part of everyday life. 💙

Treatments. Medications. Nutrition. Exercise.

It's all part of my journey. 🏒💙

🌊☀️ Summer fun at Aquaboggan!Today was all about hanging out with cousins and friends and making some awesome summer mem...
08/16/2026

🌊☀️ Summer fun at Aquaboggan!
Today was all about hanging out with cousins and friends and making some awesome summer memories! We spent the day racing go-karts, battling it out on the bumper boats, flying down the water slides, and having way too much fun. 😎🏎️💦

Sunshine and laughs. Definitely a day worth remembering. 💙

🥾🏒 Team bonding looked a little different today! 🌲🌤This morning, our team traded the rink for the trails and hiked Mount...
08/15/2026

🥾🏒 Team bonding looked a little different today! 🌲🌤

This morning, our team traded the rink for the trails and hiked Mount Borestone together. Every step reminded us that success isn't just built during practices and games. It's built through teamwork, encouraging each other, and pushing through challenges together.

Here's to building friendships, making memories, and getting ready for the season ahead. 💙

🎡 Summer nights done right!We hit up the New Balance tent sale for some new kicks for school. Then found ourselves at th...
08/15/2026

🎡 Summer nights done right!

We hit up the New Balance tent sale for some new kicks for school. Then found ourselves at the Skowhegan State Fair and ended the night with one of my favorite events... the demolition derby! 💥First time I have seen a car launched over the barrier!

What is your favorite part of the fair?

🦷Today my mom and I had dentist appointments. After we went on a little date for pizza and bowling. 🎳Fun fact: My mom us...
08/13/2026

🦷Today my mom and I had dentist appointments. After we went on a little date for pizza and bowling. 🎳

Fun fact: My mom used to be a junior bowler back in the '90s, and after beating me in both candlepin and 10-pin. I'd say all those years of practice paid off, even though she was a little rusty! 😂

You win some, you learn some... and you always make memories along the way. 💙🎳

A good hockey player isn't just built at the rink.Helping out at home, learning responsibility, and putting in the work ...
08/13/2026

A good hockey player isn't just built at the rink.
Helping out at home, learning responsibility, and putting in the work are all part of the journey too.

Tonight's game plan: ✅ Mow the lawn ✅ Head to practice ✅ Keep chasing my goals

One job at a time. One shift at a time. 💙🏒

🏒🏁This morning I worked on building confidence and learning safe body contact at a checking clinic with Tanya Quigley, A...
08/08/2026

🏒🏁This morning I worked on building confidence and learning safe body contact at a checking clinic with Tanya Quigley, Alex Berard, and Steven Rouillard. Every opportunity to learn helps me become a better hockey player.

This afternoon, I spent time with family at the Ricky Craven Speedway. It was the perfect way to end the day!

Work hard. Have fun. Make memories. 💙

I opened my fortune cookie, and this one made me smile. 💙'Your life will be a symphony of inspiration and positivity.'If...
08/07/2026

I opened my fortune cookie, and this one made me smile. 💙
'Your life will be a symphony of inspiration and positivity.'
If sharing my journey with cystic fibrosis and hockey inspires even one person to keep chasing their dreams, then I'd say I'm on the right track. 🏒

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Maine, ME

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