The Endometriosis Equity Initiative

The Endometriosis Equity Initiative Closing the gap in Endometriosis Care.

📚Education• 📣Advocacy•🤝Community

✨Turning lived experiences into access to care✨

10/19/2026

Today, I accomplished something BIG! I am literally shaking with excitement and pride.

But here's the thing about Endometriosis: it doesn't care whether the emotions are good or bad. I was already in a flare, and the sheer excitement of today's accomplishment magnified it. Endo responds to the slightest shift, even joy.

Right now, I can feel the pain deep in the bones of my pelvis.

THE AUDACITY!

It is incredibly unfair that even my happiest moments can come with this level of agony. But my pain does not get to erase what happened today.

I AM A FOUNDER. I AM A BRAND OWNER. AND I AM THE BADDEST BITCH! 💛🖤

I DID THAT. I CREATED THAT. THAT'S MINE. See le

10/18/2026

HAPPY SUNDAY ENDO FAMILY

10/16/2026

What happens when you do everything your doctor asks, but the help you desperately need remains out of reach?

You follow the instructions. You show up for the appointments. You pay the fees. You advocate for yourself.

And somehow, you still leave without relief.

In our newest blog article, “So Close to Help, Yet So Far Away,” EEI's founder shares a deeply personal experience navigating pain management after decades of living with endometriosis.

This isn't simply a story about chronic pain. It's about healthcare accessibility, the exhaustion of constantly having to advocate for yourself, and what happens when patients feel they must silence their frustration to protect their access to care.

One of the hardest parts of living with chronic illness isn't always the pain itself. Sometimes, it's the fight to get someone to help you manage it.
We invite you to read, reflect, and join the conversation.

💛 Have you ever left a medical appointment feeling unheard, dismissed, or further away from the help you needed?

Your experience matters. Your voice matters.

🔗 Read the full article: {https://www.endoequity.com/.../so-close-to-help-yet-so...]

Endometriosis is a whole-body disease.But I would take it one step further:Endometriosis is a whole-life disease.Because...
10/07/2026

Endometriosis is a whole-body disease.
But I would take it one step further:
Endometriosis is a whole-life disease.

Because it doesn't only affect our bodies. It can touch our careers, relationships, finances, education, intimacy, motherhood, friendships, mental well-being, independence, and the way we imagine our futures.
The disease may live in the body.

But its consequences can live everywhere.

Endometriosis has cost me things that have never appeared on a medical chart.Strained friendships.Living in a constant s...
10/06/2026

Endometriosis has cost me things that have never appeared on a medical chart.

Strained friendships.
Living in a constant state of unpredictability.
Having to calculate what my body can afford before I make plans.

There are so many costs associated with this disease that have absolutely nothing to do with a copay.

This is part of my receipt.

What would be on yours?

Add one item in the comments. 💛

No explanation required.

Not just pain.Work. Relationships. Money. Sleep. Plans. Identity. Intimacy. Parenthood. Mental health. The way you move ...
10/06/2026

Not just pain.

Work.
Relationships.
Money.
Sleep.
Plans.
Identity.
Intimacy.
Parenthood.
Mental health.
The way you move through the world.

I want to hear the parts of endometriosis that don't always make it into the brochures.

Tell me yours. 💛

Middle Georgia, I want to hear from you. 💛Endometriosis Equity Initiative is based right here in Macon, and one of our g...
10/04/2026

Middle Georgia, I want to hear from you. 💛

Endometriosis Equity Initiative is based right here in Macon, and one of our goals is to build a stronger endometriosis community across Middle Georgia.

But I don't want to assume I know what our community needs. I want to ask.

If you live in Macon or anywhere in Middle Georgia and you have endometriosis, suspect you may have it, or love someone who does:

What is something you wish you had access to locally?

A knowledgeable doctor?

A support group?

Better information?

Help navigating care?

A space to meet other people who understand?

Something completely different?

Tell me in the comments. Even if you've never interacted with this page before, your voice is welcome here.

We're not trying to build for this community without first listening to this community.

💛 EEI is in Middle Georgia. And we're listening.

10/02/2026

The Endometriosis Equity Initiative website is officially live. 💛

We created a space for education, resources, advocacy, and conversations about the realities of living with endometriosis—especially the experiences too often overlooked in healthcare.

Come see what we’re building.

🌐 endoequity.com

Endometriosis Equity Initiative

Closing the gap in women’s health.

09/30/2026

Today, I give something to the world that was born from some of the most painful parts of my life.

And there could not be a more meaningful day to do it.
Thirteen years ago today, I lost my mother, Augusta.

My mother knew painful periods.
My aunt knew them.
My sister knew them.
And then there was me.

I come from women who endured the kind of pain women have been taught for generations to normalize, minimize, push through, and too often suffer in silence.

Today, I honor them.

I honor every person whose life has been altered by endometriosis.

I honor what this disease has taken from us, our time, our plans, our relationships, our careers, our finances, our fertility, our sense of safety in our own bodies, and sometimes pieces of ourselves we are still trying to find again.

I honor the caregivers who have been in the trenches beside us. The ones holding heating pads, sitting in emergency rooms, making phone calls, learning the language of a disease they do not have because someone they love does.

And today, I want to be a lighthouse for the person still in the storm.

For the person searching the internet at 2 a.m. trying to understand what is happening to their body.
For the person who has been told their pain is normal.
For the person who wasn't believed.
For the person exhausted from trying to navigate a healthcare system that was supposed to help them.
For the person wondering whether anyone sees them.

We see you.

Today, I officially launch the Endometriosis Equity Initiative🎗️

EEI exists to help close the gaps in endometriosis education, access, research, resources, and care, and to make sure the people too often pushed to the margins of this disease are brought into the center of the conversation.

I dedicate this work to my granddaughters, Khloe and Abbey.
May you grow up knowing that your pain matters. May you know your bodies belong to you. May you have the language to advocate for your reproductive health and the confidence to demand answers when something isn't right.
As long as I have a voice, I will do everything in my power to make sure you never have to suffer in silence.

And finally, I dedicate this moment to me.

To the woman who survived it.

To the young woman who knew something was wrong even when she wasn't believed.

To the woman whose body has carried more than she ever imagined it would have to carry.

And to the woman I am today, who found the courage to take one of the most vulnerable parts of her life and place it before the world in hopes that someone else's journey might be different.

I am living proof that survival is possible.
And I am determined to show that thriving is possible, too.

On September 30, a date that has represented profound loss in my life for thirteen years, I am choosing to also make room for legacy.

In honor of the women I come from.
In protection of the girls coming after me.
In solidarity with everyone living this story right now.

And in memory of my mama, Augusta.

Welcome to the Endometriosis Equity Initiative.
A lighthouse in the storm🎗️

Closing the gap in women's health. 💛

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Macon, GA

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