American Syringomyelia & Chiari Alliance Project

American Syringomyelia & Chiari Alliance Project Providing research, education and support for Syringomyelia and Chiari malformation since 1988. www.ASAP.org

ASAP is the leading 501(c)(3) donor-supported organization dedicated to promoting awareness, advancing research and providing support to individuals and families affected by syringomyelia and Chiari malformation. Funding two million dollars in research, ASAP aims to improve the quality of life for those impacted by these conditions through education and support, advocacy and collaborative initiati

ves with the medical community. See our (private) main Facebook support group page: https://www.facebook.com/groups/asapcmsm

🔎 A Closer Look at Internal Jugular Vein Decompression In his presentation from our 2026 Annual Conference Virtual Sessi...
09/04/2026

🔎 A Closer Look at Internal Jugular Vein Decompression

In his presentation from our 2026 Annual Conference Virtual Sessions, Jonathan Sisti, MD, discusses a posterior surgical technique for C1 transverse process resection to decompress the internal jugular vein and address potential venous outflow obstruction and intracranial hypertension.

🎥 Watch the presentation to learn more about this evolving surgical approach and its potential role in craniocervical procedures: https://youtu.be/tom8oxfKEbo

The Mount Sinai Hospital Mount Sinai South Nassau

💜 September is Chiari Malformation Awareness Month! 🧠Chiari malformation is a complex neurological condition that can ca...
09/03/2026

💜 September is Chiari Malformation Awareness Month! 🧠

Chiari malformation is a complex neurological condition that can cause a wide range of symptoms, and because those symptoms can overlap with other conditions, getting answers isn’t always easy.

🔹 Know the symptoms.
🔹 Understand your options.
🔹 Share what you learn.

Greater awareness can lead to earlier recognition, better communication between patients and healthcare providers, and ultimately better outcomes for people living with Chiari.

Help us spread the word this September. 💜 Share this post and help raise Chiari awareness!

📣 September is National Chiari Malformation Awareness Month 💜Add a Social Media Frame to your profile picture this Septe...
09/01/2026

📣 September is National Chiari Malformation Awareness Month 💜

Add a Social Media Frame to your profile picture this September to raise awareness and encourage your friends and family to learn more about Chiari Malformation!

📸 Here's how to add your frame:
We use Twibbonize as a platform to create your frame. It’s free to use. Follow these 3 easy steps:

1️⃣ Click or copy this link: https://twb.nz/chiariawareness2026
2️⃣ Select the frame and click “Choose Photo.” – From there, you can upload your photo from your camera roll on your smartphone or a folder on your desktop.
3️⃣ Click “Download” and then download the framed picture for your social media channels. It should go into your camera roll or whichever folder you have saved it to, ready for you to upload as your new profile picture!

💬Share your photo in the comments!

Eagle Syndrome & Connective Tissue Disorders 🦅In this presentation from ASAP’s 38th Annual Conference Virtual Sessions, ...
08/31/2026

Eagle Syndrome & Connective Tissue Disorders 🦅

In this presentation from ASAP’s 38th Annual Conference Virtual Sessions, Allison Bloom, MD, explores new insights into findings from the largest verification-based study of in connective tissue disorders.

Dr. Bloom discusses emerging evidence of a distinct symptom pattern involving auditory complaints, cranial nerve symptoms, and autonomic dysfunction, as well
as the challenges of recognizing and diagnosing this condition.

▶️ Watch the full presentation on ASAP’s YouTube channel. https://www.youtube.com/watch?v=24mTyD8jl00

The Mount Sinai Hospital Mount Sinai South Nassau Icahn School of Medicine at Mount Sinai

Chiari Across the Lifespan: Is It Developmental, Progressive—or Both? 🧠Petra Klinge, MD explores pediatric and adult pre...
08/28/2026

Chiari Across the Lifespan: Is It Developmental, Progressive—or Both? 🧠

Petra Klinge, MD explores pediatric and adult presentations, including the potential roles of connective tissue disorders, CSF dynamics, aging, degenerative changes, and acquired tethering.

🎥 Watch “Chiari Malformation Across the Lifespan—Developmental Anomaly or Progressive Disorder?” now on ASAP’s YouTube channel!

Brown University Health The Warren Alpert Medical School of Brown University

💓 What is orthostatic intolerance, and how can it affect people with Chiari malformation?Orthostatic intolerance can be ...
08/27/2026

💓 What is orthostatic intolerance, and how can it affect people with Chiari malformation?

Orthostatic intolerance can be a challenging and often misunderstood issue for people with Chiari malformation. In this presentation, Safwan Jaradeh, MD, provides a practical overview of orthostatic intolerance, including POTS and orthostatic hypotension.

🎥 Watch the full presentation now on ASAP’s YouTube channel:
https://www.youtube.com/watch?v=HT2ce-k_MXE

Stanford Neurosurgery Stanford Medicine

Address

PO Box 1586
Longview, TX
75606

Telephone

+19032367079

Website

Alerts

Be the first to know and let us send you an email when American Syringomyelia & Chiari Alliance Project posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to American Syringomyelia & Chiari Alliance Project:

Shortcuts

Featured

Share

Category