02/05/2026
🦋🧡 Thank you to everyone who has participated in, as well as, shared our cause 🎗️🩸
I wanted to continue to share Emmy’s story with her supporters
After our first 24 hours back at Boston Children’s Hospital, it became clear that something was wrong. Emmy was fighting a serious lung infection. Infectious Disease was called in immediately—to identify the enemy and make sure we were giving her every possible chance.
Then came Wednesday, November 6, 2019.
Emmy’s oncologist approached me and asked if we could do another bone marrow biopsy. I was stunned. Five days earlier, we had been discharged on hospice. Five days earlier, we were told there was nothing left to do. I asked her why.
“Her blood work looks far better than it should.”
The biopsy was done.
And the results were nothing short of miraculous. 🙌🏻🙌🏻🙌🏻
Emmy was in remission. 🥹
In remission!
My girl—on her own timeline, in her own way—just needed more time. She has never followed the textbook. She has always rewritten it.
We sat with the doctors again, the weight of reality heavy in the room. If there was any chance of beating this aggressive leukemia, there was only one path forward: a bone marrow transplant. But time was now our fiercest opponent. We had to defeat the infection, heal her lungs, and move to transplant before the leukemia had a chance to return.
It was a race against the clock.
On November 15, 2019, we were discharged—this time not to hospice, but back home on IV antibiotics with home health care.
Yes. We upgraded from hospice to home health.
I remember Androscoggin Home Health and Hospice saying, “This is a good day—because this never happens.”
And for the first time in a long time, hope walked out the hospital doors with us 🧡🦋