Exceptionally Extraordinaire

Exceptionally Extraordinaire Spreading awareness through my own child’s journey with Trisomy 13

Always showing off her independence 💪🏾
04/11/2026

Always showing off her independence 💪🏾

04/11/2026
04/07/2026

Our homemade photoshoot.
Just having fun!!

Twinning with mommy today🫶🏾
04/02/2026

Twinning with mommy today🫶🏾

Each year we’re not only celebrating you turning a year older, but we also celebrate you beating the odds. Those 31 days...
03/31/2026

Each year we’re not only celebrating you turning a year older, but we also celebrate you beating the odds. Those 31 days in the NICU showed us who you are, A FIGHTER!!!
We will always believe in you and know that anything is possible.
🙏🏾 Happy 8th birthday Navi Mama

03/26/2026

Some days are defiantly challenging than others, but we get through it together 🫶🏾

03/25/2026

Today we have therapy and our check in with the pulmonologist.
Then mommy has a playdate planned for us 😁

Some concerns with today’s cardiologist appointment but we won’t break under pressure 💪🏾
03/21/2026

Some concerns with today’s cardiologist appointment but we won’t break under pressure 💪🏾

Trisomy 13 awareness 🫶🏾
03/14/2026

Trisomy 13 awareness 🫶🏾

Address

Las Vegas, NV
89121

Telephone

+17027796188

Website

Alerts

Be the first to know and let us send you an email when Exceptionally Extraordinaire posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Exceptionally Extraordinaire:

Shortcuts

Share

Category