Angelas Journey with Trisomy 13

Angelas Journey with Trisomy 13 Angela was diagnosed after she was born with Mosaic Trisomy 13, cleft lip and pallet, trachomalatia, central and obstructive apnea, and polydactyl.

Angela was diagnosed after she was born with Mosaic Trisomy 13 (Patu Syndrome). It is a rare genetic disorder said to be incompatible with life. she is defying the odds already by being a fighter. She is currently in the hospital on the ventilator after her surgery for the g-tube and trach. she is on minimal settings right now which is good but she is loosing weight and not gaining it.She has cent

ral Apnea where her brain does not tell her lungs to breathe and another kind as well where her lungs dont open up properly. Please keep her and her family in your prayers. I would like this page to also raise awareness of this Chromosome condition because many people do not know much about it. More information can be found at this website on Trisomy http://trisomy.org/ . Angela has already defied the odds by being born alone because alot of babies with Trisomy in general are still born, miscarried, don't live past a day, and don't live past a month! She is now almost two years old.. we have made it past the 6 month !marker wich is amazing because i was told that she wouldnt after her surgury for the ventilator. :)
Moms and family members if you have a child that was born with Trisomy please don't hesitate to contact me and i will give you links to more support groups. Thank you all for your support and prayers! :)

02/20/2026
With TinySuperheroes – I'm on a streak! I've been a top fan for 3 months in a row. 🎉
02/20/2026

With TinySuperheroes – I'm on a streak! I've been a top fan for 3 months in a row. 🎉

11/29/2025

Happy Thanksgiving, Triumph Family! We're so grateful for your friendship and the incredible community we share.

All year long, we're blessed by the generosity of people like you - and recently, Triumph received the gift of a driver-ready adapted van.

In the spirit of gratitude and giving, we want to pass this blessing on to someone in our spinal cord injury community.

We’re thrilled to announce the launch of our Adapted Van Giveaway Contest!

If having an a ramp van would transform your life - helping you drive to work or school, care for your family, make appointments, or get out into the community - we want you to apply.

One applicant will be selected to receive this life-changing vehicle. ✨

Visit our website for full qualifications, details, and the application: https://triumph-foundation.org/tf-event/van-giveaway-2025/

10/02/2025

This morning, waiting to go back for the procedure. 🥰

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