APS Foundation of America, Inc.

APS Foundation of America, Inc. Founded in 2005, APS Foundation of America, Inc. We are a volunteer-run, community-based 501(c)3 non-profit Public Charity organization. Thank you.

The APSFA is bringing awareness to Antiphospholipid Syndrome (APS), a rare autoimmune clotting disorder that causes young strokes, multiple miscarriages, stillbirths, thrombosis & heart attacks, and much more. (APSFA) is the only United States nonprofit health agency dedicated to bringing national awareness to Antiphospholipid Syndrome (APS), the primary cause of multiple miscarriages, thrombosis,

young strokes, and heart attacks. We are dedicated to fostering and facilitating joint efforts in education, support, public awareness, research, and patient services. The APSFA’s Medical Advisory Team includes nationally & internationally recognized experts on Antiphospholipid Syndrome.

*Disclaimers*
The Founders, Administrator (s), Assistant(s), Helper(s), Greeter(s) & Staff of this forum are not medical doctors. This forum's Founders, Administrator(s), Assistant(s), Helpers, Greeters & Staff are not medical doctors. APS Foundation of America is not intended to replace standard doctor-patient visits, physical examination, and medical testing. Information given to members is only an opinion. All information should be confirmed with your personal doctor. Always seek a trained physician's advice before seeking any new treatment regarding your medical diagnosis or condition. Any information received from the APS Foundation of America is not intended to diagnose, treat, or cure. This site is for informational purposes only. Additionally, while APS Foundation of America, Inc. frequently updates its content, medical information changes rapidly; therefore, some information may be outdated when you read it.

**If you think you may have a medical emergency, call your doctor or 911 immediately.**

If you use this page, we want you to know that you are solely responsible for your communications, the consequences of posting those communications, and your reliance on any communications found in those areas. APS Foundation of America, Inc., and its licensors are not responsible for the consequences of any communications in the forum, chat room or page. If you give your personal information to a host or other member and later threaten to hurt yourself or others, we reserve the right to contact appropriate authorities; however, no guarantee is made that someone will contact emergency personnel for you. We are not equipped to handle these types of crisis situations. You should contact your local law enforcement agency right away. Members agree to accept personal liability for any medical advice they provide to another member. Furthermore, anyone who accepts and applies medical advice from another member agrees that they are doing so at their own risk and will hold APSFA, its affiliates, employees, and volunteers harmless.

**All posts are moderated 24/7 and are subject to deletion for any reason.**

Medical journal articles do not constitute medical advice. Please share these with your medical care team. Page rules can be found here:http://apsfa.org/new/wp-content/uploads/2022/01/APSFA-Rules.pdf

We are a volunteer-run, community-based 501(c)3 non-profit Public Charity organization. The person who does the majority of the work has multiple autoimmune disorders is on biologics, chemotherapy, and multiple drugs to try to control them and also needs her rest. The rest of the board is just as sick. To be upset we are not available 24/7, 365 when our whole board has this disease and other autoimmunes as well is quite disappointing. We are doing our best as volunteers.

Pain Relievers & Blood Thinners: APS Awareness Day 23When you’re on blood thinners, it's super important to pay close at...
06/23/2026

Pain Relievers & Blood Thinners: APS Awareness Day 23

When you’re on blood thinners, it's super important to pay close attention to the pain relievers you choose.

Certain over-the-counter options, like ibuprofen and aspirin, can increase your chances of bleeding or mess with how your blood thinner works. It’s all about keeping you safe while managing pain effectively.

Always check in with your healthcare provider or care team before trying any new medication. They know your medical history and can recommend the best options for you.

Communication is key, and don’t hesitate to ask questions or express concerns. Your health and safety are the top priorities! So, keep that dialogue open, and let’s keep you feeling your best while staying on track with your treatment.

Remember, teamwork makes the dream work!

Direct Oral Anticoagulants: DOACs: APS Awareness Month - Day 23It's crucial to stay informed about new anticoagulants, e...
06/23/2026

Direct Oral Anticoagulants: DOACs: APS Awareness Month - Day 23

It's crucial to stay informed about new anticoagulants, especially since they hold potential for many, but as you mentioned, they are currently not approved specifically for patients with Syndrome ( ). While the initial studies hint at the promise of these medications, they also raise significant concerns, particularly regarding the risk of clotting in APS patients. Research is ongoing, and we must keep an eye on upcoming results as they can shape future treatment options.

In the meantime, we highly encourage you to dive into the articles shared in our feed by our reputable medical advisors. They provide valuable insights and analyses from recent medical journals that can help you make well-informed decisions. Hearing from other patients can also offer personal perspectives that might resonate with your own experiences. Your health choices should always be based on comprehensive information, so let’s stay connected and informed as this topic evolves!

Multiple medical journal citations available

INR Tracker: APS Awareness - Day 23 INR Diary helps you follow up on your program. Insert the daily dose of your for...
06/23/2026

INR Tracker: APS Awareness - Day 23

INR Diary helps you follow up on your program. Insert the daily dose of your for a specific time. You can add one dose at a time or multiple doses in bulk, depending on your dosing scheme.

Doses can be expressed as an amount of pills or in milligrams. The app will remind you to take your daily dose at a time you can configure.

Tap on your daily dose to confirm you've taken the blood thinner medication. The confirmation timestamp is stored in the app. That way, you'll never forget if and at what time you've taken your medication.

The app can also record your and chart its evolution over time. The app also reminds you when a new INR is planned.

Dose and INR data can be exported or imported for backup purposes or to discuss with your medical team.

Available on Android and iOS. *Not a sponsored post*

Addressing Stress: APS Awareness - Day 22 is something we all grapple with at some point, and while a little can drive ...
06/22/2026

Addressing Stress: APS Awareness - Day 22

is something we all grapple with at some point, and while a little can drive us to achieve our goals, excessive stress can take a serious toll on both our mental and physical well-being. It’s vital to find effective methods to manage stress before it spirals out of control.

So, how do you cope with everyday stress as well as the unique challenges posed by ? For many, positive outlets like physical activity, mindfulness practices, or creative hobbies can be incredibly helpful. Others turn to support networks—like friends, family, or support groups—where they can share experiences and advice.

Remember, it’s okay to seek professional help if needed. What strategies have you found effective in managing stress? Let’s share our tips and support one another as we navigate this journey together!

Fatigue: APS Awareness -Day 22: is a challenging symptom experienced by many living with Antiphospholipid Syndrome ( )...
06/22/2026

Fatigue: APS Awareness -Day 22:

is a challenging symptom experienced by many living with Antiphospholipid Syndrome ( ), and it can be debilitating, making even simple tasks feel monumental. It's important to recognize that you're not alone in this struggle. Our graphic today sheds light on this prevalent issue and highlights some practical strategies to manage fatigue.

Here are a few tips you might find helpful: prioritize sleep, maintain a balanced diet, and schedule regular breaks throughout your day. Gentle exercises like walking or stretching can also boost energy levels. We want to hear from you! What are your go-to methods for handling fatigue?

Sharing your experiences can inspire others and foster a sense of community. Let’s support one another in navigating these challenges together. Drop your tips or stories in the comments below!

Remember, every small step counts towards reclaiming your energy and well-being.

Bruises: APS Awareness - Day 21Bruising is a common side effect of taking blood thinners like , , or (e.g., apixaban...
06/21/2026

Bruises: APS Awareness - Day 21

Bruising is a common side effect of taking blood thinners like , , or (e.g., apixaban, rivaroxaban). Since these medications reduce your blood’s ability to clot, even a small bump can cause a noticeable bruise.

What’s Normal:
-Small bruises from minor bumps or unknown causes.
- on arms, legs, or where you’ve had a blood draw or injection.
-Color changes (blue → purple → green → yellow) over several days.

When to Be Concerned:
Seek medical help if you have:
-Unusually large or painful bruises
-Bruises you can’t explain (especially if they appear without injury)
-Bruising with swelling or a lump
-Bruises on your face, head, or abdomen (possible internal bleeding)
-New or worsening bruising after a dose change
-Signs of other bleeding (nosebleeds, blood in urine/stool)

Recurrent Acute Limb Ischemia and Direct Oral Anticoagulant ( ) Failure: A Case of Suspected Syndrome ( ) Triggered by...
06/21/2026

Recurrent Acute Limb Ischemia and Direct Oral Anticoagulant ( ) Failure: A Case of Suspected Syndrome ( ) Triggered by Mechanical Compression

This case illustrates that rapid, recurrent arterial thrombosis during direct oral anticoagulant therapy should prompt a broad evaluation, including systemic hypercoagulable states, vasculitis or other inflammatory arteriopathies, embolic sources, malignancy, and progression of atherosclerotic disease, particularly in relatively young patients with arterial events. In patients with confirmed antiphospholipid syndrome, randomized controlled trials have shown increased arterial thrombotic events with direct oral anticoagulants compared with , supporting current guideline recommendations against their use in this population. In the present case, antiphospholipid syndrome remained suspected but unconfirmed; therefore, recurrent thrombosis should be interpreted as a trigger for broader diagnostic evaluation rather than definitive antiphospholipid syndrome-related direct oral anticoagulant failure.

Read more: https://www.cureus.com/articles/479578-recurrent-acute-limb-ischemia-and-direct-oral-anticoagulant-failure-a-case-of-suspected-antiphospholipid-syndrome-triggered-by-mechanical-compression #!/

Bleeding Risks & Blood Thinners: APS Awareness Day 21Blood thinners (also called ) are medicines that prevent blood clo...
06/21/2026

Bleeding Risks & Blood Thinners: APS Awareness Day 21

Blood thinners (also called ) are medicines that prevent blood clots. They're often used in conditions like Syndrome ( ) to reduce the risk of strokes, deep vein thrombosis ( ), and other clot-related issues.

Blood thinners save lives by preventing dangerous clots — but they must be taken carefully to avoid serious bleeding. Knowing the risks helps you stay safe and prepared.

‘Nope, You’re Fine’: This Black Doctor Nearly Died After Giving Birth in RenoA Black physician trusted her instincts whe...
06/21/2026

‘Nope, You’re Fine’: This Black Doctor Nearly Died After Giving Birth in Reno

A Black physician trusted her instincts when hospital staff would not. That decision saved her life.

The following first-person account is from Dr. Bayo Curry-Winchell, a Black family physician and the medical director for Saint Mary’s Urgent Care Group in Reno, Nevada. Curry-Winchell nearly died after giving birth by C-section at her own hospital after repeated warnings that something was seriously wrong were dismissed. Her story—shared with writer Bonnie Fuller—underscores the stark realities of America’s crisis, which disproportionately endangers Black women regardless of education or income.

I was 38 and had just delivered my second baby, a little girl, at the Reno hospital where I was a medical director at the time.

I had to have a C-section, because I have an autoimmune disorder called and an blood-clotting disorder, syndrome ( ), both of which can cause complications.

I remember holding my new daughter in the recovery room, then being wheeled into my hospital room. That’s when I started feeling like something wasn’t right. I didn’t feel like myself. I was having a hard time talking, and I was in a lot of pain.

I had given birth to my older daughter, Jordan, just two years before. Two years isn’t that long, and I could remember how I felt after giving birth to her by C-section, and this was not it.

I kept pressing the call button on my bed to have the nurse come in. I told her that something was wrong at least three to four times. She would come into my room, check my blood pressure and other vital signs, and then say, “Nope.”

Read more: https://msmagazine.com/2026/06/16/doctor-bayo-curry-winchell-reno-nevada-almost-died-childbirth-black-women-maternal-mortality-usa/

Malpas woman fears treatment after Cheshire hospital ordealA woman from Malpas has said her health has been severely dam...
06/21/2026

Malpas woman fears treatment after Cheshire hospital ordeal

A woman from Malpas has said her health has been severely damaged after she was treated with excessive amounts of blood thinners following a heart attack.

Claire Howell was rushed to Leighton Hospital near Crewe on March 22, where she received treatment for a heart attack.

Ms Howell, who suffers from syndrome ( ) – a condition which causes the blood to be thicker and more prone to , was placed on a range of blood-thinning medication.

This included , , and injections of – Ms Howell says that the volume of medication was excessive and adds that on one occasion a nurse attempted ‘to give me the same medication twice’.

“I was being given three lots of blood thinners every day,” Claire said.

“I couldn’t eat a thing [while in hospital], and I was losing weight at a rapid pace.”

The blood thinners meant that Claire was experiencing consistent nausea, her vomit contained large amounts of blood, so much so Claire said it was ‘black’, together with light-headedness and blood in her stool.

Claire's symptoms were consistent with gastrointestinal bleeding, and this severely affected her ability to digest food and maintain her weight.

Ms. Howell said she had weighed around 56kg when she was admitted and had lost more than 15kg.

Read more: https://www.chesterstandard.co.uk/news/26210496.malpas-woman-fears-treatment-cheshire-hospital-ordeal/

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La Crosse, WI

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Friday 12pm - 3pm

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