Friends of FSH Research

09/26/2026

Time to party!!!
Tickets on sale now, don't miss this "must attend" gala!

October newsletter

08/31/2026

We are excited for our next gala!!
On February 6, 2027 at the Bellevue Hyatt we will hold our "Gatsby Garden Party" party!! Tickets now on sale so bring your friends together and put on your 1920's party garb & party for a cure!
fshfriends.ejoinme.org/tickets

08/11/2026

AMAZING!!! What your donations can do!!
Check out our website to learn more about the projects supported this year. Thank you for your support & please considering renewing your support and attending our gala Feb 6th

07/15/2026

✨🪻🪷🌿 Mark your calendars and save the date for a grand affair! Our Annual Gala and Auction will be held on Feb. 6, 2027 - plan to join us for a wonderful night of glamour and giving at Gatsby's Garden Party. 🪻🪷🌿✨

05/04/2026

Join Friends of FSH Research on GiveBIG 2026. Donate now to help find a cure for FSH muscular dystrophy.

Mission Friends of FSH Research is dedicated to impacting the lives of those affected by FSH Muscular Dystrophy (FSHD) through direct financial support of FSH (FSHD) research. As an all-volunteer organization, 100% of our fundraising proceeds goes toward promoting &

01/28/2026

What a night!!

With your help, we raised a record $664,000 for research at our Diamonds and Denim Gala on Saturday! 🤠💎

This would not have been possible without our generous sponsors, amazing event volunteers, incredible donors, and supportive friends and family.

Along with all of the cowboy glitz you would expect, the event included a powerful testimony on the impact of FSHD from the Lai brothers and an update from Dr. Stephen Tapscott at Fred Hutch on how his lab is turning your donations into progress in pursuit of a cure.

We also had unmatched energy from our auctioneer Matt Lorch and emcee Sasha Summer Cousineau, line dancing lessons, a h***y tonk dance party from DJ Sean Denard and a heck of a lot of fun!

01/11/2026

Join us ahead of our Diamonds and Denim Gala and Auction to hear updates from some incredible speakers at our 2026 Research Update Meeting. This year's program is focused on Genetic Medicines and Gene Therapies for FSHD. Our presenters range from those doing academic research, companies working on early drug development strategies, and groups running active clinical trials!

Sign up here to attend in-person or virtually via Zoom: https://docs.google.com/forms/d/e/1FAIpQLScJzfTVgekMN6vcdrC9CTZg3rpsqALQg7fiGuBhIT0uI3bPpg/viewform?usp=sharing&ouid=106148994483446624396

01/08/2026

01/08/2026

We are so grateful for our incredibly generous sponsors, who have made our January 24th Diamonds and Denim Gala Dinner and Auction possible. Thank you all!

Last chance to buy tickets - round up your posse to support FSHD research! 🤠💎

More info: https://fshfriends.org/events/auction-2026

12/28/2025

As we mosey into 2026 you should be fixin' to buy your early bird tickets for our ✨Diamonds and Denim Gala and Auction✨ before December 31!

Learn more and purchase tickets here: https://fshfriends.ejoinme.org/tickets?