Friends of FSH Research

01/28/2026

What a night!!

With your help, we raised a record $664,000 for research at our Diamonds and Denim Gala on Saturday! 🤠💎

This would not have been possible without our generous sponsors, amazing event volunteers, incredible donors, and supportive friends and family.

Along with all of the cowboy glitz you would expect, the event included a powerful testimony on the impact of FSHD from the Lai brothers and an update from Dr. Stephen Tapscott at Fred Hutch on how his lab is turning your donations into progress in pursuit of a cure.

We also had unmatched energy from our auctioneer Matt Lorch and emcee Sasha Summer Cousineau, line dancing lessons, a h***y tonk dance party from DJ Sean Denard and a heck of a lot of fun!

01/11/2026

Join us ahead of our Diamonds and Denim Gala and Auction to hear updates from some incredible speakers at our 2026 Research Update Meeting. This year's program is focused on Genetic Medicines and Gene Therapies for FSHD. Our presenters range from those doing academic research, companies working on early drug development strategies, and groups running active clinical trials!

Sign up here to attend in-person or virtually via Zoom: https://docs.google.com/forms/d/e/1FAIpQLScJzfTVgekMN6vcdrC9CTZg3rpsqALQg7fiGuBhIT0uI3bPpg/viewform?usp=sharing&ouid=106148994483446624396

01/08/2026

01/08/2026

We are so grateful for our incredibly generous sponsors, who have made our January 24th Diamonds and Denim Gala Dinner and Auction possible. Thank you all!

Last chance to buy tickets - round up your posse to support FSHD research! 🤠💎

More info: https://fshfriends.org/events/auction-2026

12/28/2025

As we mosey into 2026 you should be fixin' to buy your early bird tickets for our ✨Diamonds and Denim Gala and Auction✨ before December 31!

Learn more and purchase tickets here: https://fshfriends.ejoinme.org/tickets?

12/01/2025

Giving Tuesday - join with us to find a cure!!

https://secure.givelively.org/donate/friends-of-fsh-research/2025-giving-tuesday-4acure

12/01/2025

https://secure.givelively.org/donate/friends-of-fsh-research/2025-giving-tuesday-4acure

10/22/2025

It's time to get ready for our annual gala and fundraiser auction! Our theme for 2026 is 💎 Diamonds and Denim 💎, so shine up your spurs for an amazing party. Purchase your tickets at the link in the comments below and let's rustle up a cure for !

07/13/2025

Last Chance! Win Tickets To Seahawks Game! - https://mailchi.mp/fshfriends/seahawks-18019335

07/09/2025

Win 2 Tickets to a Seahawks Preseason Game! - https://mailchi.mp/fshfriends/seahawks Take a chance to be a member of the 12s at Lumen Field.

07/06/2025

Only a week left to buy a raffle ticket to a Seahawks game!!