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Monday 9am - 5pm Tuesday 9am - 5pm Wednesday 9am - 5pm Thursday 9am - 5pm Friday 9am - 5pm

The Association for Frontotemporal Degeneration

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King of Prussia, PA
The Association for Frontotemporal Degeneration

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AFTD offers support, education, and research updates about frontotemporal degeneration (FTD) for families, caregivers, and healthcare professionals.

Working toward a future free of FTD. AFTD is a 501 (c) (3) nonprofit, and our work is community-driven. Support our mission here: https://www.classy.org/give/381228/ #!/donation/checkout

10/27/2026

There are many ways to make a difference for FTD. ❤️

🏋️ Valerie completed her first solo HYROX fitness competition in Boston, raising $885 in memory of her father and in support of the FTD community.

We’re grateful to Valerie and everyone finding meaningful ways to support AFTD’s mission. ❤️

👉 Want to start your own fundraiser?: https://bit.ly/3UgIUmA

10/25/2026

Meaningful support starts with connection. ❤️

AFTD is seeking Peer Support Volunteers to connect one-on-one with care partners navigating the challenges of frontotemporal degeneration (FTD). Through compassionate conversations and sharing relevant resources, volunteers can help care partners feel heard and find support along the way.

Interested in becoming a volunteer? Join an upcoming Volunteer Intro Session to learn more about the opportunity and how to get involved with AFTD.

👉 Sign up here: https://bit.ly/4hVq8cp

10/23/2026

Novartis is preparing to expand clinical studies of NIO752 to non-Richardson syndrome PSP, CBS, and FTD-MAPT with a new Phase 2 trial. Trials are already underway evaluating the drug in PSP-RS.

Click here to learn more: https://bit.ly/4Brhcof

10/22/2026

3 things people often misunderstand about FTD. 🧠

FTD does not primarily affect memory loss. Instead, it impacts behavior, communication, and movement. Most cases occur between ages 45 and 60, and each person’s experience with FTD can be different.

Watch to learn the facts about FTD, then click here for more information and resources: https://bit.ly/4dtgsV3

10/21/2026

Support can make a meaningful difference for people affected by FTD. ❤️

AFTD’s Comstock Grants provide direct financial assistance through Respite, Quality of Life, and Travel Grants.

Thanks to our generous donors, AFTD provided more than $311,000 in Comstock Grants during the 2026 fiscal year.

Learn more about eligibility and how to apply: https://bit.ly/4s3870o

10/20/2026

Austin, it’s almost time to walk! ❤️

The Austin Area Walk for FTD is coming up on November 14, and there’s still time to join us at Gilleland Creek Park. Bring your family, friends, coworkers, and community together to raise awareness and support everyone affected by FTD.

Can’t join us in person? You can still be part of the movement by registering as a virtual walker and walking where you are.

🚶 Register or donate here: https://bit.ly/4hCq01j

10/19/2026

📢 Tomorrow: Join us for “How the FTD Disorders Registry Benefits Participants” at 2 p.m.

Learn how the FTD Disorders Registry connects people impacted by FTD to the broader research community and supports participation in research.

The webinar will also include a live Q&A.

🔴 Sponsored by AviadoBio.
👉 Register here: https://bit.ly/3TosgBh

10/18/2026

❤️ Hope can be found in the everyday moments of care, compassion, and connection.

For individuals and families navigating FTD, even the ordinary acts of showing up for one another can carry extraordinary meaning.

If you need support, AFTD’s HelpLine is here for you:
📞 1-866-507-7222
📧 [email protected]

10/17/2026

Viral influencer Dugan Meredith shares his FTD caregiving journey through “Taking Care of Granny” as he supports his mother-in-law.

Click here to learn more: https://bit.ly/4ziEKcM

10/16/2026

Who can participate in FTD research? 🧠

Depending on the study, researchers may be looking for people living with FTD, family members, care partners, people at genetic risk, and others.

Research participation can take many forms, from sharing experiences through surveys or interviews to brain imaging, assessments, and clinical trials.

Every study has its own eligibility requirements.

Interested in contributing to FTD research? Explore current research opportunities through the FTD Disorders Registry: https://bit.ly/3VwjMJ4

Address

2700 Horizon Drive, Suite 120
King Of Prussia, PA
19406

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+18665077222

Website

http://www.theaftd.org/

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