Claire the Heart Warrior

Claire the Heart Warrior At Claire the Heart Warrior, we support families affected by Congenital Heart Disease and Heterotaxy.

06/20/2026

CHD parents become experts at holding opposites.

Fear and hope.
Grief and gratitude.
Exhaustion and joy.

You can love your child with everything you have and still wish this wasn’t part of their story.

Both things can be true.

If this reminder resonated with you, leave a ❤️ or share one small thing you’re grateful for today. Sometimes the ordinary moments become the miracles we treasure most.

06/17/2026

🚨 STOP SCROLLING 🚨

Google has answers.
AI has answers.

But sometimes what you really need is someone who’s lived it.

Whether you’re newly diagnosed, preparing for surgery, navigating life after discharge, or simply curious about congenital heart defects, our community is here.

❤️ Give AI a break.
💙 Ask us a question.

Drop your questions below or send us a DM. We’d love to help.

Because sometimes the most valuable answers come from people who truly understand. 🫶

06/13/2026

From “before” to “after” — the difference is everything 💛

Because of our community, what started as simple baskets turned into something so much bigger for the families we saw in the hospital just two weeks ago. Every gift, every donation, every bit of support helped bring comfort, smiles, and a little extra light on a really big day.

We are endlessly grateful for the way you show up for our heart families. Truly—this is what community looks like.

We can’t wait to share more “super” footage from our event… stay tuned 🦸‍♀️✨

06/10/2026

No one asked for a membership to the CHD club, but if you know… you know. 💙

Some things make us laugh.
Some things make us cringe.
And some moments leave an imprint we’ll carry forever.

To every heart warrior and family: we see you, we honor your journey, and we’re grateful to walk it together.

💙 Which one belongs on the list?

06/08/2026

Heart families become experts at carrying things no one else can see.

The appointments.
The uncertainty.
The medications.
The phone calls.
The advocacy.
The fear.
The hope.

And somehow, day after day, they keep showing up.

To every heart warrior, caregiver, sibling, and angel family—

We see you.

And we’re proud of you.

Send this to someone who needs a little bit of love today ❤️

06/07/2026

Little things often become the big things.

To someone outside the CHD world, these gestures may seem small.

But to heart families, they speak volumes.

They say:

“I remember.”
“You don’t have to carry this alone.”
“Your child matters to me.”
“I see you.”

In a journey filled with appointments, uncertainty, and waiting rooms, kindness has a way of becoming unforgettable.

Because when life feels anything but little, the little things become everything.

To our CHD community: what is one little thing someone has done for you that meant everything?

06/04/2026

If heart families had collections, each one might look a little different. ❤️

Hospital bands.
Medical syringes.
Surgery scars.
Anxiety before appointments.
The joy of fewer doctor visits.
And more hope than we ever thought possible.

Some of these are things we’d never choose.
Some are reminders of battles we’ve fought.
All of them tell a story.

A story of resilience.
A story of courage.
A story of hearts that keep beating through it all.

To every heart warrior and heart family: we see you. We know the weight you carry and the victories you celebrate.

What would be in your CHD collection? ⬇️

May is Mental Health Awareness Month, and in the CHD community, this conversation matters deeply.Behind the appointments...
05/30/2026

May is Mental Health Awareness Month, and in the CHD community, this conversation matters deeply.

Behind the appointments, surgeries, medications, scans, and brave smiles are real humans carrying real emotional weight.

Many heart warriors and heart parents silently battle anxiety, depression, PTSD, burnout, and health-related fear every single day. Studies show people living with congenital heart disease experience mental health challenges at significantly higher rates than the general population.

And honestly?
It makes sense.

When your life includes hospital stays, uncertainty, medical trauma, alarms, procedures, loss, or constant vigilance… mental health matters just as much as physical health.

This is your reminder that:
🤍 asking for help is brave
🤍 therapy is healthcare
🤍 rest is important
🤍 you do not have to “stay strong” every moment
🤍 your feelings are valid

To every heart warrior, caregiver, sibling, and bereaved family carrying invisible weight — we see you.

Drop a 🤍 if this reminder was needed today.

05/28/2026

To most people, these moments may seem small.
To heart families, they can feel like everything.

A stable scan.
A quiet night.
A good lab result.
A medication finally working.
Getting to go home.

Congenital heart disease teaches families to celebrate victories that many people never even realize are victories at all.

And maybe that’s what makes this community so beautiful ❤️ We learn how to find gratitude, hope, and joy in the middle of uncertainty.

Every “hallelujah” carries the weight of prayers whispered in hospital rooms, tears shed in waiting rooms, and courage found one heartbeat at a time.

To every heart warrior, heart parent, sibling, caregiver, nurse, doctor, and angel family- we see your hallelujahs. 🤍

What’s a “hallelujah” moment your heart journey has taught you to celebrate?

One of the hardest parts of a CHD journey is feeling like no one else could possibly understand what you’re carrying.The...
05/24/2026

One of the hardest parts of a CHD journey is feeling like no one else could possibly understand what you’re carrying.

The appointments. The fear. The surgeries. The uncertainty. The long hospital nights.

But then, community steps in.

People who understand the language of waiting rooms and monitor alarms. People who know the victories that seem small to the outside world but mean everything to heart families. People who show up with support, encouragement, resources, and hope when it’s needed most.

That’s what the CHD community does.

It reminds families they are not walking this journey alone ❤️

Our Super Hearts Campaign exists because community changes things. Every donation, wishlist item, share, and act of support becomes part of that heartbeat for families navigating congenital heart disease.

Thank you for being a part of our community! ❤️ We could not do this without you!!

Help us continue showing up for heart warriors and their families! Let’s fill the wishlist!

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Kamas, UT
84036

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