Skraban-Deardorff Syndrome Foundation

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Skraban-Deardorff Syndrome Foundation

Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Skraban-Deardorff Syndrome Foundation, 14039 US Highway 74 E, Suite A6 #123, Indian Trail, Indian Trail, NC.

The Skraban-Deardorff Syndrome Foundation has been formed by parents and medical professionals worldwide to foster relationships and organize resources to benefit individuals with Skraban-Deardorff Syndrome.

09/11/2025

How have you planned for your child's future care?

Join us for our next Family Education Session with Estate Planning Attorney and special needs parent himself, Brenton McWilliams, to learn how to set up a Special Needs Trust, avoid common mistakes, and create a secure plan for lifelong support.

👉 Register here: http://bit.ly/4mUMOdZ

08/21/2025

Check out our latest SKDEAS Smile of the Month!

The SKDEAS Foundation shares one SKDEAS Smile each month so our community can get to know some of the amazing individuals affected by Skraban-Deardorff Syndrome.

Want to see your loved one featured? Parents and guardians may sign up here: https://skdeas.kindful.com/register/smile

07/09/2025

📣 Last chance to register for our July Education Series session on school options & IEPs!

This discussion will feature families of SKDEAS children ages 7–17 from around the world. Each speaker brings unique, real-life insight into different education paths—from public schools and virtual classes to homeschooling, hybrid, and ABA-based programs.

We’ll also walk through the IEP process—what it is, how to request one, and what you should have in it. We hope to see you there!

👉 Register here: bit.ly/skdeasseries

07/05/2025

🎉 World SKDEAS Day is tomorrow!

Families around the world are getting ready to celebrate, raise awareness, and share what this day means to them. Whether you're joining us for the first time or you've celebrated before — we can't wait to see your photos, your stories, and your support.

🧬 Find everything you need here: https://www.skdeas.org/world-skdeas-day

06/30/2025

🌍 World SKDEAS Day is almost here — July 6!

This global day of recognition brings our community together to celebrate, raise awareness, and reflect on how far we’ve come. We’re also spotlighting the first published article that introduced Skraban-Deardorff Syndrome to the medical world.

📌 Find event details, ways to participate, and more: https://www.skdeas.org/world-skdeas-day

06/17/2025

Are you navigating IEPs or exploring school options?

Join us for the next SKDEAS Family Education Session where we'll explore different education models that have worked for families and dive into the IEP process. We'll discuss what to expect, what to include, and how to advocate for the services your child needs.

📅 Saturday, July 12, 2025
⏰ 8 AM PT / 10 AM ET
👉 Register here: bit.ly/skdeasseries

Whether you're new to the IEP journey or looking to explore different schooling paths, this is a space to learn, connect, and feel supported. 💙

06/15/2025

We are thrilled to welcome Dr. Jonathan Wilde, PhD, to our Medical Advisory Board!

Dr. Wilde brings a wealth of expertise and an extensive background in gene therapy, neuroscience, and genome editing. He currently serves as Senior Director of Discovery Research at Emugen Therapeutics, where he leads efforts to develop next-generation treatments for neurodevelopmental and neurodegenerative diseases.

His passion for therapeutic innovation in cutting-edge research will be a powerful addition to our mission of advancing the science to improve the lives of those affected by Skraban Deardorff Syndrome.

👉 You can learn more here: skdeas.org/bio-jonathanwilde
💙 Please join us in giving Dr. Wilde a warm welcome to the SKDEAS community!

05/28/2025

📚 Is your family navigating IEPs or exploring school options?

Join the next SKDEAS Family Education Session where families will share their experiences with public school, private school, homeschooling, and more.

📅 Saturday, July 12, 2025
⏰ 8 AM PT / 10 AM ET
📍 Virtual
👉 Register: bit.ly/skdeasseries

Address

14039 US Highway 74 E, Suite A6 #123, Indian Trail
Indian Trail, NC
28079

Website

http://www.skdeas.org/, https://www.skdeas.org/family-meeting

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