KMT2E Foundation O'Donnell-Luria-Rodan Syndrome

11/21/2025

This week’s community goal: 25 new families to join our registry powered by Citizen Health by Thanksgiving.

Every signup could help show what actually works for rare families, and strengthen the data behind better care, treatments, and support.

⏱️ Takes about 5 minutes
💜 Helps improve real-world rare care
🌿 Entered into the $5,000 Caregiver Recharge Giveaway

Join here → www.citizen.health/ai-advocate/kmt2e-foundation

Your medical information stays private and secure within Citizen Health, and is never shared with third-party AI companies or used to train their algorithms.

11/19/2025

Join us TODAY at 7pm ET / 4pm PT!

A practical, no-pressure session hosted by Geo Beek, trained genetic counselor and Head of Partner Management at Citizen Health.

We'll walk through how families are using AI Advocate to:
✔ understand genetic + medical reports
✔ prepare for IEP or school meetings
✔ decode provider notes
✔ organize records for appointments

You’ll also hear how other families use AI Advocate day to day—plus simple tips for keeping your information safe. Your medical information stays private and secure within Citizen Health and is never shared with third-party AI companies or used to train their algorithms.

👉 Sign up → https://ciitizen.zoom.us/webinar/register/WN_UJYs46AFS6O80J2XS_RcWg

This webinar is for informational purposes only. No medical advice will be provided.

Your medical information stays private and secure within Citizen Health and is never shared with third-party AI companies or used to train their algorithms.

11/18/2025

Join us Wednesday, Nov 19 at 7pm ET / 4pm PT!

A practical, no-pressure session hosted by Geo Beek, trained genetic counselor and Head of Partner Management at Citizen Health.

We'll walk through how families are using AI Advocate to:
✔ understand genetic + medical reports
✔ prepare for IEP or school meetings
✔ decode provider notes
✔ organize records for appointments

You’ll also hear how other families use AI Advocate day to day—plus simple tips for keeping your information safe. Your medical information stays private and secure within Citizen Health and is never shared with third-party AI companies or used to train their algorithms.

👉 Sign up → https://ciitizen.zoom.us/webinar/register/WN_UJYs46AFS6O80J2XS_RcWg

This webinar is for informational purposes only. No medical advice will be provided.

Your medical information stays private and secure within Citizen Health and is never shared with third-party AI companies or used to train their algorithms.

11/15/2025

From the first screen, you’ll feel it: OMG, this actually makes parenting easier.

Citizen Health helps families like ours get answers that could help make life simpler and less stressful. Sign up (it takes about 5 minutes), and Citizen will start centralizing your medical records, and so you start using AI Advocate right away.

Try it before Nov 30 → to enter the $5,000 Caregiver Recharge Giveaway.
www.citizen.health/ai-advocate/kmt2e-foundation

Not on Citizen Health yet? Sign up takes ~5 minutes, just follow the link.

Your medical information stays private and secure within Citizen Health, and is never shared with third-party AI companies or used to train their algorithms.

11/12/2025

To make sure you get the KMT2E Newsletter:
1. Sign up on the website: www.kmt2e.org
2. Make sure to add [email protected] to your contacts

KMT2E Foundation is founded and run by the KMT2C Foundation Board and Medical Council. The expansion was made official as we realized phenotypes as well as researchers overlapped. Questions? Email [email protected].

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