KMT2C Foundation

09/15/2026

Hotel discount codes were just exclusively emailed to the families who have purchased tickets to the Inaugural KMT2C Conference. Please book your hotel room ASAP as rates are expected to go as high as double what we have secured. The secured rate is for a very limited number of rooms so please do not wait!

08/15/2026

The KMT2C Foundation and it's Board exclusively communicate updates through our website (www.kmt2c.org), Facebook (www.facebook.com/kmt2c), and Instagram (www.instagram.com/kmt2cfoundation), and out Foundation email newsletter (signup exclusively available at www.kmt2c.org).

Be sure to sign up for the newsletter if you haven't already!

08/07/2026

Latest newsletter went out this evening! Didn't receive it? Sign up here: www.kmt2c.org

08/03/2026

As of 8/3/2026, KMT2C Foundation has earned a 2026 Candid Platinum Seal of Transparency! See what your donations help us accomplish: https://www.guidestar.org/profile/33-3590325

07/31/2026

Tickets are LIVE for the Inaugural KMT2C Conference. Tickets are available in a limited capacity so don't wait on the opportunity. Sign your family up here:

Connecting Families. Advancing Research. Changing Lives. 11/19/2026 - Houston, Texas Keynote by Dr. Siddharth Banka

07/14/2026

Domestic-based KMT2C Families, there are government sponsored, state issued travel grants available for rare disease families! Contact your state's council for developmental disabilities to find out about availability for 2026!

07/10/2026

📣 Simons Searchlight Releases New Quarterly Reports! 📣
📊 Your Simons Searchlight July 2026 quarterly report is here—with updated insights and fresh data on individuals with KMT2C-related syndrome, powered by families like yours.
Check out the valuable information in this report here:
https://bit.ly/KMT2CReport
These reports are based on medical history information generously shared by participants and include data in four key areas:
Age Ranges
Developmental and Behavioral Conditions
Neurological Conditions
Gastrointestinal Conditions
They also feature community participation progress numbers, showing how families are actively moving research forward.
💡 By completing surveys over time, you're helping researchers better understand your condition and how it changes across the lifespan. Together, we’re turning limited knowledge into meaningful discoveries—for your family and others in the future.
Thank you for being part of this important work! 💙
*Not a current Simons Searchlight participant?
Learn how you can contribute to our study and be included in future reports:
https://bit.ly/Why_Join_Simons_Searchlight