UPDATE: 10-14-94 WARRIOR 05-11-18
Dan WAS a trained soldier for 23 1/2 years and was always been known as General Dan!!! We are still looking for help getting the word out about CHD, Congenital Heart Defects. Dan was born with no left ventricle (a half of a heart) also known as Hypo-Plastic Left Heart Syndrome in 1994. His many battles include 4 open heart surg
eries, 2 closed heart surgeries and more procedures then you could imagine. Dan had gone to battle several times with PLE, Protein Losing Enteropathy, and did an awesome job at defending it. PLE is a rare side effect of one of his open heart surgeries that has no known cure as of today. He has tried several methods that his Army researched and continues to help develop new treatments. When Dan was born in 1994 the treatment for his condition was still very new in the medical world and most of the babies born died before 7 days old. We are still trying to get awareness out to help treat and hopefully one day prevent as many CHD births as possible! CHD Facts
• Congenital Heart Defects are the #1 birth defect worldwide
• Congenital Heart Defects are the #1 cause of birth defect related deaths worldwide
• About 1 out of every 100 babies are born each year with some type of Congenital Heart Defect in the United States (approx. 40,000/year)
• Nearly twice as many children die from Congenital Heart Defects in the United States each year as from all forms of childhood cancers combined, yet funding for pediatric cancer research is five times higher than funding for Congenital Heart Defects
• Each year worldwide 100,000 babies (under one year old) will not live to celebrate their first birthday
• Each year in the United States approximately 4,000 babies (under one year old) will not live to celebrate their first birthday
• The cost for inpatient surgery to repair Congenital Heart Defects exceeds $2.2 billion a year
• Of every dollar the government spends on medical funding only a fraction of a penny is directed toward Congenital Heart Defect research
• The American Heart Association directs only $0.30 of every dollar donated toward research. The remainder goes toward administration, education and fundraising efforts. Of the $0.30 that goes toward research only $0.01 goes toward pediatric cardiology for CHD
• Though research is ongoing, at least 35 defects have now been identified
• Although some babies will be diagnosed during gestation or at birth, sometimes the diagnosis is not made until days, weeks, months, or even years after. In some cases, CHD is not detected until adolescence or adulthood
• It is a proven fact that the earlier CHD is detected and treated, it is more likely the affected child will survive and have less long term health complications
Support Pulse Oximetry Advocacy
Find out more about the pulse oximetry screening for CHD and contact legislation to have the pulse ox added to the uniform newborn panel. "Http://www.itsmyheart.org/chd-information/chd-facts/." Web.