Alyssa's Angels for CF

08/12/2020

The end of the article!

World War II veteran Dr. Quentin Smith holds a replacement congressional medal honoring the Tuskegee Airmen awarded to him during a ceremony held at City Hall in Gary, Ind., Friday, April 20, 2012. Smith, 93, fought in World War II as part of the famed 99th Fighter Squadron. Smith’s original medal...

12/02/2019

Check out Michele and her story before this years CF gala.

“The CF gala is happening again on February 8th. I’ll be going to the night cap portion of the evening, whose coming with me?! Tickets are on sale for cyber Monday and then prices go back up! It’s at the Field Museum this year again and will be tons of fun.
Check out http://www.cffgrandchefs.com for more information and to get your tickets!

Here’s the video from 2016, that Mike Schmidt and I got to be featured in. 🥰 “

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11/21/2019

An inspiring documentary about Claire Wineland. Just takes 40 minutes to watch and well worth the time!

Directed by Oscar-winning filmmaker Nick Reed & Ryan Azevedo, the film tells the story of activist and Claire’s Place Foundation Founder Claire Wineland thro...

10/21/2019

The U.S. Food and Drug Administration has approved the use of the triple-combination modulator elexacaftor/tezacaftor/ivacaftor (Trikafta™) for people with cystic fibrosis ages 12 and older who have at least one copy of the F508del mutation. The highly effective treatment could eventually benefit ...

10/21/2019

Breakthrough therapy! Great read. Have a positive week everyone.

FDA approves breakthrough therapy for patients 12+ with cystic fibrosis and at least one F508del mutation in the CFTR gene, estimated at 90% of CF population.

01/24/2018

5 years ago today, Alyssa lost her battle with CF. Nevertheless, she lived her life to the fullest everyday and made everyone who met her better. Please feel free to share how Alyssa impacted your life either through your memories of her or from hearing her story.

01/23/2017

Thinking of you today!

Learn about Cystic Fibrosis and let Alyssa show you how she deals with CF every day. Also, see how Alyssa's Angels help in the fight to find a cure.

05/14/2016

Amazing achievement as County Durham man becomes first ever cystic fibrosis sufferer to conquer Mount Everest

05/10/2016

Great experience at HMS today sharing Alyssa's Story. Thanks to Debbie, Julia, and Walter for coming out and sharing time and memories. Already had some good talks with some of the kids. Thanks Alyssa for continuing to change lives!

03/21/2016

It isn't "just a bad cough".

01/08/2016

Alyssa's Angels are happy to see Emily strive to find a cure for Cystic Fibrosis, as a CF patient herself. Check out her page and her article about CF in People magazine! 💜

Emily Kramer-Golinkoff is taking on cystic fibrosis and racing against the clock