Prisms, Inc.

Prisms, Inc. PRISMS provides support to families of persons with Smith-Magenis Syndrome (SMS)

06/13/2026

A biomarker study at Texas Children’s Hospital in Houston, Texas is looking for participants, and family involvement is essential. Studies like this help researchers better understand SMS, identify measurable biological markers, and build a stronger path toward future treatments. Having validated SMS biomarkers is also one of the important steps needed to support future clinical trials.

𝐒𝐭𝐮𝐝𝐲 𝐃𝐞𝐭𝐚𝐢𝐥𝐬:
For individuals with a genetically confirmed RAI1 deletion or point mutation
Ages 1 month to 60 years
Includes a physical exam, blood draw, overnight sleep study, and one week wearing an actigraphy watch
No cost to participate
Travel and lodging support available up to $1,000

If your family is eligible, please consider taking part. Your participation could help not only your own child, but many other families in the SMS community.

To learn more, contact Dr. Walter Williamson at [email protected]. [email protected]./" rel="ugc" target="_blank">https://[email protected]./

Summer Research Spotlight:Meet Janae’ Alexis Pendergrass. Janae earned her B.S. in Psychology from Spelman College in 20...
06/12/2026

Summer Research Spotlight:

Meet Janae’ Alexis Pendergrass. Janae earned her B.S. in Psychology from Spelman College in 2021. After graduating, she worked as a postbac at Marcus Autism Center where she conducted research on the assessment and treatment of severe challenging behavior. She received her master’s degree from the University of Florida (UF) and her BCBA certification in 2025. Her research interests include using a collaborative approach toward increasing cooperation with hair grooming procedures for Black children with autism and other related developmental disabilities, evaluating fluctuations in behavior sensitivity during periods of pain and discomfort, and applying behavior analysis methodology to individuals with Smith-Magenis Syndrome.

Janae' will be Exploring the Feasibility of Repeated Measurement of Constipation and Challenging Behavior in Individuals with Smith-Magenis Syndrome (SMS) for her summer research project.

We look forward to seeing the results of her research.

Registration for the PRISMS 13th International Conference closes June 30. Join families, researchers, and professionals...
06/11/2026

Registration for the PRISMS 13th International Conference closes June 30. Join families, researchers, and professionals from around the world as we come together to learn, connect, and advance our understanding of Smith-Magenis syndrome (SMS). This conference is a unique opportunity to gain valuable insights, share experiences, and build lasting connections within the SMS community.

Register here:
https://secure.lglforms.com/form_engine/s/YlJkBs6hBJHk0Eet6Q2wNA

We would love to have a photo of your SMS individual to include in a slideshow at the conclusion of the conference. Even...
06/10/2026

We would love to have a photo of your SMS individual to include in a slideshow at the conclusion of the conference. Even if you can't attend, we would still like to share a photo.

You can send the photo to [email protected] and include your child's name and age. The deadline to send photos is June 24.

Haven't registered for the conference? There is still time to register! https://secure.lglforms.com/form.../s/YlJkBs6hBJHk0Eet6Q2wNA

A heartfelt thank you to our Gold Sponsors for their generous support of this year's conference! Your partnership helps ...
06/09/2026

A heartfelt thank you to our Gold Sponsors for their generous support of this year's conference! Your partnership helps make this event possible. We are grateful for your commitment and investment in our SMS community.

Please join us in recognizing and celebrating our Gold Sponsors for their valuable support!

You’re Invited to Light Up the Night! A Celebration and Fundraiser for PRISMS during the 13th International Conference ...
06/05/2026

You’re Invited to Light Up the Night! A Celebration and Fundraiser for PRISMS during the 13th International Conference in Minneapolis.

Join us for an unforgettable evening of connection, compassion, and celebration. You can purchase your tickets when you register for the conference or use the link below. Join us for this adults-only event and let’s light up the night — and light the way forward for the PRISMS community.

Together, we can make a difference. Together, we shine brighter.

https://secure.lglforms.com/form_engine/s/ggNoTRr9qmuDoQzfIFvhvw

A heartfelt thank you to our Platinum Sponsors for their generous support of this year's conference! Your partnership he...
06/04/2026

A heartfelt thank you to our Platinum Sponsors for their generous support of this year's conference! Your partnership helps make this event possible. We are grateful for your commitment and investment in our SMS community.

Please join us in recognizing and celebrating our Silver Sponsors for their valuable support!

PRISMS is pleased to provide access to an abridged version of the 2026 Conference Program. Please note – the program age...
05/26/2026

PRISMS is pleased to provide access to an abridged version of the 2026 Conference Program. Please note – the program agenda is subject to change, so check back often to stay up to date with all the conference happenings. You can find the agenda here:

https://www.prisms.org/wp-content/uploads/pdf/conf/2026/Abridged_Agenda.pdf

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Herndon, VA

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+19722310035

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