Charcot-Marie-Tooth Association

Charcot-Marie-Tooth Association CMT is the most commonly inherited peripheral neuropathy. Our vision: A world without CMT.
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Our mission: to support the development of new treatments for CMT, to improve the quality of life for people with CMT, and, ultimately, to find a cure. Charcot-Marie-Tooth, or CMT, is the most commonly inherited peripheral neuropathy and is found worldwide among all races and ethnic groups. Discovered in 1886 by three physicians, Jean-Martin Charcot, Pierre Marie, and Howard Henry Tooth, CMT affects an estimated 3 million people.

Parenting through CMT looks different for every family. Join our Q2 Lunch and Learn for an honest conversation with thos...
06/02/2026

Parenting through CMT looks different for every family. Join our Q2 Lunch and Learn for an honest conversation with those living it every day.

Hear real stories, gain practical advice, and connect with a community that gets it.

✨ Wednesday, June 24
✨ 12 PM EST
✨ Via Zoom

Featuring Herb Beron, CMTA Board Member and parent of a child living with CMT; Brooke Shapiro, author and podcaster raising children with CMT; and Bethany Meloche, CMTA Advisory Board Member, author, and individual living with CMT.

Come ready to listen, learn, and ask your questions! 🔗 Register here: cmtausa.org/lunchandlearn

Be part of the progress. 🔬Join Patients as Partners in Research and help shape the future of CMT research through your e...
06/01/2026

Be part of the progress. 🔬

Join Patients as Partners in Research and help shape the future of CMT research through your experiences and insights. Get access to studies, surveys, and opportunities to connect with researchers working toward better treatments and a cure.

Learn more & join → cmtausa.org/pap

Designed to keep you moving, every step of the way. 💙TurboMed’s dynamic mobility solutions are designed to help individu...
05/30/2026

Designed to keep you moving, every step of the way. 💙

TurboMed’s dynamic mobility solutions are designed to help individuals with CMT navigate foot drop, improve stability, and move through daily life with greater confidence and ease.

🔗 Explore TurboMed’s CMT-friendly solutions at turbomedorthotics.com.

Start the movement 💙You don't need a big platform or a perfect plan. You just need a reason to care and the courage to b...
05/29/2026

Start the movement 💙

You don't need a big platform or a perfect plan. You just need a reason to care and the courage to begin.

Turn your next milestone, event, or challenge into a fundraiser that fuels research, supports families, and helps bring us closer to a world without CMT.

Get started at cmtausa.org/buildyourfundraiser

05/28/2026

Throwback to camper arrival day at Camp Footprint West 2025 — the excitement, the energy, and the start of an unforgettable week. Only 11 days until we do it all again 🏕️👣

We want to hear from you! 💬 Help CMTA update our Clinician Directory.We’re working to connect the CMT community with kno...
05/28/2026

We want to hear from you! 💬 Help CMTA update our Clinician Directory.

We’re working to connect the CMT community with knowledgeable, experienced providers who make a real difference in care for you and your loved ones.

Have you had a great experience with a neurologist, PT/OT, orthopedic surgeon, orthotist, ENT, or other specialist? Share your recommendation with us!

🔗 Submit here: cmtausa.org/addaclinician

The 2026 CMTA Patient & Research Summit in San Francisco is getting closer, and now’s the perfect time to start planning...
05/28/2026

The 2026 CMTA Patient & Research Summit in San Francisco is getting closer, and now’s the perfect time to start planning your trip ✈️

Swipe through for your weekend-at-a-glance guide to help map out your travel plans.

Haven’t registered yet? Now’s the time! Join us October 9-11 for an unforgettable weekend of community, connection, and education.

✨ Register today at cmtausa.org/summit

What happens when Footprint Fellowship fellows and mentors are given 52 opportunities to spread awareness?For many indiv...
05/21/2026

What happens when Footprint Fellowship fellows and mentors are given 52 opportunities to spread awareness?

For many individuals living with Charcot-Marie-Tooth disease, explaining CMT can feel like one of the most daunting parts of living with the disease. That’s why this month, every fellow and mentor in the Footprint Fellowship received 52 “What is CMT?” cards — 52 opportunities to introduce someone new to CMT, spark conversation, and grow more confident sharing their story beyond the walls of Camp Footprint.

Here are just a few of the many people across the country who have received a “What is CMT?” card from a Footprint Fellowship fellow or mentor. 💙

Address

Glenolden, PA

Telephone

+18006062682

Website

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