Charcot-Marie-Tooth Association

Charcot-Marie-Tooth Association Charcot-Marie-Tooth disease (CMT) is the most common inherited peripheral neuropathy.
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Supporting the development of new treatments for CMT, improve quality of life for those affected and ultimately find a cure. Charcot-Marie-Tooth, or CMT, is the most commonly inherited peripheral neuropathy and is found worldwide among all races and ethnic groups. Discovered in 1886 by three physicians, Jean-Martin Charcot, Pierre Marie, and Howard Henry Tooth, CMT affects an estimated 3 million people.

Julia Beron is a full-time primary therapist with a master’s degree in social work and a passion for supporting others t...
09/04/2026

Julia Beron is a full-time primary therapist with a master’s degree in social work and a passion for supporting others through life’s challenges. 💙

“Growing up with CMT opened my eyes to my passion for helping others. Taking from my personal experiences with chronic illness, I utilize what I have endured to inspire and help others during their own challenges and obstacles.”

This CMT Awareness Month, we’re celebrating the nerve of the CMT community, one story at a time.

Share your story at cmtausa.org/cmt-awareness-month.

It takes nerve to spread awareness.September is CMT Awareness Month, and we’re using this month to help more people unde...
09/03/2026

It takes nerve to spread awareness.

September is CMT Awareness Month, and we’re using this month to help more people understand Charcot-Marie-Tooth disease and the millions of people living with it.

Share this post to spread the word. Every share helps bring CMT out of the shadows and one step closer to greater awareness, understanding, and change.

Learn more about CMT and share your story: cmtausa.org/cmt-awareness-month/

It takes nerve.CMT wears away the connection between your brain and your muscles, but it doesn’t wear away what makes ou...
09/01/2026

It takes nerve.

CMT wears away the connection between your brain and your muscles, but it doesn’t wear away what makes our community who they are.

This September, for CMT Awareness Month, we’re celebrating the nerve it takes to keep going: to take the first step, find your independence, advocate for yourself and believe in what’s possible, even when the path isn’t the one you expected.

Every person living with Charcot-Marie-Tooth disease has a story about a time they had to dig deep and do the thing anyway. Big or small, we want to hear yours.

Find out how you can share your story 👉 cmtausa.org/cmt-awareness-month

Every voice moves research forward.When you join Patients as Partners in Research, you're helping researchers better und...
08/28/2026

Every voice moves research forward.

When you join Patients as Partners in Research, you're helping researchers better understand CMT and move research forward. Get connected with studies, surveys, and other opportunities to make a difference.

Learn more & join → cmtausa.org/pap

Looking for people who just get it? We’ve got you.The CMTA Young Adult Group is a space to connect with other young adul...
08/27/2026

Looking for people who just get it? We’ve got you.

The CMTA Young Adult Group is a space to connect with other young adults living with CMT, swap stories, and build a community that goes beyond the monthly meetup. 🌟

Join COMPASS now: cmtausa.org/compass

Parents supporting parents. Families connecting with families.🌱The Roots is a space for parents of young children with C...
08/26/2026

Parents supporting parents. Families connecting with families.🌱

The Roots is a space for parents of young children with CMT to ask questions, share experiences, celebrate milestones, and know they’re not alone.

Grow together: cmtausa.org/theroots

Need a reason to attend the CMTA Patient & Research Summit in San Francisco this October? We’ve got seven 🌉Swipe to see ...
08/24/2026

Need a reason to attend the CMTA Patient & Research Summit in San Francisco this October? We’ve got seven 🌉

Swipe to see why this year’s Summit is one you won’t want to miss, then read more at cmtausa.org/simply-cmt/reasons-to-attend-cmta-summit/

Ready to join us? Register today before seats fill up 👉 cmtausa.org/summit

08/24/2026

Camp Footprint East 2026 gave us so much to celebrate. 🌲✨👣💙

Thank you to every camper, counselor, volunteer, and staff member who made it all possible!

Relive the memories: gallery.cieriphotography.com/client/campfootprinteast2026/gallery

A special thank you to Cieri Photography & Video for capturing the people, moments, and memories that made Camp Footprint East so special. We’re so grateful to have these videos/photos to look back on for years to come. 📸

When every step takes a little more effort, the right support can make all the difference. TurboMed Orthotics offers dyn...
08/21/2026

When every step takes a little more effort, the right support can make all the difference.

TurboMed Orthotics offers dynamic mobility solutions designed with the CMT community in mind, helping support foot drop and improve stability so everyday movement feels more manageable. 💙

🔗 Learn more about TurboMed's CMT-friendly solutions, at turbomedorthotics.com

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