Solve MECFS Initiative

Solve MECFS Initiative Our Mission: Make ME/CFS, Long Covid and other post-infection diseases widely understood, diagnosable, and treatable.

Register today for our free webinar, “The SIGNAL Study: Using Home-Based Treatments to Advance ME/CFS and Long Covid Re...
09/03/2026

Register today for our free webinar, “The SIGNAL Study: Using Home-Based Treatments to Advance ME/CFS and Long Covid Research.”

Solve selected the Renegade Research team for a Catalyst award to fund the SIGNAL study, which is built around a device lending library through which people diagnosed with ME/CFS and Long Covid may borrow promising therapeutic devices, shipped directly to their homes at no cost, for a three-month lending period.

While borrowing, participants contribute standardized longitudinal data through the Brain Inflammation Collaborative unhide® online health and research platform. This allows each lending cycle to be a real-world research opportunity.

In this webinar, we’ll hear from Renegade Research team members–scientists and people living with ME/CFS and Long Covid–as they discuss the study's goals, its patient-centered design, how results will be shared quickly to help patients, clinicians, and researchers make more informed decisions, and how you can get involved.

Sign up for the webinar here:
https://ow.ly/G9qk50ZIvx8

We helped make this happen. The House passed a stopgap that delays implementation of the Regulation for Federal Financia...
09/02/2026

We helped make this happen.

The House passed a stopgap that delays implementation of the Regulation for Federal Financial Assistance through December 11. It now heads to the President's desk.

This rule would let political appointees cancel federal grants, including active clinical trials people are counting on right now, overriding the scientific peer review process.

For a community whose treatments, biomarkers, and answers depend on steady federal research funding, that's not abstract. It's the difference between a study that finishes and one that disappears.

This delay is happening because of the comments you filed, the calls you made, and the stories you shared. Thank you.

But a delay isn't the end. We have until December 11 to keep pushing to stop this rule entirely, and we'll need you again.

Use our toolkit to take action:
http://solvecfs.quorum.us/campaign/ombcongress

09/01/2026

We’re saddened by the passing of Dr. Jo Cambridge, a valued member of Solve’s research network and a 2016 Ramsay Research Grant recipient.

Dr. Cambridge was an emeritus professor of rheumatology and inflammation at the University College London (UK). She specialized in developing and improving therapies that target B cells, which are antibody-producing immune cells. In earlier work, Dr. Cambridge discovered biomarkers that predict which people with rheumatoid arthritis will respond to rituximab, a drug that lowers B-cell levels.

In 2016, Dr. Cambridge won a Ramsay Research Grant to study B cells in people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). For her Ramsay Project—“Metabolic Analysis of B-cell Maturation in ME/CFS”—she studied how ME/CFS affects metabolism in B cells as they progress from immature cells into mature ones. Her work suggested that treatments that help immature B cells use energy efficiently and survive immunological attacks may help people with ME/CFS.

Dr. Cambridge’s research reflected her deep commitment to improving the lives of patients. We’re grateful for her important contributions to the field and to the Solve community.

Read more about Dr. Cambridge and her work:
https://ow.ly/aMfC50ZI0Tf

ICYMI: Solved recently joined host Bateman Horne Center and Open Medicine Foundation, The Network, and the WIMEL Write...
08/28/2026

ICYMI: Solved recently joined host Bateman Horne Center and Open Medicine Foundation, The Network, and the WIMEL Writers (What Is Myalgic Encephalomyelitis Like?) for a special "Coffee" with a Clinician in recognition of Severe ME/CFS Awareness Month.

Panelists discussed the unique considerations of severe ME/CFS, recognizing the importance of lived experience, continuing education, accessible research, and patient advocacy.

Watch the replay here:
https://ow.ly/zwYx50ZGmTw

Register for our Sept. 8 webinar with Dr. Jay H. Chung (NIH) discussing his Solve ME/CFS Catalyst Award-winning study o...
08/27/2026

Register for our Sept. 8 webinar with Dr. Jay H. Chung (NIH) discussing his Solve ME/CFS Catalyst Award-winning study of a potential safe and accessible treatment for .
https://ow.ly/GjlA50YZ8jl

Living with ME/CFS, Long Covid, and related complex chronic conditions. can make it difficult to explain how you're feel...
08/26/2026

Living with ME/CFS, Long Covid, and related complex chronic conditions. can make it difficult to explain how you're feeling or to know whether a treatment is truly helping. Symptoms like pain, fatigue, brain fog, behavior changes, and post-exertional malaise (PEM) can fluctuate, making it especially challenging to remember and communicate what has changed between medical visits.

That's where tracking your health over time can help.

The unhide® real-world data platform uses validated health surveys to collect detailed information about your health over time, and makes it easy to visualize a large amount of information at a glance. Using the data from unhide®, patients can better recognize patterns and trends to support conversations with healthcare providers.

Join us on Tuesday, Sept. 22 at 3 pm PT/ 6 pm ET for a free webinar with host Solve CSO Dr. Sadie Whittaker and panelists from Brain Inflammation Collaborative and the unhide® research team.

They’ll discuss how unhide® helps patients, caregivers, and healthcare providers consistently capture, share, and learn from health data and lived experiences.

Register here:
https://ow.ly/Tzbr50ZyLzC

Solve is a proud sponsor of the International Society for Long COVID and Post-Acute Infection Syndromes (ISLC-PAIS) Conf...
08/25/2026

Solve is a proud sponsor of the International Society for Long COVID and Post-Acute Infection Syndromes (ISLC-PAIS) Conference in Amsterdam Aug. 26-29. Our VP of Scientific Programs Dr. Jessica Maya will attend along with many of the leading experts in and . Check out their site to learn more about video on-demand access.
https://islc-pais.org/

Are you left holding the stuffed giraffe? Get your Caregiver Intensity Score from .mehttps://ow.ly/OIJu50ZFn5xGet pointe...
08/25/2026

Are you left holding the stuffed giraffe? Get your Caregiver Intensity Score from .me
https://ow.ly/OIJu50ZFn5x

Get pointed to support that fits. Nearly 45% of folks in the Solve M.E. community who got their score have gone on to explore things that can help.

Got Long COVID?’s Community Input Survey is live! If you live in LA County and are living with Long COVID, caring for so...
08/24/2026

Got Long COVID?’s Community Input Survey is live!

If you live in LA County and are living with Long COVID, caring for someone with Long COVID, or involved in Long COVID advocacy, share your experience to help identify unmet needs and inform the LADPH Virtual Town Hall on Long COVID later this year.

If you had ME/CFS before COVID and your symptoms worsened after an infection, this survey is for you, too. Available in English and Spanish.

The anonymous survey closes on October 3rd.

https://ow.ly/rat550ZEZta

Starting soon!Solve VP of Scientific Programs Dr. Jessica Maya will join the Renegade Research team for "Vagus Nerve Sti...
08/21/2026

Starting soon!

Solve VP of Scientific Programs Dr. Jessica Maya will join the Renegade Research team for "Vagus Nerve Stimulation (VNS) Informal Tracking Project for ME/CFS & Long COVID.” Sign up to learn more about VNS and their recently completed 20-patient informal tracking project that laid the groundwork for their Solve Catalyst Award-winning SIGNAL study.

Fri., Aug. 21, 2026 @ 2 pm ET/ 11 am PT

Register:
https://ow.ly/BHg050ZyiUW

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