The Brett Boyer Foundation

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The Brett Boyer Foundation The Brett Boyer Foundation was created in loving memory and in honor of our beloved daughter Brett. We are truly grateful to be a part of .

Brett is our first child who was diagnosed prenatally with Down syndrome and a congenital heart defect (CHD). Brett battled this heart disease (atrioventricular septal defect ) for her 7 inspiring and incredible months of life. When we received Brett's diagnosis, Bo and I were uneducated on DS and CHD and were very fearful. The more research we did, the more we realized, the world is in the dark about the underfunding of research to improve the lives of those living with both DS and CHD. As soon as Brett was born we knew that DS was nothing to be feared and was quite possibly one of our favorite things about her. We were so fortunate to live in a great area with a very strong Down Syndrome community. We hope that if you receive a diagnosis, that you will find the same near you, or start one of your own! Down Syndrome is certainly something we believe should be celebrated! There was nothing down about Brett, that is for certain. We only wish we could go back in time to the day of our diagnosis and know what we know now about DS. Instead of tears there would be a high five and a hug saying, “we have hit the lottery!”

Brett’s heart disease diagnosis was a bit different, its hard to find a positive light on hearing your baby will have to have open heart surgery to survive. Fortunately for most, an AVSD (atrioventricular septal defect) is repairable 97% of the time. Unfortunately, we were in the 3%. But our strong baby girl fought hard, and so did the incredible team at Vanderbilt who loved her dearly. That is why this mission is and will always be near and dear to our hearts. What we witnessed in our 100 day stay in the hospital were doctors, nurses, nurse practitioners, respiratory therapist, social workers, transplant teams, sonographers, phlebotomist, and many more fighting to give our girl more options. We believe in these people and their mission. We believe they can revolutionize the world of cardiac surgery, and plan to help them fulfill their God given talents to our utmost ability. At the end of the day, Brett filled our lives with more love than we ever knew possible. Her life deserves to be celebrated and we are so thankful God chose us to be her parents. We could not be more proud of her. We see her everywhere, in everything that we do. We feel called to share the light she left shining in our hearts.

10/27/2026

That’s a wrap on Red Bird Games 2026! 💛🐝

Thank you to our sponsors and in-kind sponsors, and special guests, who donated their time, talent and products to help us raise precious funding for CHD research. 💪

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10/25/2026

To all who participated in the Red Bird Raffle - thank you for helping us raise $22k for CHD research and to support heart families across the country! Congrats to all of our lucky winners! 💛

10/21/2026

Enter to win the Red Bird Raffle before this Thursday at thebrettboyerfoundation.org/shop or tap the link in our bio!

The Cardiac High Acuity Remote Monitoring (CHARM) Program at Monroe Carell Jr. Children’s Hospital at Vanderbilt provide...
10/17/2026

The Cardiac High Acuity Remote Monitoring (CHARM) Program at Monroe Carell Jr. Children’s Hospital at Vanderbilt provides specialized, comprehensive care for children with complex congenital heart disease (CHD), both in the hospital and at home.

Through home monitoring, frequent communication with families, close outpatient follow-up, and coordinated multidisciplinary care, the CHARM team provides vital support throughout the interstage period, one of the most medically fragile and emotionally challenging chapters in a child’s heart journey. At the heart of this program is a close partnership with families, ensuring they feel supported, informed, and connected every step of the way.

“Graduating” from the CHARM Program represents an extraordinary milestone, marking a transition to a more stable source of blood flow and an exciting new chapter in a child’s journey.

Every milestone is worth celebrating. These brave little hearts and their families have overcome so much, and recognizing just how far they’ve come makes these moments even more meaningful.

We have so much love and appreciation for Monroe Carell Jr. Children’s Hospital at Vanderbilt and the incredible cardiac team who care for these children and their families every single day. Thank you for all that you do for our heart community! ❤️

📸 Suha Dabit Photography

We found out about Audrey’s heart condition when I was 24 weeks pregnant. While it felt like a punch to the gut, we knew...
10/14/2026

We found out about Audrey’s heart condition when I was 24 weeks pregnant. While it felt like a punch to the gut, we knew it was going to be okay. She had the best team watching her during my pregnancy, when she was born, and still now!
We had to make sure she was at the correct weight before she had surgery, and she was watched closely. She had just turned 5 months old a few days before her open-heart surgery in July of 2025! That is a day our family will never forget. We are so very thankful that the surgery was available and helped her. She was in the hospital for a week, and she did amazing.
We follow up with cardiology regularly, and we couldn’t have asked for a better team of doctors and specialists to keep caring for our girl.
Audrey is not defined by her Down syndrome diagnosis either. She has brought our family so much joy and happiness. She has taught us so much about living life to the fullest and that reaching milestones comes in your own time for everybody. And when you hit them, you celebrate so loudly!
This past July, we celebrated her one-year Heartiversary! Our Audrey is a warrior, and she simply amazes us every single day!

The Red Bird Raffle is back and better than ever! Support our mission with a $25 donation before October 22nd, and you’l...
10/12/2026

The Red Bird Raffle is back and better than ever! Support our mission with a $25 donation before October 22nd, and you’ll be entered for a chance to win one six awesome prizes! The lucky winners will be drawn live by Luke, Caroline, Ellen, Bo and some surprise guests on Instagram at The Red Bird Games on October 24th. Enter to win at https://www.thebrettboyerfoundation.org/shop

*No purchase necessary to win

🫶🏼🫶🏼🫶🏼 we adore Dr.Fuller 🫶🏼🫶🏼🫶🏼
10/09/2026

🫶🏼🫶🏼🫶🏼 we adore Dr.Fuller 🫶🏼🫶🏼🫶🏼

Exciting news!

The U.S. Food and Drug Administration recently approved a size-adjustable pulmonary heart valve for pediatric patients —the first heart valve designed to be expanded after surgery to keep pace with a child’s growth.

This innovative technology may help reduce the need for repeat open-heart surgeries for children with heart defects.

This is especially exciting for our Heart Center team since our co-directors, Dr. Aimee Armstrong and Dr. Stephanie Fuller, both have extensive experience with this new FDA-approved, size-adjustable pulmonary valve replacement, and Dr. Armstrong was the first to perform an expansion of this implanted valve.

You can read the full FDA news release here. 👉 https://tinyurl.com/2rpvdyb3

Liam is our sweet miracle boy who has overcome so much, including CHD and several other serious health challenges. He’s ...
10/09/2026

Liam is our sweet miracle boy who has overcome so much, including CHD and several other serious health challenges. He’s now 5 years old, almost 6, and was born on November 8, 2020, during the COVID pandemic at Vanderbilt University Medical Center. He was transferred shortly afterward to Monroe Carell Jr. Children’s Hospital at Vanderbilt. I’d love to share a glimpse of our journey.

We live in Dalton, Georgia. We moved here from the Nashville area in 2017 after my husband accepted a job opportunity. After struggling with fertility issues for about two years, we were overjoyed to learn we were pregnant. But the pandemic meant I attended most of my appointments alone. At our anatomy scan, Liam was measuring small, so I was referred to a specialist. That’s where I learned he had Tetralogy of Fallot. I’ll never forget sitting alone in that room, with no cell service, feeling overwhelmed and scared.

When I was 27 weeks pregnant, I drove to Nashville for a baby shower with my sister, friends, and family. On the drive, I started feeling “off” and noticed Liam wasn’t moving much. The next morning, after a vivid dream that something was wrong, I woke my sister and asked her to take me to Vanderbilt. Less than 24 hours later, Liam was born by emergency cesarean section at 1 pound, 8.5 ounces, after his heart stopped in my womb.

We spent the following months in Nashville while we found a place to live and rented out our home in Georgia. Because of hospital restrictions, my husband and I could only be there together on holidays. I was at the hospital from 7 a.m. to 7 p.m., and he came from 7 p.m. to 11 p.m. We spent Thanksgiving, Christmas, New Year’s, and Easter there, without friends or family able to visit.

Liam was born with Tetralogy of Fallot, BPD lung disease, hypospadias, and chordee. He developed blood clots that had to be removed surgically, needed ECMO and extensive oxygen support, and had his first open heart surgery when he weighed around 6 pounds. He also received too many blood transfusions to count. One terrible day, we watched him crash and be brought back to life at least 10 times in 24 hours. We never knew which crash might be his last. The experience was overwhelming, traumatic, and heartbreaking, but also beautiful. We get to hug him every day, and that feels like a miracle. I believe only God could have given his doctors and nurses the hands to keep him alive. As time went on, we came to know the wonderful doctors, nurses, and staff who cared for him.

Today, Liam is thriving. We return to Vanderbilt for yearly cardiology appointments. He has a G-tube and sees GI and a dietitian at Erlanger. He also sees a developmental pediatrician and specialists in urology and pulmonology, and takes part in speech and occupational therapy.

He doesn’t have a pulmonary valve right now, and the right side of his heart is moderately depressed, so we continue to monitor him. We’re planning a cardiac MRI in the spring to see whether he’ll need an intervention. For now, he is happy, stable, and such a joy to be around.

There’s so much more I could share. I feel like I could write a book, but I hope this gives you a glimpse into Liam’s strength and story. We are incredibly proud of him and deeply grateful he is here with us. We pray constantly over his little body and his future.🐝🫶🏼💛

Address

4191 Arno Road
Franklin, TN
37064

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