Moyamoya Foundation

09/18/2026

We’re almost there! 🌎

The Global Moyamoya Patient Registry has reached 493 registrants across 24+ countries!

Help us reach 500. If you’re a Moyamoya patient and haven’t joined yet, now is the time.

You are the expert on your own Moyamoya journey—share your experience and help advance research.

Enroll today! http://bit.ly/2hrrjlS

09/16/2026

FINAL REGISTRATION REMINDER: Invitation to Moyamoya Family Day

Dear Moyamoya Community,

This is a friendly reminder to register for The Neurovascular Family Education Day on Moyamoya Disease by Friday September 18 at 12pm ET.

This free, hybrid event (available both in-person at AND online) will provide families with important information about moyamoya

Date: Saturday September 19, 2026 9:00am-2:00pm ET.

Location for IN-PERSON Attendees: Patient Support Centre (4th Floor), Hospital for Sick Children, 175 Elizabeth St Toronto, ON M5G 2G3.

For ONLINE Attendees: A link will be provided when you register online.

Registration for BOTH In-person AND Online Attendees: Sickkids Neurovascular Education Day 2026 - Moyamoya Disease (https://sickkids.cventevents.com/event/Moyamoya/summary).

We hope you register for this informative event. Please feel free to reach out to us with any questions.

Best,
Moyamoya Foundation

09/08/2026

REGISTER TODAY: MOYAMOYA FAMILY DAY!

This is a friendly reminder of an important free, hybrid event (available both in-person AND online) for you and your family about moyamoya.

The Neurovascular Family Education Day on Moyamoya Disease is being hosted by experts at the Hospital for Sick Children. There will be discussions and information about what a moyamoya diagnosis involves, treatment planning, management, research advances, and question and answer session, and more.

Date: Saturday September 19, 2026 9:00am-2:00pm ET.

Location for IN-PERSON Attendees: Patient Support Centre (4th Floor), Hospital for Sick Children, 175 Elizabeth St Toronto, ON M5G 2G3.

For ONLINE Attendees: A link will be provided when you register online.

Registration for BOTH In-person AND Online Attendees: https://sickkids.cventevents.com/event/Moyamoya/summary.

We hope you register for this informative event. Please feel free to reach out to us with any questions.

Best,
Moyamoya Foundation

08/15/2026

Connect & Learn - Neurovascular Family Education Day on Moyamoya at the Hospital for Sick Children - Saturday, Sept 19 from 9:00am - 2:00pm.

Please note: You can attend IN-PERSON or ONLINE (for those who cannot attend in-person).

UPDATE: Register for In-person or Online/Virtual attendance: https://sickkids.cventevents.com/event/Moyamoya/summary or Scan the QRCode

08/03/2026

Researchers at The University Medical Center Utrecht in Utrecht, Netherlands are asking moyamoya community members to complete a short survey to understand the experiences of people with moyamoya and ask which questions future research should prioritize. Responses are anonymous. They may be summarized for a grant application, but they will not be used for formal scientific analysis or reported in a publication.
 
https://docs.google.com/forms/d/e/1FAIpQLSeZGJRQn1_s6nj-7NOD-w_ppABBYEzvMWWsqNETa9GQT20pOQ/viewform
 
Submissions will be accepted until August 31, 2026.

08/03/2026

Researchers at The University Medical Center Utrecht in Utrecht, Netherlands are asking moyamoya community members to complete a short survey to understand the experiences of people with moyamoya and ask which questions future research should prioritize. Responses are anonymous. They may be summarized for a grant application, but they will not be used for formal scientific analysis or reported in a publication.

https://docs.google.com/forms/d/e/1FAIpQLSeZGJRQn1_s6nj-7NOD-w_ppABBYEzvMWWsqNETa9GQT20pOQ/viewform

Submissions will be accepted until August 31, 2026.

Why are we asking these questions? This short questionnaire is intended to help shape a grant proposal. It will not be used as an outcome measure during the research project. We want to understand both what people experience and which questions future research should address. Responses may be summar...

07/22/2026

Today is .

Despite the tremendous strides made toward understanding the brain, there is so much for to learn. The World Federation of Neurology estimates that more than 3.4 billion people live with a neurological condition globally, the leading cause of disability worldwide. At the Moyamoya Foundation, we stand with individuals and families affected by moyamoya disease and reaffirm our commitment to advancing awareness, education, research, and support.



Learn more about World Brain Day: https://lnkd.in/eSAwfWtu

07/15/2026

Families in Ontario: Graduate students at the University of Toronto are conducting research to understand the transition from hospital to community care for children who have experienced a stroke in Ontario. If you are interested in learning more about this research or sharing your experience with pediatric stroke, please contact [email protected] to learn more.

07/10/2026

SAVE THE DATE - Neurovascular Family Education Day on Moyamoya at the Hospital for Sick Children - Saturday, Sept 19 from 9:00am - 2:00pm

Register for in-person or virtual attendance: https://sickkids.cventevents.com/event/Moyamoya/summary or Scan the QRCode

05/28/2026

Please take a moment to complete this survey and support researchers as they advance to the next phase of their study.

The survey can be accessed by coping and pasting in to a web browser: https://duke.qualtrics.com/jfe/form/SV_bpATiJod5lr9wTY.