Dysautonomia International

Dysautonomia International Over 70 million people live with a form of dysautonomia. Learn more...

Dysautonomia International funds medical research, clinician education, public awareness, patient empowerment and advocacy programs to improve the lives of over 70 million people worldwide living with autonomic nervous system disorders.

Check out the lineup of top-notch dysautonomia experts and exciting research updates that will be presented during Dysau...
06/17/2026

Check out the lineup of top-notch dysautonomia experts and exciting research updates that will be presented during Dysautonomia International's 14th Annual Conference, July 9th-12th in Houston! Online and in person registration is available at DysConf.org.

Our conference is the largest annual conference on autonomic disorders and it's open to patients, caregivers and medical professionals. Continuing education credits are available for many of the livestream and in person sessions for medical professionals seeking course credits.

All registration levels will receive access to the recorded sessions after the conference.

Details and registration at DysConf.org.

Let's talk about P**P! đź’© Join us at 7PM Eastern this evening for a webinar with Dr. Trisha Pasricha, Harvard gastroenter...
06/10/2026

Let's talk about P**P! đź’© Join us at 7PM Eastern this evening for a webinar with Dr. Trisha Pasricha, Harvard gastroenterologist and author of a best selling new book, You've Been Pooping All Wrong, which brings serious science and good humor to a topic most people don't want to talk about. We'll discuss GI dysmotility, healthy bowel habits, and the latest research on gut health, followed by a Q&A session with the audience.

Register for free at https://bit.ly/PoopWebinar

Can't join us live? You can register for the webinar to receive a copy of the recording a few weeks after the live broadcast.

06/09/2026

Register at DysConf.org

Check out the outstanding line up of speakers presenting at Dysautonomia International's 14th Annual Conference in Houst...
06/09/2026

Check out the outstanding line up of speakers presenting at Dysautonomia International's 14th Annual Conference in Houston, July 9-12, 2026! Join us for the latest research updates, treatment approaches, policy discussions, networking activities and dysautonomia-friendly social activites. Register at DysConf.org.

In person registration is likely to sell out, so we recommend registering soon! Livestream registration is available too. All registration levels will receive access to the recordings after the event.

This conference is intended for patients, caregivers, clinicians, researchers. Learn more at DysConf.org.

There is a new case report from Penn State researchers on a mother and 2 children with POTS/dysautonomia and NOD2 geneti...
06/07/2026

There is a new case report from Penn State researchers on a mother and 2 children with POTS/dysautonomia and NOD2 genetic variants associated with Yao syndrome. The children had also been diagnosed with EDS and MCAS. You can read the case report at https://www.sciencedirect.com/science/article/pii/S2352512626003334

Yao syndrome is an autoinflamatory disorder associated with NOD2 genetic variants. But importantly, the genetic finding alone is not enough to diagnose the disease.

We are seeing a small but growing number of patients being diagnosed with Yao syndrome on our dysautonomia support groups as awareness of the diagnosis is growing.

To learn more about Yao syndrome, you can check out this comprehensive overview published by Dr. Yao and colleagues: https://pmc.ncbi.nlm.nih.gov/articles/PMC11449693/

And this paper which clearly lays out the diagnostic criteria for Yao syndrome:
https://pmc.ncbi.nlm.nih.gov/articles/PMC10139879

Thank you so much to everyone who participated in The Race to Beat POTS this weekend in Pennsylvania! As of this morning...
06/02/2026

Thank you so much to everyone who participated in The Race to Beat POTS this weekend in Pennsylvania! As of this morning, the event raised $62,398.55 to support Dysautonomia International’s POTS research, education and advocacy programs. You can still donate at racetobeatpots.org until the end of June.

The “Most Funds Raised by a Team” prize went to Team McGeehan, which raised an incredible $12,825. The “Most Funds Raised by an Individual” prize went to Larsen Houck, who raised an impressive $3,070. The “Make Noise for Turquoise” costume contest winner was Penny Trecker.

We are grateful to and Gone To POTS for being our Finish Line Sponsors, and all of the other event sponsors and donors.

And of course, shout out to the volunteer families who organize this wonderful event each year, Team Hearts for Harten and Team Kulp! They are the tachycardic heart and soul of this event. đź’™

If you’d like to organize a fundraising event in your area to raise awareness about POTS or other autonomic disorders, please reach out to [email protected]. We’d love to work with you to raise awareness and funds in your community!

Thank you so much to everyone who participated in The Race to Beat POTS this weekend in Pennsylvania! As of this morning...
06/02/2026

Thank you so much to everyone who participated in The Race to Beat POTS this weekend in Pennsylvania! As of this morning, the event raised $62,398.55 to support Dysautonomia International's POTS research, education and advocacy programs. You can still donate at racetobeatpots.org until the end of June.

The "Most Funds Raised by a Team" prize went to Team McGeehan, which raised an incredible $12,825. The
"Most Funds Raised by an Individual" prize went to Larsen Houck, who raised an impressive $3,070. The "Make Noise for Turquoise" costume contest winner was Penny Trecker.

We are grateful to Vitassium and Gone To POTS for being our Finish Line Sponsors, and all of the other event sponsors and donors.

And of course, shout out to the volunteer families who organize this wonderful event each year, Team Hearts for Harten and Team Kulp! They are the tachycardic heart and soul of this event. đź’™

If you'd like to organize a fundraising event in your area to raise awareness about POTS or other autonomic disorders, please reach out to [email protected]. We'd love to work with you to raise awareness and funds in your community!

Don't miss the 11th Annual Race to Beat POTS this Sunday in West Chester, PA! Attend in person or donate online to suppo...
05/27/2026

Don't miss the 11th Annual Race to Beat POTS this Sunday in West Chester, PA! Attend in person or donate online to support the cause. All funds raised support Dysautonomia International's POTS research, education, and advocacy programs.

The Race to Beat POTS has already raised over $47,000 this year. We'd love to help the organizers (volunteer POTS patients and caregivers who do an amazing job organizing this event very year!) smash their goal and raise $55,000 by the end of the weekend!

Walking, running, or wheelchair rolling the race is completely optional and many families join us for a relaxing day in the park, connecting with the community and enjoying live music by Beg, Borrow and Steel.

Register, donate, or learn more at racetobeatpots.org

05/26/2026

When Diploma Duck knows more about POTS than your doctor…

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East Moriches, NY

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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+16312021720

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