Dysautonomia International

11/01/2026

Shout out to our friends at POTS and Dysautonomia Japan for their work raising awareness about POTS and OI in Japan during Dysautonomia Awareness Month and throughout the year!

10/30/2026

Much thanks to the New York Stock Exchange for helpings us during Month!

Dysautonomia International's work shining a light on dysautonomia in the business world has led to more business leaders and investors being aware of the unmet needs of our patient community, which is needed to encourage major financial investments needed to develop new treatment approaches. We've seen an increase in the number of businesses taking an interest in developing new treatment approaches for autonomic disorders, which is so needed!

10/26/2026

Join us on Tuesday, Oct 27th for a free accredited Continuing Medical Education Zoom webinar on autonomic failure presented by NIH autonomic lab director Dr. David Goldstein. bit.ly/CMEAUTONOMICFAILURE

Dr. Goldstein will present an overview of how to diagnose and treat autonomic failure, as well as the latest research updates. He'll take questions from the audience after the presentation.
Licensed medical professionals will be eligible for one free AMA PRA Category 1 credit after they attend the live broadcast. This webinar is jointly accredited by Dysautonomia International and the Postgraduate Institute for Medicine. Patients and caregivers are welcome to attend too.

We encourage patients to invite their doctors and other medical professionals!

Webinar Topic: Overview of Autonomic Failure in Multiple System Atrophy, Pure Autonomic Failure, and Parkinson's Disease
Speaker: David Goldstein, MD, PhD, National Institute of Neurologic Disorders and Stroke
When: Oct 27, 7-8pm Eastern
Cost: Free!
Register: bit.ly/CMEAUTONOMICFAILURE

If you can't tune in for the live broadcast, you can still register to receive a copy of the recording a few weeks after the live broadcast. Please note, CME credit is only available for watching the live broadcast.

10/23/2026

The Boston POTS Walk is tomorrow, Saturday, October 24th! The festivities start at Noon at Jamaica Pond Park Bandstand in Boston, Massachusetts. Same day registrations welcome ($40 per person). You can run/walk/wheelchair roll the course or hang out at the bandstand to connect with fellow patients and participate in seated games, crafting and more. All proceeds benefit Dysautonomia International's POTS research, education and patient support programs. Details below and at potswalk.org/boston

SCHEDULE OF ACTIVITIES
12:00 PM - 1:00pm: Check-in
12:00 PM: Activities open: silent auction, jumbo lawn games, patient meetup, crafting
12:40 PM: Pre-walk meditation and breathing class from The Sadhguru Center for a Conscious Planet
12:50 PM: Pre-walk stretch led by MotionMindFlow
1:00 PM: Welcome remarks
1:10 PM: Group photo
1:15 PM: POTS Walk kickoff at the starting line
2:00 PM: Post-walk meditation and breathing class
2:15 PM: Silent auction closes, awards ceremony and closing remarks
2:30 PM: Silent auction checkout
3:00 PM: End of Event - feel free to hang out in the park after the event with new POTS and dysautonomia friends!

LOCATION
The event will take place at The Jamaica Pond Bandstand located at 507 Jamaicaway, Boston, MA 02130, at the intersection of Jamaicaway and Pond St.

PARKING & TRANSPORTATION
This event is a 15min walk from the Orange line train (Green St. Station), 3min walk from the 39 bus (Centre St & Saint John St stop).

Jamaica Pond does not have on-site parking close to the bandstand. We encourage attendees to use public transportation or Uber/Lyft when possible. If driving to the event, please arrive early to give yourself time to find parking nearby. The bandstand is located near the intersection of Jamaicaway and Pond Street. There is a small lot nearby at 11 Thomas Street, Jamaica Plain (City of Boston lot #6). You may be able to find parking on some nearby streets such as Green St., Seaverns Ave., Rockview St. and Lochstead Ave.

BATHROOMS
Bathrooms will be available inside the boathouse.

CHECK IN
Registration opens at 12:00 PM. The event kickoff will start at 1:00 PM. We suggest you come early (anytime after 12 PM) to pick-up your bag and t-shirt (for those that registered by October 14th) at the registration desk, and to avoid any wait. If you have friends who would like to join the event who haven't registered yet, we welcome same day registrations at the event.

ROUTE
For those who would like to walk/run/wheelchair roll the paved course, we will make a loop around Jamaica Pond starting and ending at Jamaica Pond Bandstand. You can do one loop, which is 1.5 miles, or 2 loops to complete the 5k. Top finisher medals will be awarded to the first three adults and first person under age 18 to complete the 5k. If you don't plan to walk around the pond, we invite you to hang out around the finish line where we will have jumbo yard games, crafts, snacks and a silent auction.

AWARDS CEREMONY
The awards ceremony will be held after the walk, at roughly 2:15 PM. Along with awarding prizes to the top finishers, we will also give prizes to the top individual fundraiser, top fundraising team and person with the best "Make Noise For Turquoise" outfit. We can't wait to see what you wear!

SILENT AUCTION
Silent auction items include a variety of items from great companies like Tres Gatos, JP Licks, The Cheesecake Factory, Le Lick Pops, Playa Bowls, Life Alive, Juicygreens, Lauren's Hope Medical ID Jewelry, The Boston Red Sox and many more! We will also have several themed baskets like Movie Night, Salt Lovers, Gluten Free Sweet Treats, Self Care and more! The auction will close around 2:15pm. You must be on-site to collect your item and pay for your bid. You can pay by cash or card.

REFRESHMENTS & SEATING
Salty snacks and water will be provided, but we strongly suggest you bring a filled water bottle too. There is a water fountain on site. Playa Bowls will be providing mini acai bowls for all attendees. There will be benches and chairs at the event. If you'd like to bring lawn chairs or a picnic blanket to relax on, you are welcome to do so.

We can't wait to see everyone there to during !

10/22/2026

Pittsburgh Penguins forward Ben Kindel experienced a loss of consciusness due to vasovagal syncope on a flight yesterday.

Vasovagal syncope is the most common type of dysautonomia, impacting about 1 in 5 humans - 20% of the global population. For many people, vasovagal syncope may be a one time fainting episode, but for others, it may be a chronic fainting disorder that can be quite disabling causing frequent fainting episodes.

Share this story to raise awareness during Month.

Ben Kindel was hospitalized in Utah and has since returned to Pittsburgh.

10/20/2026

Patients, caregivers, clinicians and the public are invited to join Dysautonomia International on Oct 22nd for a free accredited Continuing Medical Education Zoom webinar on postural orthostatic tachycardia syndrome (POTS) presented by leading POTS expert Dr. Satish Raj.

Register for free at bit.ly/CMEPOTS

Dr. Raj will present an overview of how to diagnose and treat POTS, as well as the latest research updates. He'll take questions from the audience after the presentation.

Licensed medical professionals will be eligible for one free AMA PRA Category 1 credit after they attend the live broadcast. This webinar is jointly accredited by Dysautonomia International and the Postgraduate Institute for Medicine.

We encourage patients to invite their doctors and other medical professionals!

Webinar Topic: 2026 Updates: Diagnosis & Management of POTS
Speaker: Satish Raj, MD, MSCI, Professor of Cardiac Sciences, University of Calgary
When: Oct 22, 6-7pm Eastern
Cost: Free!
Register: bit.ly/CMEPOTS

If you can't tune in for the live broadcast, you can still register to receive a copy of the recording after the live broadcast. Please note, CME credit is only available for watching the live broadcast.

Patients, caregivers, clinicians and the public are invited to join Dysautonomia International on Oct 22nd for a free accredited Continuing Medical Education Zoom webinar on postural orthostatic tachycardia syndrome (POTS) presented by leading POTS expert Dr. Satish Raj.

Dr. Raj will present an overview of how to diagnose and treat POTS, as well as the latest research updates. He'll take questions from the audience after the presentation.

Licensed medical professionals will be eligible for one free AMA PRA Category 1 credit after they attend the live broadcast. This webinar is jointly accredited by Dysautonomia International and the Postgraduate Institute for Medicine.

We encourage patients to invite their doctors and other medical professionals!

Webinar Topic: 2026 Updates: Diagnosis & Management of POTS
Speaker: Satish Raj, MD, MSCI, Professor of Cardiac Sciences, University of Calgary
When: Oct 22, 6-7pm Eastern
Cost: Free!
Register: bit.ly/CMEPOTS

If you can't tune in for the live broadcast, you can still register to receive a copy of the recording after the live broadcast. Please note, CME credit is only available for watching the live broadcast.

10/12/2026

10/12/2026

Dysautonomia International invites medical professionals and patients to attend a free Continuing Medical Education (CME) webinar, "Sjogren's, Autoimmune Autonomic Ganglionopathy & Other Autoimmune Dysautonomias," presented by Case Western autonomic neurologist Dr. Kamal Chémali on Monday, December 14th from 7:00-8:00PM Eastern.

Licensed medical professionals who participate in the webinar will be eligible for one (1) AMA PRA Category 1 credit.

Register for free at bit.ly/CMEAutoimmuneDys

Can't join live? You can register for the webinar to receive a recording of the presentation a few weeks after the live broadcast. Please note, CME credit is not available for viewing the webinar recording, only the live broadcast.

Patients... please invite your doctors and other medical professionals to this webinar offering free CME credit!

10/09/2026

Much thanks to The University of Toledo for raising awareness about POTS during !

Dysautonomia International Medical Advisory Board member Dr. Grubb recently joined with other leading POTS experts to publish a Call to Action in the largest cardiology journal, calling on fellow cardiologists to do better for the POTS community.

Dr. Blair Grubb says a simple active stand test could help physicians identify a condition that often hides during routine cardiac testing.

10/09/2026

Join us for the Boston POTS Walk, in person or virtually, on October 24th! Register by Oct 14th for a POTS Walk t-shirt. Create a team if you'd like to do so. Details at potswalk.org/boston All proceeds support Dysautonomia International's POTS Research Fund.

All donations will be matched, up to $150,000, during Dysautonomia Awareness Month this October, DOUBLING the impact of your contribution and fundraising efforts!

The Boston POTS Walk will take place at Jamaica Pond Park in Boston on Sunday, October 24th.  Join us as we come together as a community to raise funds for Dysautonomia International's POTS Research Fund. Invite your friends and family out for a fun day. Run, walk, or roll a 5K or 1 mile loop durin...