NKH - Tucker's Titans

NKH - Tucker's Titans This is a very rare metabolic condition that affects only about 500 kids worldwide.

Tucker's Titans is a fundraising campaign dedicated to raising awareness and help fund research for the treatment and cure for NKH (Nonketotic Hyperglycinemia).

07/30/2026

Tucker’s Titans was able to help because of everyone who has donated to us and followed Tucker’s story. This is just the beginning and we are going to continue to need support. Thank to everyone that has helped us this far!

Please consider donating to help our kids
07/10/2026

Please consider donating to help our kids

NKH Crusaders exists to serve families affected by Nonketotic Hyperglycinemia at every stage of their journey. From the moment of diagnosis through long-term care, families face complex medical decisions, financial strain, and emotional isolation tha

07/09/2026

We have a WALKER!

04/27/2026

is coming up, so we’ll be posting facts all this week. What is Nonketotic Hyperglycaemia (NKH)? It’s a terminal neurometabolic disorder. Something no parent wishes to hear about, or wish their child had. NKH is a rare disorder which affects the brain and central nervous system. Children with NKH are not able to process glycine (an amino acid).

Children with NKH have a ‘Glycine Cleavage System’ (GCS) that does not work properly. This stops them from being able to process glycine correctly, causing a toxic level of glycine and a low supply of one-carbon folate molecules.

Glycine is important for our bodies in several ways. It is a chemical messenger, which means that it carries messages between the nerve cells in the body and the brain. Chemical messengers help regulation of bodily functions - including breathing, digestion and moving muscles - by creating or stopping an electric signal. Glycine also contributes to other molecules that are used in our metabolism - in particular, a one folate carbon molecule.

Toxic levels of glycine in the brain and central nervous cause profound disability, an have knock on effects across the whole body.⁠ NKH is a brutal disorder.
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May 2nd is NKH Awareness Day - we’re asking instead of your daily flat white, please swap your coffee today for a donation towards NKH Research. Please. Please donate. £3. £5. £15. Whatever you are able.

Donate now: justgiving.com/page/nkhawarenessday2026
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