Hope for Hearts

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Hope for Hearts Hope for Hearts is dedicated to raising awareness
and providing support for children and families affected by congenital heart defects.

October is Infant and Child Loss Awareness Month This month, we are remembering the babies and children who are forever ...
10/02/2026

October is Infant and Child Loss Awareness Month

This month, we are remembering the babies and children who are forever loved and never forgotten. Their names deserve to be spoken. Their lives deserve to be honored.

We want to remember your heart angels by name.

If you have lost a baby or child, we invite you to leave their name in the comments below. On October 15th, International Wave of Light Day, Hope for Hearts will light a candle for each heart angel whose name is shared with us.

At 7:00 p.m. local time, candles will be lit around the world in remembrance of the babies and children who are no longer in our arms but forever in our hearts.

Please share their name with us so we can say their name, light their candle, and honor their life.

Because every child deserves to be remembered.

🩵 Hannah’s Gift of Hope: 2 Month Old Girl🩵This sweet 2-month-old heart warrior is facing an incredibly difficult heart j...
09/30/2026

🩵 Hannah’s Gift of Hope: 2 Month Old Girl🩵

This sweet 2-month-old heart warrior is facing an incredibly difficult heart journey, and her mom has been by her side every step of the way.

She is currently in the hospital as her medical team prepares for the next step in her journey: a ventricular assist device (VAD), which will serve as a bridge to heart transplant.

For her mom, being separated from her baby is not an option. She is at her daughter’s bedside every day, watching the monitors, learning every beep and alarm, and making sure her little girl is receiving the care she needs.

Her medical team has encouraged Mom to take some time outside of the hospital, but as any heart parent knows, stepping away from your child can feel nearly impossible. Even when you know the nurses and doctors are doing everything they can, there is something about being a few feet away from your baby that makes it difficult to leave.

Her mom shared:
“This journey has been very challenging, seeing her like this at the hospital and having multiple procedures and wires attached to her. Luckily I have some family support, but it does get hard when I’m here alone. She has a long way to go as she is working her way to be listed on the heart transplant list.”

Their family is no stranger to the transplant journey. Her dad was a transplant recipient himself a few years ago, so they understand firsthand the uncertainty, waiting, and hope that comes with transplantation. However, because of work, it can be difficult for him to be at the hospital alongside Mom as often as they would like.

So Mom continues to show up.

Day after day.

She waits, she watches, she advocates, and she hopes.

She dreams of the day she gets to see her baby outside of the hospital and bring her home.

This little girl has a long road ahead. After her VAD surgery, she will continue working toward heart transplant listing, then face the wait for a donor heart and the recovery that follows.

Through all of the uncertainty, her mom continues to be her biggest advocate and her constant source of comfort.

Her mom shared:
“I appreciate the opportunity to be able to receive some support during this challenging time.” Thank you so much for seeing me and noticing me. I appreciate you so much!” -2 Month Old's Family

Keep fighting, sweet girl. We are cheering you on as you take each step toward your hero heart.

Today, on World Heart Day, we are thinking about all of the hearts that have changed our lives.The tiny hearts that figh...
09/29/2026

Today, on World Heart Day, we are thinking about all of the hearts that have changed our lives.

The tiny hearts that fight through surgeries and hospital stays.

The hearts that keep going while waiting for a transplant.

The hearts that belong to children who never had the chance to grow up.

And the hearts of the families who love them through every step.

Today, we celebrate those hearts while continuing Hannah’s legacy through research.

Our partnership with Dr. Paul Grossfeld and his research team at Rady Children’s Hospital gives us a way to support ongoing research focused on Hypoplastic Left Heart Syndrome (HLHS).

Hannah’s life may have been far too short, but her impact doesn’t have to be.

By supporting research in her honor, we hope to help create a future with more answers, better treatments, and more hope for children born with HLHS.

🩵 Today, we celebrate hearts. Today, we continue Hannah’s legacy.

https://fundraise.radyfoundation.org/miracle-makers/100-for-hannah #

HeartResearch

🩵 Hannah’s Gift of Hope: Levi 🩵Levi is just six weeks old, but his little heart has already been through more than most ...
09/28/2026

🩵 Hannah’s Gift of Hope: Levi 🩵

Levi is just six weeks old, but his little heart has already been through more than most of us could ever imagine.

Levi was born with Hypoplastic Left Heart Syndrome (HLHS) and is currently receiving care away from home as his family navigates the uncertainty that comes with a serious congenital heart diagnosis. His mom has been by his bedside every day, advocating for her son, asking questions, and doing everything she can to make sure he receives the care he needs.

But this journey has been made even more difficult by an unimaginable loss. When Levi was just two weeks old, his father unexpectedly passed away. In the midst of becoming a new heart mom, his mom also became a widow, all while caring for Levi and his 13-month-old sibling.

She has been carrying the weight of grief, motherhood, and her son’s complex medical journey all at once. Levi’s family traveled from two hours away to seek the care they felt would give him the best chance with his diagnosis. Being away from home has meant relying on family to help when they can, while also trying to maintain life outside of the hospital.

His mom has not yet been able to return to work, and for now, she is doing everything she can to care for her two babies while navigating what comes next.

She shared:
“Hope for Hearts has helped my family by giving me a chance to focus on my children during the most difficult time I have ever faced. Thank you so much, because of your generosity I am able to focus on navigating my 13 month old and 6 week old as a new heart mom and new widow. I’m so thankful for your heart of Gold!"

Because of your generosity,Hope for Hearts was able to provide financial support to this family during an incredibly difficult time.

Sometimes, financial assistance does more than help with bills. Sometimes it gives a mother a moment to breathe. It gives a family the ability to focus on their children instead of worrying about how they will make everything work.

Families facing congenital heart disease are already carrying more than anyone should have to carry. When unexpected circumstances add even more weight, we want them to know they do not have to face it completely alone.

We may not be able to change Levi’s diagnosis or take away the heartbreak his family is experiencing, but we can help lighten the load.

Keep fighting, sweet Levi. We are cheering you on every step of the way. 🩵

🩵 Hannah’s Gift of Hope: Janearae 🩵Janearae is a heart warrior who is currently facing one of the biggest battles of her...
09/27/2026

🩵 Hannah’s Gift of Hope: Janearae 🩵

Janearae is a heart warrior who is currently facing one of the biggest battles of her life.

Janearae was born with Hypoplastic Left Heart Syndrome (HLHS) and has undergone multiple surgeries throughout her life. After completing her Fontan palliation, she experienced significant complications, including tricuspid valve dysfunction that required a valve replacement, pacemaker placement, and stent placement.

More recently, Janearae began experiencing progressive symptoms of heart failure and was transferred to a children’s hospital where she could be evaluated for a heart transplant.

After evaluation, Janearae was listed for a heart transplant.

For now, she will remain inpatient while she waits for an appropriate donor heart to become available.

Her mom, Loretta, is staying by her side during this admission and is staying at a Ronald McDonald House nearby. Being states away from home has created another difficult challenge for their family as they try to manage life between their home state and the city where Janearae is receiving care. While their focus is where it belongs, at Janearae’s bedside, household expenses and the costs of maintaining life back home do not stop.

Her family shared:
"Thank you so much for the support. It means a great deal to our family."

We know that financial support cannot change the uncertainty of waiting for a donor heart, but it can help ease some of the burden that comes with being far from home for an extended hospital stay.

Keep fighting, Janearae. We are cheering you on and holding your family in our hearts as you wait. 🩵

🩵 Hannah’s Gift of Hope: Paisley Mae 🩵Paisley Mae is a little heart warrior who has already overcome so much in her shor...
09/26/2026

🩵 Hannah’s Gift of Hope: Paisley Mae 🩵

Paisley Mae is a little heart warrior who has already overcome so much in her short three months of life. Born with Heterotaxy Syndrome and complex congenital heart disease, Paisley’s journey began before she was even born.

At just three days old, Paisley underwent her first open-heart surgery. She made it through her surgery and began making remarkable progress, including working toward feeds and weaning from oxygen.

Paisley was born with single ventricle physiology, an unbalanced AV canal, and total anomalous pulmonary venous return (TAPVR), along with Heterotaxy Syndrome. Her heart journey will require multiple surgeries to help her heart function as well as possible.

Now, at four months old, Paisley has spent almost every day of her life in the hospital.

Her family has been by her side through every procedure, setback, and milestone. They are also balancing life two hours away from home, caring for their 4-year-old son and trying to keep up with the bills and responsibilities at home while making sure they can continue to be present for Paisley.It has been an incredibly difficult road, but Paisley continues to show just how strong she is.

Her parents recently shared that Paisley has made some exciting progress. She has been weaned on her respiratory support, has started working on oral feeds again. She has also made progress following two scares with necrotizing colitis related to fortification.

And look at how far this little girl has come.

For their family, being there for Paisley every day has meant balancing an extended hospital stay with raising their son, maintaining their home two hours away, and keeping up with bills that continue to pile up.

“Hope For Hearts has filled our hearts with joy and hope. We are truly grateful and are lost for words. We really thank you for making us feel seen and heard and most importantly understood. Thank you for allowing us to have a glimpse of peace of mind in taking care of some of our financial burdens and allowing us to be there 110% for our little heart warrior.”
-Paisley's Family

This is why Hannah’s Gift of Hope exists.

Families facing congenital heart disease should not have to choose between being at their child’s bedside and keeping up with the financial responsibilities waiting for them at home.

We may not be able to change Paisley’s diagnosis or take away the long road ahead, but we can remind her family that they are not alone

Please join us in sending love, strength, and continued hope to Paisley, her parents, and her big brother as they continue this journey.

Keep fighting, sweet Paisley Mae. Your little heart has already shown the world just how strong you are.

You don’t have to navigate this journey alone.Whether you’re newly diagnosed, in the middle of a hospital stay, preparin...
09/23/2026

You don’t have to navigate this journey alone.

Whether you’re newly diagnosed, in the middle of a hospital stay, preparing for surgery, living life after transplant, or simply having a hard day, our Hope for Hearts Parent Support Group is a space for parents to connect with others who understand.

We know that sometimes you don’t need advice. You just need someone who *gets it*. A place to talk, listen, ask questions, share the hard moments, celebrate the good ones, or simply show up as you are.

Our virtual parent support group meets on September 23rd at 4:30PM CST.

This group is open to parents and caregivers of children affected by congenital heart defects and transplants. You can join from wherever you are, whether you're at home, in the hospital, or somewhere in between.

Google Meet joining info
Video call link: https://buff.ly/bIEmEwP
Or dial: (US) +1 475-221-6312 PIN: 143 594 044 #
More phone numbers: https://buff.ly/vgIPcu3

đź’™ A NEW WAY TO GIVE HOPE FOR HANNAH đź’™Since starting Hope for Hearts, we have heard the same question from so many famili...
09/16/2026

đź’™ A NEW WAY TO GIVE HOPE FOR HANNAH đź’™

Since starting Hope for Hearts, we have heard the same question from so many families, friends, and supporters: “Is there a direct way we can support HLHS research?”

We are so excited to finally be able to say, YES!

We are honored to announce our partnership with Paul Grossfeld, MD, and his ongoing research focused on Hypoplastic Left Heart Syndrome (HLHS). Through this partnership, there is now a direct way for you to support HLHS research in Hannah’s honor, and 100% of donations made through this effort will go directly toward research.

When we lost Hannah, we knew we wanted her life to continue making a difference. We wanted her story to help other families, and we wanted her legacy to contribute to a future where children born with HLHS have more answers, better treatments, and more hope than we had.

This partnership is one way we can help make that future possible.

So, in honor of Hannah, we are launching the $100 for Hannah Challenge in partnership with Rady Children's Hospital.

Hannah was one of the 1 in 100 babies born with congenital heart disease. Our goal is to raise $10,000 for Hannah to support research dedicated to understanding HLHS and creating better futures for children born with this diagnosis.

Maybe you can give $100. Maybe you can give $10. Or maybe you can share Hannah’s story with someone who can. Whatever you are able to give, you are helping turn Hannah’s legacy into hope for generations to come.

One mission: a future with more answers, better treatments, and more hope for children with HLHS and a world where fewer families hear the words "your baby has a heart defect."

Thank you for helping us give Hannah’s life a purpose that reaches far beyond what we ever could have imagined.

Donate here: https://buff.ly/ri3TYAk

Thank you to everyone who walked for Team Hannah today! We had so much fun raising awareness and funds for The Children’...
09/14/2026

Thank you to everyone who walked for Team Hannah today! We had so much fun raising awareness and funds for The Children’s Heart Foundation! Our free tshirt went to Angelia Lane!

09/12/2026

Come join us at the Sioux Falls Sidewalk Arts Festival. We are located at booth 134 in downtown Sioux Falls,SD from 9:00 AM to 5:00 PM. We hope to see you here! Register for your chance to win a free t-shirt

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Po Box 32
Dell Rapids, SD
57022

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