Duchenne Warriors Foundation

06/18/2025

This is the Drug Trial Noah is currently involved in!!!

05/29/2025

Help us raise money for Duchenne muscular dystrophy.
We have a Silent Auction & Raffke drawing going on until SATURDAY MAY 31.

https://givebutter.com/c/c3VRiY/auction

Bid & Buy Raffle tickets to support the Cause!!

https://givebutter.com/dO9fT3

We need everyone to share this cause with your friends, Family, and community.

PLEASE consider sharing on your page to help us raise funds.!!!

Delaware Golf Club Foursome

05/22/2025

we need your help and support. We have an exciting events going on. IN addition to our 7th Annual RunOutDuchenne 5K run/walk on May 31 @ 0830. New for this year we have a SILENT AUCTION hosted online. We have 11 different donated Baskets/items from local businesses. Register and Bid on Auction Items on our Website. www.duchennewarriors.org

LET THE BIDDING BEGIN!!!!

https://givebutter.com/c/c3VRiY/auction

07/22/2024

Dear Lord we are constantly reminded your are driving the car (not us). We trust your direction for . Noah had Femoral fracture surgery for stability. Duchenne Muscular Dystrophy impacts all the boys bodies and impacts our entire family. We pray that modern medicine will find a cure. We ask that Family & Friends pray for healing. Help us by joining our fight for a cure and raising awareness.

07/02/2024

Day 63 Jacob Jarvis Update (9 weeks)
Jacob had hiccup, spiked fever -> PICU 2 days. Since Sunday Jacob is back to pulmonary room. He is eating foods & using “Sipping” ventilator during the day. 🙏 Jacob be discharged this week.
Following God’s plan for Jacob & our family.

07/02/2024

Day 63 Jacob Jarvis Update (9 weeks)
Jacob had hiccup last week, spiked fever a day sent to PICU for 2 days. Since Sunday Jacob is back to pulmonary room. He is eating normal foods & using "Sipping" ventilator during the day. 🙏 Jacob be discharged this week.
Following God's plan for Jacob & our family.

06/28/2024

Jacob Jarvis Update day 59. Jacob has now gone 19 days without Breathing Tube!!!

Wednesday morning Jacob successfully passed his radiology Swallow exam.
So this meant that Jacob was able to open up his food intake to almost any food. Just small bites and fluids between bites.
Today Jacob had his Feeding Tube removed which means they feel that Jacob can maintain his own supply of nutrition.
The current plan is to be discharged from Hospital early next week.
God continues to lead us. Jesus took the Wheel. But we like the direction he is taking Jacob’s Health. Praise be the Almighty.

06/25/2024

Day 56 Jacob Jarvis Update:
Jacob is improving and healing well. He is out of bed 8+hrs per day. He needs minimal vent support during day. We’re blessed and have strong faith in God’s plan. Swallow tests remain. Getting close to discharge. Videos of encouragement needed.

06/21/2024

Day 52 (7.5 weeks) Jacob Jarvis update:
Jacob was moved out of ICU unit. He is now in Pulmonary unit as he continues to heal. Jacob is now 11 days removed from removal of Breathing tube. Jacob uses ventilator overnight. Jacob has been able to go off the ventilator during the day now for several hours at a time. His stats continue to look strong each day. He is slowly returning to his normal happy demeanor with each passing day. We are grateful for all our prayer warriors. God has heard your requests. We have felt your prayers. We continue to follow God’s plan on faith. We don’t control tomorrow but we enjoy TODAY. We are requesting people to make videos of encouragement to Jacob. https://duchennewarriors.org/help-for-jacob/