Our lives changed forever when our son was diagnosed with Nephrotic Syndrome. We will never forget that day when our healthy and eager kindergartener woke up with swollen eyes. The next year brought so many dark days. So much medication, so many appointments and so many disappointments. Over the next 6 years of our journey, and since, we have found a way to manage as any family would; however, our
whole family is forever changed by this disease. We are more grateful than ever for the beautiful gift that each day brings, yet I would not wish this journey on anyone. It has been extremely tough on all of us. Our days are filled with doctors appointments, labs, missed events and missed school, upwards of 20 pills for our son, all which have extreme side effects, both immediate and long term, physical and emotional. It's hard to imagine what it's like for our now 13 year old himself, and seeing your child struggle every day, year after year, is something I hope few parents have to experience. We are so grateful to those who have helped us get to this point. Our community has been incredibly supportive, taking on this fight as their own, since the day we started. Because of this, we were able to found The Nephrotic Syndrome and establish a formal avenue for direct support for those battling Nephrotic Syndrome - something that has not existed until today! We now offer 5 programs to support these children and families and have identified over 100 new children to support in 2019. No one can change the fact that these kids have been diagnosed with this tough disease. However, together, with love, we CAN change their lives. We can offer support and love, education and community, and we can ensure that neither they, nor their parents or siblings, have to travel this road alone. We have BIG plans to help children diagnosed with this disease and are looking for a regular group of amazing, committed volunteers to take this effort to the next level! We would be honored by your support and commitment to help. Thank you!
