Sarcoma Foundation of America, Inc.

06/17/2026

On this episode, we’re joined by Rohini Deivasigamani, a 25-year-old from New Jersey who was diagnosed with Ewing sarcoma at 14 years old. Now, a decade later, she reflects on her journey from teenage cancer patient to young adult survivor and shares how time and perspective have shaped the way she processes that experience.

Rohini shares not only about her own diagnosis and treatment, but also about her father’s cancer diagnosis, which came shortly after hers. She discusses how her understanding of what they both endured has evolved over the years and the lasting impact those experiences have had on her life.

In recognition of National Cancer Survivor Month this June, we’re honored to share Rohini’s story with our community. Ten years after completing active treatment, she offers a real look at what survivorship means, the challenges and growth that come with it, and how she continues to navigate life beyond treatment.

Rohini’s optimism is magnetic, and her honest reflections are sure to resonate with many in the sarcoma community.

Available on all platforms.

06/16/2026

Our Subtype Series Webinar on angiosarcoma is next week!

Join us to learn about angiosarcoma, including diagnosis, treatment options, emerging research, and clinical trial opportunities. You'll also hear about efforts to improve outcomes through collaborative research and patient advocacy.

Our featured speakers are Dr. Silvia Stacchiotti, one of the world’s leading sarcoma medical oncologists and an internationally recognized expert in angiosarcoma; Dr. Lee Cranmer, Chief of Sarcoma Medical Oncology at City of Hope and a leading expert in sarcoma clinical care and clinical trials; and Corrie Painter, researcher, patient advocate, and founder of the Angiosarcoma Project. Together, they will share both clinical and patient perspectives on advances in the angiosarcoma community.

Register: https://us06web.zoom.us/webinar/register/WN_P-mO8xQERAC-AK5YRvwU2w #/registration

06/15/2026

Our annual Children's Artwork Contest is back and submissions are now open!

Kids are invited to create and submit original artwork for a chance to have their design featured in our newsletter and on our 2025 holiday card. To enter, send a photo of the artwork to [email protected] and include the artist's name, age, connection to sarcoma, and an adult contact's information.

Share your creativity, help raise sarcoma awareness, and inspire our community through art. We can't wait to see your masterpieces!

Learn more and find our full list of guidelines at https://curesarcoma.org/get-involved/sarcoma-awareness-month/childrens-artwork-contest/

06/13/2026

Bring your friends and family to Edgewater Park next Saturday for RTCS Cleveland! Whether you walk, run, volunteer, or cheer from the sidelines, every participant helps move sarcoma research forward and brings hope to patients and families affected by this disease.

Thanks to the incredible support of our community, we are making great progress toward our goal of $145,000. Join us as we come together to honor loved ones, celebrate survivors, and raise critical funds for research that will lead to better treatments and outcomes for sarcoma patients.

Register or show your support: https://curesarcoma.org/race-to-cure-sarcoma/

06/12/2026

Supporting the sarcoma community takes many forms, and Lily is making a difference through the SFA Club she founded at her school.

After recognizing the need for greater sarcoma awareness and research funding, Lily started the club in honor of Technoblade. Today, nearly 30 students are involved, learning about sarcoma, raising awareness, and finding creative ways to support the cause.

Follow along as SFA Club has a meeting, where members make bracelets to hand out at the Race to Cure Sarcoma in Washington, D.C. Along the way, you'll hear from several club members about why they joined the club and what inspires them to support the sarcoma community.

Through education, fundraising, and community-building, Lily and her fellow students are helping create a future with more awareness, more research, and more hope for everyone affected by sarcoma.

06/11/2026

Join the Sarcoma Foundation of America for the next installment of our Sarcoma Subtype Series, focused on angiosarcoma.

This educational webinar will provide an overview of angiosarcoma, including how it is diagnosed, current treatment approaches, emerging research, and clinical trial opportunities. Participants will also learn about ongoing efforts to improve outcomes for patients through collaborative research and patient advocacy initiatives.

Our featured speakers are Dr. Silvia Stacchiotti, one of the world’s leading sarcoma medical oncologists and an internationally recognized expert in angiosarcoma; Dr. Lee Cranmer, Chief of Sarcoma Medical Oncology at City of Hope and a leading expert in sarcoma clinical care and clinical trials; and Corrie Painter, researcher, patient advocate, and founder of the Angiosarcoma Project. Together, they will provide both clinical and patient-centered perspectives on the challenges and opportunities facing the angiosarcoma community.

Register: https://us06web.zoom.us/webinar/register/WN_P-mO8xQERAC-AK5YRvwU2w #/registration

06/10/2026

You can make a difference.

It's not too late to join the sarcoma community in Washington, D.C., July 15–18 for Sarcoma Advocacy Weekend. Meet with policymakers, learn about key issues impacting sarcoma patients, connect with fellow advocates, and help advance research and access to care.

The weekend will feature a Congressional Reception, meetings with lawmakers on Capitol Hill on Advocacy Day, an Education Day focused on the drug development process and the critical role advocacy plays in expanding treatment access for sarcoma patients, and the Race to Cure Sarcoma. Together, these events provide opportunities to learn, connect, and make a meaningful impact for the sarcoma community.

Learn More: https://curesarcoma.org/get-involved/sarcoma-advocacy/sarcoma-advocacy-weekend/

06/09/2026

"In January 2024, I was diagnosed with Synovial Sarcoma after a tumor was discovered behind my left knee. What followed was one of the most difficult challenges of my life: multiple rounds of chemotherapy, radiation treatments, and ultimately a 13-hour surgery. My doctors warned me that I could potentially lose my leg or never regain full movement in my knee. Despite the fear and uncertainty, I faced each step of the journey with determination and hope.

Throughout it all, the unwavering support of my wife and family gave me the strength to keep pushing forward. Today, two years after surgery, I am grateful to say there has been no sign of the cancer returning. I have been able to return to work as a mechanic and have regained full movement in my leg; outcomes that once seemed uncertain. I owe so much of my recovery to the incredible team of doctors, whose skill, dedication, and care helped make this possible.

Being part of the Race to Cure Sarcoma Cleveland is my way of giving back to the research efforts that have helped me get to where I am today in my journey." - Noah Foley, RTCS Cleveland

Join Noah and many others at RTCS Cleveland next week! If you can't make it to Cleveland, we'd love to see you at a Race to Cure Sarcoma event near you.

06/08/2026

Big Heart Fest is happening this weekend!

Big Heart Fest is coming back to Chicago!

Join the fun on Saturday, June 13 from 4–10pm at Chief O’Neill’s Pub & Restaurant for a special night of music, community, and celebration honoring John “Big Johnny” O’Brien and his joyful, generous spirit.

This music festival is held in his memory and supports the Sarcoma Foundation of America, helping fund critical research and bring hope to those impacted by sarcoma.

Enjoy live music, silent and live auctions, great food, and an evening filled with Big Johnny’s legacy of love and celebration.

Find more information at https://e.givesmart.com/events/OI0/

06/08/2026

Sarcoma Awareness Month is almost here!

There are many ways to get involved, whether you're participating from home, attending an event, or joining advocates on Capitol Hill. Every action helps raise awareness, support patients and families, and strengthen the sarcoma community.

Explore ways to participate and make an impact this Sarcoma Awareness Month: curesarcoma.org/get-involved/sarcoma-awareness-month/