Hope4Harper CDKL5usa

06/03/2026

Do you wish your 4, 5, 6, 7, 8 year old had the right words to relate to their feelings? Do you wish you could secretly talk to the future them and ask questions like.....

How did CDKL5 affect your family relationships — between siblings, with your parents, and extended family?

Did you ever feel pressure to be the “perfect” or “strong” sibling? How did you deal with that?

How has your experience as a sibling influenced the person you are today?

Now is your chance to cover those difficult questions and
ASK LILY: A Conversation for Parents and Caregivers.

Register here:
https://us06web.zoom.us/meeting/register/NjkYibS0STWB8cSgoOghBQ

📅 Saturday, June 13
⏰ 9 AM PST | 10 AM MT | 11 AM CST | 12 PM EST | 5 PM UK/BST

06/01/2026

Register here:
https://us06web.zoom.us/meeting/register/NjkYibS0STWB8cSgoOghBQ
Do you have questions about what it’s like to grow up as the sibling of a medically fragile child with special needs?
ASK LILY! 💜
Join us for a live conversation with Lily as she shares her perspective as a young sibling and answers your questions.
📅 Saturday, June 13
⏰ 9 AM PST | 10 AM MT | 11 AM CST | 12 PM EST | 5 PM UK/BST

Please share with families, siblings, caregivers, and anyone who wants to better understand the sibling experience.

01/08/2026