FSHD Society Columbus

FSHD Society Columbus Thank you for visiting the Facebook news page for the Columbus Chapter of the FSHD Society. Our hope for the future is to find a cure.

The Columbus Chapter of the FSHD Society is here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Until then, we hope to bring a greater awareness to the community, and to help improve

the quality of life of all those affected. We use this page to post about local chapter events, fundraisers, and education programs. You can learn more about our chapter at FSHDSociety.org/Columbus

If you want to join the community and add to the conversation on Facebook, please head on over to the National FSHD Society page

Address

Columbus, OH

Telephone

+16147384297

Website

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FSHD Society Columbus Chapter

We are the world's largest and most progressive grassroots network of facioscapulohumeral muscular dystrophy (FSHD) patients, their families and research activists. The FSHD Society harnesses the power and insight of a patient-driven model, as it was founded on a promise between two research scientists with FSHD never to let the disease be forgotten or neglected. We are a cause without borders.

MEET YOUR CHAPTER DIRECTOR: SUSAN AUMILLER

I’m Susan Aumiller and look forward to building the Columbus Chapter of the FSHD Society. Both my son and husband were diagnosed in 2017, and we want to bring together those affected to support one another.

To contact Sue directly, please email: [email protected]