Race for Ellie; Changing the Course of Mito

Race for Ellie; Changing the Course of Mito The Race for Ellie Foundation is a 501(c)(3) charity funding vital research and raising awareness for Mitochondrial Disease.

The race was started in 2006 in honor of Ellie Kovalcik. Join us on Saturday, January 25, 2014, for our first race in SOUTH CAROLINA!!! We are so excited to introduce the Race for Ellie to the Lowcountry - and as a fabulous trail run for a new twist!! Come run and change the course of Mito and enjoy the majestic beauty that is Palmetto Bluff...you don't want to miss this race!! The RFE has had hug

e success as a 5k running event in Columbus, Ohio, raising over $775,000 since 2006 for Mitochondrial Disease (Mito). The race is held in honor of Ellie Kovalcik, a Bluffton resident, who suffers from Mito.

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About Mito
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Mitochondrial Disease (Mito) is a chronic, genetic disorder that occurs when the mitochondria fails to produce enough energy for cell or organ function. Mitochondria are known as the "powerhouse of the cell"; they create more than 90% of cellular energy and are necessary to sustain life and support growth. There are many forms of Mito and the disease presents very differently from individual to individual, thus making it difficult to diagnose. The incidence is about 1:2000 births in the United States. Symptoms include poor growth, loss of muscle coordination and muscle weakness, neurological problems, developmental delays, gastrointestinal disorders, autonomic dysfunction and many more. Please visit www.MitoAction.org for more information.

05/14/2014

Hello Race for Ellie fans! It is the time of year for us to be gearing up for a race to help Change the Course of Mitochondrial Disease. The RFE Foundation has been underwriting research at The Ohio State University Wexner Medical Center (OSUWMC) for over five years for a chance to do just that ... change Mito. The progress made in five years has been groundbreaking .... thank you to our researchers working for Mito! Thank you also to our past participants, donors, sponsors and volunteers!!

Research update ... The research which looked so promising last summer did not realize its' full potential. We moved on to a second strategy which we realized in February of this year would not produce the desired results either. Concurrent with our challenges in the laboratory, The OSUWMC has some financial challenges which have affected some medical programs, including our research study. We are extremely disappointed and heartbroken. The RFE Foundation hopes to find another partner to fulfill our research goals; however, it may take time. We promise to keep our supporters updated.

Back to the race ... We have made the very difficult decision not to hold this year's race. We are not at all comfortable asking participants and donors to support the RFE Foundation when we do not have an active research program available. We hope you understand. Ellie sends her love and high-fives to each and every one of you!

Please feel free to email [email protected] with any questions or concerns. Thank you!

02/19/2014

February is Month. Help us for mitochondrial disease!

02/18/2014

Please pray for this Bluffton family as they mourn the loss of their sweet boy, Leo.

It is with great sadness that we announce the passing of sweet Leo on saturday morning February 15th. Visitation will be at St. Francis by the Sea, Hilton Head Island, starting at 9:00am Tuesday morning, February 18th. The funeral Mass will begin at 10:30. At 12:00pm we will gather at the Rose Hill Golf Club House, 4 Club House Dr. Bluffton. In Lieu of Flowers, Leo's family has requested that donations be made to MUSC Children's Hospital, www.musckids.org (Pediatric hematology/oncology) or by mail (59 Bee Street, MSC 201 Charleston, SC 29425. Leo's family thanks you for your continued thoughts and prayers.

MUSC Children's Hospital is one of the top Children's Hospitals in the country, recently ranked by U.S. News & World Report for Pediatric Heart & Heart Surgery and Pediatric Gastroenterology.

We must continue to fight Mito! God Bless the Leggett Family.
02/18/2014

We must continue to fight Mito! God Bless the Leggett Family.

Tune in, folks!
02/05/2014

Tune in, folks!

Canadian Brett Devloo, 18, was living life as a typical teenager. He had just earned his learner's permit and spent most of his free time hanging out with friends and skateboarding. But everything came to a halt one day nearly two years ago when he noticed his vision had become blurry, and he was...

02/05/2014

We started the morning out at a whopping 25 degrees! Burr... Isn't South Carolina supposed to be warm? Thank you from the bottom of our hearts to the runners, sponsors and volunteers. Who knew you could run with so many layers of clothes on? You all helped to make the lowcountry's first Race for Ellie a huge success!

01/28/2014
We started the morning out at a whopping 25 degrees! Burr... Isn't South Carolina supposed to be warm? Thank you from ...
01/26/2014

We started the morning out at a whopping 25 degrees! Burr... Isn't South Carolina supposed to be warm? Thank you from the bottom of our hearts to the runners, sponsors and volunteers. Who knew you could run with so many layers of clothes on? You all helped to make the lowcountry's first Race for Ellie a huge success!

01/26/2014

Also, a BIG THANK YOU to those of you who came out to volunteer for the race in the bitter cold ;)

01/25/2014

Thank You for the out pouring support for the 1st Annual Race for Ellie in the Lowcountry! We had a great turnout, and look forward to seeing y'all next year!

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Columbus, OH

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+16145621813

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