National Neutropenia Network

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Cincinnati, OH
National Neutropenia Network

Founded in 1994, the NNN is a support organization for families and patients.

The National Neutropenia Network promotes awareness, educates, and provides a support system for patients with neutropenia and their families through a national support system.

03/30/2026

Upcoming Opportunities for Our Neutropenia Community ✨

We have two ways to get involved - whether you’re looking to learn or help shape what’s next:

🔬 4WARD Study Webinar

Join us THIS WEDNESDAY April 1 for a virtual session on a Phase 3 clinical trial exploring a potential new treatment option for chronic neutropenia. Hear the latest updates, learn about eligibility, and ask questions live.

🗓 April 1 | ⏰ 7 PM ET
📌 Register by March 31 to receive Zoom link: https://bit.ly/4m62nAa

💡 2027 Family Retreat – Planning Committee
We’re starting to plan our next retreat and want your ideas, energy, and voice at the table. Help us create a meaningful experience for families across our community.

📩 Interested? Email [email protected]

03/09/2026

The 4WARD Study is still enrolling so don't miss the upcoming information session!

If you are age 12 or older and living with chronic neutropenia, you may be eligible to participate in the 4WARD Study.

Learn more about the study on their website and join us on April 1 at 7 PM ET for a virtual informational session where X4 Pharmaceuticals will explain the study and answer your questions live.

This is a great opportunity to learn more and see if participation might be right for you or someone you know.
📅 April 1 | 7 PM ET
💻 Virtual Info Session + Q&A
Register now: https://forms.office.com/r/mwtNASCE0Y

Learn more at: https://4WARDstudy.com

02/28/2026

Today, on Rare Disease Day, we stand with the more than 300 million people worldwide living with a rare disease — including those affected by chronic neutropenia.

To our neutropenia community: You are not alone. 💜

We remain committed to working toward a future where no one faces neutropenia without answers, resources, and hope.

Learn more and find support: https://neutropenianet.org

11/17/2025

Big news! 🎉 Thanks to the Sunshine Network, kids from the NNN community are invited to attend a virtual Endzone Extravaganza featuring Bengals’ Dalton Risner! Kids get to meet Dalton, play, and have a football-themed night of fun.

Caregivers are welcome to be present, but please note that only children should be registered and appear on camera so they can fully engage, connect, and enjoy time with their peers.

09/25/2025

Are you part of the Severe Chronic Neutropenia International Registry? Have you received your email to take part in their Patient-Reported Outcomes Study? If you have not received it, please email [email protected].

If you are not part of the registry, and would like to participate, please reach out to the above email and let your voice be heard.

By hearing directly from patients and families, rather than an interpretation of a patient’s condition by a medical provider, the SCNIR aims to better understand the patient and family experience of neutropenia and its associated treatments.
https://neutropenianet.org/scnir/

08/26/2025

Last Call for NNN T-shirts! Sale ends tonight! Two styles, one great cause. https://secure.qgiv.com/for/nationalneutropenianetwork/event/tshirtfundraiser/

08/06/2025

We’re thrilled to offer exclusive Family Conference t-shirts as part of a special fundraiser for the National Neutropenia Network! Whether you joined us at the conference or want to show your support from afar, this is a great way to help raise awareness and wear your support proudly.

👕 Both of our 2025 conference designs are available
✅ Adult and kid sizes
💲 Only $25 each
🗓️ Orders close August 25
📦 Please allow 2.5 weeks for production and shipping—we’ll email you when your shirt is on the way!
https://neutropenianet.org/donate/

08/01/2025

A huge thank you to Vanessa, Anna, Tracy and Maison for sharing their stories and providing hope during our Voices of Experience segment.
You can encourage others to share their stories to be featured in upcoming newsletters and the website by emailing [email protected]

07/28/2025

The Ella Jewell Foundation sponsored our kids camp this year and we couldn’t be more greatful! Due to their generosity, we had a very successful weekend filled with crafts, games, and snacks for the kids to enjoy! Thank you, we had so much fun!

07/26/2025

A big thank you to the team from X4 for joining us at this year’s retreat!

They were on hand to answer questions about their ongoing Phase 3 clinical study of an oral medication for chronic neutropenia — and we’re grateful for their support and sponsorship.

Want to learn more about the study? Visit neutropeniastudy.com

07/22/2025

Thank you Emily for sharing your experience with the National Neutropenia Conference! It’s always inspiring to hear about lives that are positively impacted after attending. We are excited to continue making memories in the future!

Address

Cincinnati, OH

Telephone

+18666000799

Website

http://www.neutropenianet.org/

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