Lupus Lives Foundation

05/19/2026

💜🦋 Lupus Fact: Butterfly Rash 🦋💜

One of the most recognized signs of lupus is the butterfly rash, a rash that spreads across the cheeks and bridge of the nose. For many warriors, it can become worse with sun exposure and may itch, burn, or feel sensitive.

Living with lupus means learning your body, protecting your peace, and advocating for your health daily. ☀️💜

✨ Tip: Protect your skin by wearing SPF 30 or higher, protective clothing, and limiting direct sun exposure during flares.

Awareness creates understanding, and understanding creates compassion. You are not alone in this journey. 💜

05/10/2026

💜🌍 P.O.P — Put On Purple! 🌍💜

Today we stand together for Global Lupus Awareness Day to help Paint the World Purple in honor of the millions battling lupus and invisible illness worldwide.

Wear your purple proudly. Start conversations. Spread awareness. Show compassion.

Because even when the illness is unseen, the warriors fighting it deserve to be seen, heard, and supported. 🦋💜

05/10/2026

Thank you 💜🫶🏽

05/09/2026

Different conditions can mirror symptoms 💜

Some of the differences between fibromyalgia and lupus.

Hope you find it helpful.

Much Love
Stay Safe
Natasha

05/07/2026

POP for Lupus Awareness

Don't forget in 3 days is World Lupus Day ~ POP "Put on Purple". Be sure to put your L's up and never give up. Join us we flood the world purple. ~TJ 💜

05/06/2026

On Wednesdays we wear PURPLE 💜

08/01/2025

✨ Hello, August! 💜

A new month brings new chances to grow, glow, and go after what sets your soul on fire. As we welcome August, Lupus Lives is shining light on awareness topics that often go unnoticed, hair loss, sun safety, and eye health.

Whether you’re navigating chronic illness or simply trying to stay on top of your wellness, this month we encourage you to:

🌞 Protect your skin from the sun
👁️ Get your eyes checked
💇‍♀️ Speak openly about hair loss, it’s real, and it’s valid

Let’s keep showing up for ourselves and each other. Awareness matters.

07/23/2025

World Sjögren’s Day: Awareness Through Research 💙💜

Sjögren’s is more than just dry eyes and mouth, it’s a complex autoimmune condition that can affect your entire body. From swollen lymph nodes and kidney damage to central nervous system and nerve complications, the impact on quality of life is real.

As someone living with this condition, advocacy starts with you.

✔️ Stay hydrated
✔️ Monitor your eyes and mouth regularly
✔️ Communicate openly with your healthcare team
✔️ Prioritize rest and self-care

Empower yourself through education and action. Together, we raise awareness and push for research that leads to better care and lasting change. 💜💙

07/04/2025

Today, we honor freedom and the fight for it in every form.

As we celebrate Independence Day, we’re reminded that freedom isn’t about fireworks and flags, it’s about the everyday warriors who fight silent battles with strength and grace.

💜 Freedom is the ability to speak your truth, even when your illness is invisible.
💜 Freedom is the choice to rest, to heal, to advocate for yourself.
💜 Freedom is the power to live boldly, love deeply, and keep going, even on the hard days.

To every lupus warrior, survivor, caregiver, and advocate:

You are brave. You are worthy. You are a symbol of strength.

This Fourth of July, we celebrate YOU and the community that keeps fighting for visibility, equity, and hope.

🎆 Stay safe. Stay proud. Stay powerful.