Smash SMARD

Smash SMARD Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Smash SMARD, Nonprofit Organization, Chicago, IL.

smashSMARD was started to bring a permanent end to SMARD, CMT2S and IGHMBP2-related disorders. 100% of every donation is being used to develop a life-saving gene therapy for those affected.

Happy 6th birthday to Lucy!!!! Keep being strong sweet girl!! 🥳💗Everyone wish Lucy a happy birthday!! 🥳🥳
03/19/2026

Happy 6th birthday to Lucy!!!! Keep being strong sweet girl!! 🥳💗

Everyone wish Lucy a happy birthday!! 🥳🥳

Thank you to Leslie McDonnell Team’s clients, friends and family for continually donating to our cause each and every ye...
01/07/2026

Thank you to Leslie McDonnell Team’s clients, friends and family for continually donating to our cause each and every year. We have moved mountains, and have treated 9 patients with gene therapy from the ongoing support given to this cause. We can’t do this without you. ❤️

As always, an amazing turnout for Hearts for Lucy. We are so proud of you and your family, brave girl!
08/24/2025

As always, an amazing turnout for Hearts for Lucy. We are so proud of you and your family, brave girl!

Happy 5th birthday to Lucy!!!! 🥳💓
03/19/2025

Happy 5th birthday to Lucy!!!! 🥳💓

Today is Rare Disease Day. And SMARD is a very rare disease. Fortunately, so much progress has been made for SMARD1 and ...
03/01/2025

Today is Rare Disease Day. And SMARD is a very rare disease. Fortunately, so much progress has been made for SMARD1 and CMT2S research thanks to all of our donors and supporters. We are so grateful that we will continue to and honor all of these beautiful babies and kiddos who fight a battle every day with a smile on their face ❤️



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Chicago, IL

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