Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. For over 70 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. MDA’s mission is to empower the people we serve to live longer, more independent lives.
**MDA Social Media Community Guidelines**
At the Muscular Dystrophy Association (MDA), we’ve built our social media communities to connect, engage, and learn from one another. We welcome your participation and encourage open discussion about your experiences. When visiting, commenting, or posting on MDA’s social media channels, here are a few things to keep in mind:
Respectful and Meaningful Engagement
• We welcome your mentions, comments, messages, and replies. However, as a nonprofit focused on neuromuscular disease, we cannot provide medical advice or engage in discussions about specific treatment options.
• For guidance and support we direct any questions on autoreply messages to the MDA Resource Center to call 1-833-ASK-MDA1 (1-833-275-6321) or email [email protected].
• Social media accounts that MDA follows—or that follow us—do not imply our endorsement of those accounts or their content.
• The opinions and content shared by followers, including images and videos, do not necessarily reflect the views of MDA, its staff, or affiliates. Health and Medical Discussions
• Medical Advice: MDA’s social media channels are not a substitute for professional medical advice. If you have a medical question, please consult a healthcare provider.
• Treatment Discussions: If a comment or post includes specific details about a therapy, treatment, or clinical trial, MDA may refer the questions in the conversation to specialists in the MDA Resource Center: By Phone: 1-833-ASK-MDA1 (1-833-275-6321) By Email: [email protected]. Product and Safety Concerns
MDA is a nonprofit organization that supports research, care centers, and advocacy that contribute to drug development, but we are not biotechnology or pharmaceutical company. We care deeply about the safety and well-being of our community. If you have concerns about a medical product or therapy, we encourage you to speak with your doctor or a specialist in the MDA Resource Center for guidance. Community Conduct
To maintain a positive and inclusive space, MDA may remove content that includes:
• Profanity or hate speech – We aim to foster a respectful community.
• Off-topic or misleading information – We want to keep discussions relevant and factual.
• Spam or promotional content – This includes posts promoting the sale of products or services.
• Personally identifiable information – To protect privacy, we may remove posts that contain personal details like phone numbers, addresses, or medical information.
• Other objectionable content. Third-Party Links
Links to external websites or social media accounts shared in comments do not necessarily indicate MDA’s endorsement. We appreciate your support in making our social media communities a welcoming and valuable space for all. Thank you for engaging with us and for being part of the MDA community!
