Live Like Levi

Live Like Levi Our goal is for families to have hope & financial relief to live their lives to the fullest.

What a blessing to see pictures & receive updates it is to us! Hayley requested funds for her daughters intensive therap...
07/02/2024

What a blessing to see pictures & receive updates it is to us!

Hayley requested funds for her daughters intensive therapy & this is what she said, “Receiving funds from the Live Like Levi fund has meant the world to our family. Because of this opportunity for Everly to receive 3 weeks of intensive therapy, she took her very first independent steps. She worked hard the entire three weeks to accomplish this milestone, and we were all in awe. We know that the sky is the limit with Everly, but she has dedicated so much of her life working hard in therapy to overcome limitations that have occurred as a result of epilepsy surgery. The newfound freedom of a few independent steps continues to grow and grow. We are so thankful and encouraged for this breakthrough. As a parent, you always envision your child’s first steps walking to you. While this may be different for our story, watching her break down barriers is even more special. Increasing Everly’s strength has helped her whole body holistically be healthier.”
I couldn’t have said it any better! Our kiddos do their thing on their own timing.

We started this fund not only to help kiddos like Levi but also the parents - to relieve a small amount of stress financially.

Hayley we are so glad she made improvements & pray she continues to do so!

Another positive from her mom- “It also has helped me as her primary caregiver with lifting and caring for her, especially since I have scoliosis. I am so grateful for the regular and early intervention of intensive therapy that we have had access to, only thanks to generous donations like the Live Like Levi Fund. Thank you so much!”

Our donors make this possible! We hope this brings a smile to your face today 😀💜

Meet Matthew! He was Live Like Levi foundation first recipient of a grant. Our son Levi has actually met Matthew a few y...
04/30/2024

Meet Matthew! He was Live Like Levi foundation first recipient of a grant. Our son Levi has actually met Matthew a few years ago at their very first intensive. Cristina, Matthew’s mom says, “Matthew is a very happy and smiley boy. He loves musical toys, his favorites are probably the drums and the piano, but his absolute favorite is the vacuum cleaner and its cord:)

Matthew received his grant to help fund a therapy intensive. His mom said, “We received a monetary grant that was used for Matthew’s intensive with On The Fly DMI, that wasn’t covered by insurance. We are extremely grateful for the support we received. Matthew needs a lot of therapy to make maintain his abilities and even more to make progress, sometimes the progress isn’t visible immediately but in the end every hour of therapy he received matters! We couldn’t have done it without your help. Thank you!”

We’re so glad Matthew could do therapy and take some of his first independent steps 👏🏻👏🏻
Thanks to all our donors and people who keep Live Like Levi going!

Last weekend Mike had the privilege of speaking at his regional meeting for northwestern mutual. His speech revolved aro...
02/15/2024

Last weekend Mike had the privilege of speaking at his regional meeting for northwestern mutual.
His speech revolved around our life story pre Levi // the unknowns & finally where we are now - letting his joy shine through and us moving along living life with Levi 💙
In true lankford and Levi style we did a fun day at Disney & now Levi is recovering with another cold!
We press on - to spread awareness of the live like Levi fund & hope to give other families the ability to live life with joy and less financial burden!
💜

⚡️it’s that’s time again- rare disease day is around the corner & we’re going to raise awareness for the 4th year in a r...
01/23/2024

⚡️it’s that’s time again- rare disease day is around the corner & we’re going to raise awareness for the 4th year in a row! ⚡️
February 29, we celebrate our rare 🦓 life of Levi + 300 million people around the globe! We do this annual to raise awareness so people have community, support, funding & research. Without this our rare community would be a pretty lonely place. A rare disease - like Levi’s MPPH can be hard to navigate. We felt first hand the first years of Levi’s life the grief, confusion, anger that came with having to learn everything about how to care and advocate for Levi. Families all around you are trying to find the best therapy, medicine, equipment and resources to know what to do and how to make life “easier” or manageable.
This year we are looking to raise money for the Live Like Levi fund started in 2023 as well as the PMG association that has helped us since the early days.

Live Like Levi has had the privilege to grant therapy scholarships to three families & we can’t wait to do more this year!
Donations can be through Venmo, Zelle, cash or check. We will ship the Yeti mug to you ☕️ DM with any questions! 💜🦓💜

Back at it again today! Getting thank you gifts out to those who donated so far to our fund! Again, we are so thankful! ...
11/08/2023

Back at it again today! Getting thank you gifts out to those who donated so far to our fund! Again, we are so thankful! ✨ ♥️

10/09/2023

Live Like Levi started in may 2023 and by June just a short 4 weeks later we met our goal of $10,000! It was matched by a donor and as our fundraising continues months later we officially have over $30,000 to gift to those in need. We encourage you to share this page to friends & family to not only raise support but to have disability families know we are here ❤️

Welcome! Glad you have found our page. A little bit about us: When our son Levi was diagnosed with a rare disease at one...
10/03/2023

Welcome! Glad you have found our page. A little bit about us: When our son Levi was diagnosed with a rare disease at one month old our world was turned upside down. We turned to Facebook, instagram and many doctors to try to find our way. Turns out, living with a rare disease we connected with most people via social media who could give advice, support and truly understand our lives. Fast forward 3.5 years later and we felt confident enough in what we’ve learned to start a fund for families with rare disease / disabilities. Our goal is to raise money to provide families with support for therapy, medical equipment, doctors visits etc! We hope to bring a little bit of joy to families so they know they are not alone. We hope since you found us you can either donate, share our page to spread word or maybe your a family in need! We are glad your here & can’t wait to connect!

Address

Chicago, IL

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm

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